Why a registry of Chronic Urticaria (CUR) is needed
Abstract Chronic urticaria (CU) has a major effect on patients’ quality of life. While there have been progressive advances regarding its pathogenesis and treatment, much remains to be done. Registries of other chronic non-communicable diseases have shown many benefits, such as additional basic know...
| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
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Elsevier
2017-05-01
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| Series: | World Allergy Organization Journal |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s40413-017-0147-2 |
| _version_ | 1818519434340335616 |
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| author | R. M. Gómez E. Jares G. W. Canonica I. Baiardini G. Passalacqua M. Sánchez Borges A. P. Kaplan Carlos E. Baena-Cagnani |
| author_facet | R. M. Gómez E. Jares G. W. Canonica I. Baiardini G. Passalacqua M. Sánchez Borges A. P. Kaplan Carlos E. Baena-Cagnani |
| author_sort | R. M. Gómez |
| collection | DOAJ |
| description | Abstract Chronic urticaria (CU) has a major effect on patients’ quality of life. While there have been progressive advances regarding its pathogenesis and treatment, much remains to be done. Registries of other chronic non-communicable diseases have shown many benefits, such as additional basic knowledge and management approaches to diabetes mellitus. Standards of care as well as diagnostic approaches can be elaborated and compared from different sites, using validated instruments. Registries in allergic diseases are also becoming well recognized, and the first registry on CU, accessible from SLaai’s webpage, includes parameters for identification, evaluation and management. In our vision, informatics strategies have the potential to improve care for chronic illnesses such as CU. The registry represents a valid instrument from which to obtain a sufficient sample size for epidemiological studies and/or clinical research planning, including feasibility and potential enrollment. It can also provide invaluable data for adapting guidelines to local populations, as well as diagnostic approaches and cost-effective interventions in the context of organizational efforts to improve patient care. |
| first_indexed | 2024-12-11T01:24:10Z |
| format | Article |
| id | doaj.art-e243846211604601bdf218cab622541a |
| institution | Directory Open Access Journal |
| issn | 1939-4551 |
| language | English |
| last_indexed | 2024-12-11T01:24:10Z |
| publishDate | 2017-05-01 |
| publisher | Elsevier |
| record_format | Article |
| series | World Allergy Organization Journal |
| spelling | doaj.art-e243846211604601bdf218cab622541a2022-12-22T01:25:37ZengElsevierWorld Allergy Organization Journal1939-45512017-05-011011510.1186/s40413-017-0147-2Why a registry of Chronic Urticaria (CUR) is neededR. M. Gómez0E. Jares1G. W. Canonica2I. Baiardini3G. Passalacqua4M. Sánchez Borges5A. P. Kaplan6Carlos E. Baena-CagnaniFundación Ayre at Instituto Médico AlasLibra FoundationAllergy & Respiratory Diseases Clinic, University of Genova, IRCCS AOU S.MartinoAllergy & Respiratory Diseases Clinic, University of Genova, IRCCS AOU S.MartinoAllergy & Respiratory Diseases Clinic, University of Genova, IRCCS AOU S.MartinoAllergy & Immunology Dpt, Centro Médico Docente La TrinidadThe Medical University of South CarolinaAbstract Chronic urticaria (CU) has a major effect on patients’ quality of life. While there have been progressive advances regarding its pathogenesis and treatment, much remains to be done. Registries of other chronic non-communicable diseases have shown many benefits, such as additional basic knowledge and management approaches to diabetes mellitus. Standards of care as well as diagnostic approaches can be elaborated and compared from different sites, using validated instruments. Registries in allergic diseases are also becoming well recognized, and the first registry on CU, accessible from SLaai’s webpage, includes parameters for identification, evaluation and management. In our vision, informatics strategies have the potential to improve care for chronic illnesses such as CU. The registry represents a valid instrument from which to obtain a sufficient sample size for epidemiological studies and/or clinical research planning, including feasibility and potential enrollment. It can also provide invaluable data for adapting guidelines to local populations, as well as diagnostic approaches and cost-effective interventions in the context of organizational efforts to improve patient care.http://link.springer.com/article/10.1186/s40413-017-0147-2Chronic UrticariaRegistryToolsApproachManagement |
| spellingShingle | R. M. Gómez E. Jares G. W. Canonica I. Baiardini G. Passalacqua M. Sánchez Borges A. P. Kaplan Carlos E. Baena-Cagnani Why a registry of Chronic Urticaria (CUR) is needed World Allergy Organization Journal Chronic Urticaria Registry Tools Approach Management |
| title | Why a registry of Chronic Urticaria (CUR) is needed |
| title_full | Why a registry of Chronic Urticaria (CUR) is needed |
| title_fullStr | Why a registry of Chronic Urticaria (CUR) is needed |
| title_full_unstemmed | Why a registry of Chronic Urticaria (CUR) is needed |
| title_short | Why a registry of Chronic Urticaria (CUR) is needed |
| title_sort | why a registry of chronic urticaria cur is needed |
| topic | Chronic Urticaria Registry Tools Approach Management |
| url | http://link.springer.com/article/10.1186/s40413-017-0147-2 |
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