Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team

Abstract Objective: to synthesize the care provided by health professionals, at different care levels, to the families of children with Autism Spectrum Disorders. Method: a qualitative study, based on the Family-Centered Care philosophical theoretical framework and developed with 22 professional...

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Main Authors: Tassia de Arruda Bonfim, Bianca Cristina Ciccone Giacon-Arruda, Sueli Aparecida Frari Galera, Elen Ferrraz Teston, Francisneide Gomes Pego Do Nascimento, Maria Angélica Marcheti
Format: Article
Language:English
Published: Universidade de São Paulo 2023-03-01
Series:Revista Latino-Americana de Enfermagem
Subjects:
Online Access:http://revodonto.bvsalud.org/scielo.php?script=sci_arttext&pid=S0104-11692023000100314&lng=en&tlng=en
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author Tassia de Arruda Bonfim
Bianca Cristina Ciccone Giacon-Arruda
Sueli Aparecida Frari Galera
Elen Ferrraz Teston
Francisneide Gomes Pego Do Nascimento
Maria Angélica Marcheti
author_facet Tassia de Arruda Bonfim
Bianca Cristina Ciccone Giacon-Arruda
Sueli Aparecida Frari Galera
Elen Ferrraz Teston
Francisneide Gomes Pego Do Nascimento
Maria Angélica Marcheti
author_sort Tassia de Arruda Bonfim
collection DOAJ
description Abstract Objective: to synthesize the care provided by health professionals, at different care levels, to the families of children with Autism Spectrum Disorders. Method: a qualitative study, based on the Family-Centered Care philosophical theoretical framework and developed with 22 professionals from three multidisciplinary teams from the Health Care Network of a municipality in the state of Mato Grosso do Sul, Brazil. The data were collected through two focus groups with each team, organized with the support of the Atlas.ti 8 Qualitative Data Analysis® software and submitted to Thematic Content Analysis. Results: the findings show actions centered on specific situations, especially on the demands and needs arising from the child’s care and atypical behavior. Influencing factors for family care, such as work overload and little professional experience, show the weakness of multiprofessional care and the invisibility of the family as a care unit. Conclusion: the need is highlighted to review functioning of the network for the multiprofessional care of children and their families and how such network is organized. It is recommended to offer permanent education actions that contribute to the qualification of multiprofessional teams in the care of families of children in the autism spectrum.
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spelling doaj.art-e2f34d5e857e4c4a816f22b44f8c638b2023-03-07T07:31:13ZengUniversidade de São PauloRevista Latino-Americana de Enfermagem1518-83452023-03-013110.1590/1518-8345.5694.3780Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional teamTassia de Arruda Bonfimhttps://orcid.org/0000-0002-2367-4097Bianca Cristina Ciccone Giacon-Arrudahttps://orcid.org/0000-0002-8433-6008Sueli Aparecida Frari Galerahttps://orcid.org/0000-0001-7974-9214Elen Ferrraz Testonhttps://orcid.org/0000-0001-6835-0574Francisneide Gomes Pego Do Nascimentohttps://orcid.org/0000-0002-0130-0385Maria Angélica Marchetihttps://orcid.org/0000-0002-1195-5465Abstract Objective: to synthesize the care provided by health professionals, at different care levels, to the families of children with Autism Spectrum Disorders. Method: a qualitative study, based on the Family-Centered Care philosophical theoretical framework and developed with 22 professionals from three multidisciplinary teams from the Health Care Network of a municipality in the state of Mato Grosso do Sul, Brazil. The data were collected through two focus groups with each team, organized with the support of the Atlas.ti 8 Qualitative Data Analysis® software and submitted to Thematic Content Analysis. Results: the findings show actions centered on specific situations, especially on the demands and needs arising from the child’s care and atypical behavior. Influencing factors for family care, such as work overload and little professional experience, show the weakness of multiprofessional care and the invisibility of the family as a care unit. Conclusion: the need is highlighted to review functioning of the network for the multiprofessional care of children and their families and how such network is organized. It is recommended to offer permanent education actions that contribute to the qualification of multiprofessional teams in the care of families of children in the autism spectrum.http://revodonto.bvsalud.org/scielo.php?script=sci_arttext&pid=S0104-11692023000100314&lng=en&tlng=enAutism Spectrum DisorderFamilyChildDelivery of Health CareHealth PersonnelHealthcare Models
spellingShingle Tassia de Arruda Bonfim
Bianca Cristina Ciccone Giacon-Arruda
Sueli Aparecida Frari Galera
Elen Ferrraz Teston
Francisneide Gomes Pego Do Nascimento
Maria Angélica Marcheti
Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team
Revista Latino-Americana de Enfermagem
Autism Spectrum Disorder
Family
Child
Delivery of Health Care
Health Personnel
Healthcare Models
title Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team
title_full Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team
title_fullStr Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team
title_full_unstemmed Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team
title_short Assistance to families of children with Autism Spectrum Disorders: Perceptions of the multiprofessional team
title_sort assistance to families of children with autism spectrum disorders perceptions of the multiprofessional team
topic Autism Spectrum Disorder
Family
Child
Delivery of Health Care
Health Personnel
Healthcare Models
url http://revodonto.bvsalud.org/scielo.php?script=sci_arttext&pid=S0104-11692023000100314&lng=en&tlng=en
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