Interpretive Qualitative Evaluation Informs Research Participation and Advocacy Training Program for Seniors: A Pilot Study
<i><b>Background:</b></i> An 8-week educational intervention co-taught by medical students and faculty was designed to foster communication between clinical researchers and populations of interest to ultimately increase participation in clinical research by older adults, incl...
| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
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MDPI AG
2023-10-01
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| Series: | Healthcare |
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| Online Access: | https://www.mdpi.com/2227-9032/11/19/2679 |
| _version_ | 1797575853110984704 |
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| author | Allison A. Bay Tina Tian Madeleine E. Hackney Hayley A. Silverstein Ariel R. Hart David Lazris Molly M. Perkins |
| author_facet | Allison A. Bay Tina Tian Madeleine E. Hackney Hayley A. Silverstein Ariel R. Hart David Lazris Molly M. Perkins |
| author_sort | Allison A. Bay |
| collection | DOAJ |
| description | <i><b>Background:</b></i> An 8-week educational intervention co-taught by medical students and faculty was designed to foster communication between clinical researchers and populations of interest to ultimately increase participation in clinical research by older adults, including underrepresented groups. Weekly topics focused on age-related changes and health conditions, socio-contextual factors impacting aging populations, and wellness strategies. <i><b>Objectives:</b></i> To evaluate the successes and weaknesses of an educational intervention aimed at increasing the participation of older adults in clinical research. <i><b>Design:</b></i> A focus group was assembled after an 8-week educational intervention, titled DREAMS, to obtain participants’ feedback on the program, following a pre-formulated interview guide. <i><b>Settings:</b></i> Participants were interviewed in a health center office environment in the United States of America in April of 2016. <i><b>Participants:</b></i> A post-intervention focus group was conducted with a group of eight older adults (mean age = 75.8 ± 11.4 years) from 51 total participants who completed the intervention. <i><b>Methods:</b></i> The focus group was interviewed loosely following a pre-formed question guide. Participants were encouraged to give honest feedback. The conversation was recorded, transcribed verbatim, and analyzed using thematic analyses. <i><b>Results:</b></i> While participants viewed most aspects of the study as a success and stated that it was a productive learning experience, most participants had suggestions for improvements in the program content and implementation. Specifically, the composition of and direction to small breakout groups should be carefully considered and planned in this population, and attention should be paid to the delivery of sensitive topic such as death and dementia. A clear main benefit of this programmatic approach is the development of a rapport amongst participants and between participants and clinical researchers. <i><b>Conclusions:</b></i> The results provide useful insights regarding improving participation among hard-to-reach and historically underrepresented groups of older adults in clinical research. Future iterations of this program and similar educational interventions can use these findings to better achieve the programmatic objectives. |
| first_indexed | 2024-03-10T21:45:11Z |
| format | Article |
| id | doaj.art-e28e66d3be3048e9bb0106282c96553c |
| institution | Directory Open Access Journal |
| issn | 2227-9032 |
| language | English |
| last_indexed | 2024-03-10T21:45:11Z |
| publishDate | 2023-10-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Healthcare |
| spelling | doaj.art-e28e66d3be3048e9bb0106282c96553c2023-11-19T14:25:43ZengMDPI AGHealthcare2227-90322023-10-011119267910.3390/healthcare11192679Interpretive Qualitative Evaluation Informs Research Participation and Advocacy Training Program for Seniors: A Pilot StudyAllison A. Bay0Tina Tian1Madeleine E. Hackney2Hayley A. Silverstein3Ariel R. Hart4David Lazris5Molly M. Perkins6Department of Medicine, Emory University School of Medicine, 100 Woodruff Circle, Atlanta, GA 30322, USADepartment of Medicine, Emory University School of Medicine, 100 Woodruff Circle, Atlanta, GA 30322, USADepartment of Medicine, Emory University School of Medicine, 100 Woodruff Circle, Atlanta, GA 30322, USADepartment of Medicine, Emory University School of Medicine, 100 Woodruff Circle, Atlanta, GA 30322, USADepartment of Medicine, Emory University School of Medicine, 100 Woodruff Circle, Atlanta, GA 30322, USADepartment of Medicine, Emory University School of Medicine, 100 Woodruff Circle, Atlanta, GA 30322, USADepartment of Medicine, Emory University School of Medicine, 100 Woodruff Circle, Atlanta, GA 30322, USA<i><b>Background:</b></i> An 8-week educational intervention co-taught by medical students and faculty was designed to foster communication between clinical researchers and populations of interest to ultimately increase participation in clinical research by older adults, including underrepresented groups. Weekly topics focused on age-related changes and health conditions, socio-contextual factors impacting aging populations, and wellness strategies. <i><b>Objectives:</b></i> To evaluate the successes and weaknesses of an educational intervention aimed at increasing the participation of older adults in clinical research. <i><b>Design:</b></i> A focus group was assembled after an 8-week educational intervention, titled DREAMS, to obtain participants’ feedback on the program, following a pre-formulated interview guide. <i><b>Settings:</b></i> Participants were interviewed in a health center office environment in the United States of America in April of 2016. <i><b>Participants:</b></i> A post-intervention focus group was conducted with a group of eight older adults (mean age = 75.8 ± 11.4 years) from 51 total participants who completed the intervention. <i><b>Methods:</b></i> The focus group was interviewed loosely following a pre-formed question guide. Participants were encouraged to give honest feedback. The conversation was recorded, transcribed verbatim, and analyzed using thematic analyses. <i><b>Results:</b></i> While participants viewed most aspects of the study as a success and stated that it was a productive learning experience, most participants had suggestions for improvements in the program content and implementation. Specifically, the composition of and direction to small breakout groups should be carefully considered and planned in this population, and attention should be paid to the delivery of sensitive topic such as death and dementia. A clear main benefit of this programmatic approach is the development of a rapport amongst participants and between participants and clinical researchers. <i><b>Conclusions:</b></i> The results provide useful insights regarding improving participation among hard-to-reach and historically underrepresented groups of older adults in clinical research. Future iterations of this program and similar educational interventions can use these findings to better achieve the programmatic objectives.https://www.mdpi.com/2227-9032/11/19/2679barriersfacilitatorseducational programsclinical researchparticipation |
| spellingShingle | Allison A. Bay Tina Tian Madeleine E. Hackney Hayley A. Silverstein Ariel R. Hart David Lazris Molly M. Perkins Interpretive Qualitative Evaluation Informs Research Participation and Advocacy Training Program for Seniors: A Pilot Study Healthcare barriers facilitators educational programs clinical research participation |
| title | Interpretive Qualitative Evaluation Informs Research Participation and Advocacy Training Program for Seniors: A Pilot Study |
| title_full | Interpretive Qualitative Evaluation Informs Research Participation and Advocacy Training Program for Seniors: A Pilot Study |
| title_fullStr | Interpretive Qualitative Evaluation Informs Research Participation and Advocacy Training Program for Seniors: A Pilot Study |
| title_full_unstemmed | Interpretive Qualitative Evaluation Informs Research Participation and Advocacy Training Program for Seniors: A Pilot Study |
| title_short | Interpretive Qualitative Evaluation Informs Research Participation and Advocacy Training Program for Seniors: A Pilot Study |
| title_sort | interpretive qualitative evaluation informs research participation and advocacy training program for seniors a pilot study |
| topic | barriers facilitators educational programs clinical research participation |
| url | https://www.mdpi.com/2227-9032/11/19/2679 |
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