ACT for Lupus: Pilot Feasibility and Acceptability Study of a Novel Web‐Based Acceptance and Commitment Therapy Program for Patients With Lupus
Objective Acceptance and commitment therapy (ACT) has demonstrated effectiveness in addressing symptoms of anxiety and depression, frequently experienced by patients with systemic lupus erythematosus (SLE). The goal of this pilot study was to develop and assess the feasibility and acceptability of a...
| Main Authors: | , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Wiley
2022-07-01
|
| Series: | ACR Open Rheumatology |
| Online Access: | https://doi.org/10.1002/acr2.11433 |
| _version_ | 1818107548480307200 |
|---|---|
| author | Emily M. McCormick Tessa R. Englund Rebecca J. Cleveland Teresa A. Dickson Crystal E. Schiller Saira Z. Sheikh |
| author_facet | Emily M. McCormick Tessa R. Englund Rebecca J. Cleveland Teresa A. Dickson Crystal E. Schiller Saira Z. Sheikh |
| author_sort | Emily M. McCormick |
| collection | DOAJ |
| description | Objective Acceptance and commitment therapy (ACT) has demonstrated effectiveness in addressing symptoms of anxiety and depression, frequently experienced by patients with systemic lupus erythematosus (SLE). The goal of this pilot study was to develop and assess the feasibility and acceptability of a novel web‐based ACT skills training program tailored for patients with lupus: ACT for Lupus. The program served as a complementary approach to support the management of symptoms and stressors during the COVID‐19 pandemic. Methods This study employed a single‐group pretest‐posttest design. Participants with a diagnosis of SLE were primarily recruited through an institutional healthcare system between November 25, 2020 and December 17, 2020 and through an online national lupus organization listserv. Participants were invited to attend two 1‐hour webinars delivered over a 2‐week period. Educational ACT‐based content was tailored for patients with lupus and delivered by an experienced clinical psychologist specializing in ACT. Surveys assessed patient‐reported outcomes of anxiety, depression, and quality of life and evaluated program feedback, usability, and satisfaction. Results A total of 83 participants submitted the baseline survey, with 21 participants designated as study completers. The program was well received by participants, who reported feasibility and acceptability of the intervention, as reflected by high usability ratings. Participants reported favorable experiences with the program. Feedback included suggestions to include additional lupus‐tailored content, increase the range and scope of sessions and activities, and improve program flexibility and availability to avoid scheduling conflicts. Conclusion This study provides preliminary evidence for an adapted, ACT‐based virtual skills training program as a feasible and acceptable intervention to support the well‐being of patients with lupus. |
| first_indexed | 2024-12-11T02:01:13Z |
| format | Article |
| id | doaj.art-e40aeb405e6c487099846f6a13821219 |
| institution | Directory Open Access Journal |
| issn | 2578-5745 |
| language | English |
| last_indexed | 2024-12-11T02:01:13Z |
| publishDate | 2022-07-01 |
| publisher | Wiley |
| record_format | Article |
| series | ACR Open Rheumatology |
| spelling | doaj.art-e40aeb405e6c487099846f6a138212192022-12-22T01:24:30ZengWileyACR Open Rheumatology2578-57452022-07-014757458010.1002/acr2.11433ACT for Lupus: Pilot Feasibility and Acceptability Study of a Novel Web‐Based Acceptance and Commitment Therapy Program for Patients With LupusEmily M. McCormick0Tessa R. Englund1Rebecca J. Cleveland2Teresa A. Dickson3Crystal E. Schiller4Saira Z. Sheikh5Thurston Arthritis Research Center University of North Carolina at Chapel Hill School of Medicine Chapel Hill North CarolinaThurston Arthritis Research Center University of North Carolina at Chapel Hill School of Medicine Chapel Hill North CarolinaThurston Arthritis Research Center University of North Carolina at Chapel Hill School of Medicine Chapel Hill North CarolinaThurston Arthritis Research Center University of North Carolina at Chapel Hill School of Medicine Chapel Hill North CarolinaDepartment of Psychiatry University of North Carolina at Chapel Hill School of Medicine Chapel Hill North CarolinaThurston Arthritis Research Center University of North Carolina at Chapel Hill School of Medicine Chapel Hill North CarolinaObjective Acceptance and commitment therapy (ACT) has demonstrated effectiveness in addressing symptoms of anxiety and depression, frequently experienced by patients with systemic lupus erythematosus (SLE). The goal of this pilot study was to develop and assess the feasibility and acceptability of a novel web‐based ACT skills training program tailored for patients with lupus: ACT for Lupus. The program served as a complementary approach to support the management of symptoms and stressors during the COVID‐19 pandemic. Methods This study employed a single‐group pretest‐posttest design. Participants with a diagnosis of SLE were primarily recruited through an institutional healthcare system between November 25, 2020 and December 17, 2020 and through an online national lupus organization listserv. Participants were invited to attend two 1‐hour webinars delivered over a 2‐week period. Educational ACT‐based content was tailored for patients with lupus and delivered by an experienced clinical psychologist specializing in ACT. Surveys assessed patient‐reported outcomes of anxiety, depression, and quality of life and evaluated program feedback, usability, and satisfaction. Results A total of 83 participants submitted the baseline survey, with 21 participants designated as study completers. The program was well received by participants, who reported feasibility and acceptability of the intervention, as reflected by high usability ratings. Participants reported favorable experiences with the program. Feedback included suggestions to include additional lupus‐tailored content, increase the range and scope of sessions and activities, and improve program flexibility and availability to avoid scheduling conflicts. Conclusion This study provides preliminary evidence for an adapted, ACT‐based virtual skills training program as a feasible and acceptable intervention to support the well‐being of patients with lupus.https://doi.org/10.1002/acr2.11433 |
| spellingShingle | Emily M. McCormick Tessa R. Englund Rebecca J. Cleveland Teresa A. Dickson Crystal E. Schiller Saira Z. Sheikh ACT for Lupus: Pilot Feasibility and Acceptability Study of a Novel Web‐Based Acceptance and Commitment Therapy Program for Patients With Lupus ACR Open Rheumatology |
| title | ACT for Lupus: Pilot Feasibility and Acceptability Study of a Novel Web‐Based Acceptance and Commitment Therapy Program for Patients With Lupus |
| title_full | ACT for Lupus: Pilot Feasibility and Acceptability Study of a Novel Web‐Based Acceptance and Commitment Therapy Program for Patients With Lupus |
| title_fullStr | ACT for Lupus: Pilot Feasibility and Acceptability Study of a Novel Web‐Based Acceptance and Commitment Therapy Program for Patients With Lupus |
| title_full_unstemmed | ACT for Lupus: Pilot Feasibility and Acceptability Study of a Novel Web‐Based Acceptance and Commitment Therapy Program for Patients With Lupus |
| title_short | ACT for Lupus: Pilot Feasibility and Acceptability Study of a Novel Web‐Based Acceptance and Commitment Therapy Program for Patients With Lupus |
| title_sort | act for lupus pilot feasibility and acceptability study of a novel web based acceptance and commitment therapy program for patients with lupus |
| url | https://doi.org/10.1002/acr2.11433 |
| work_keys_str_mv | AT emilymmccormick actforlupuspilotfeasibilityandacceptabilitystudyofanovelwebbasedacceptanceandcommitmenttherapyprogramforpatientswithlupus AT tessarenglund actforlupuspilotfeasibilityandacceptabilitystudyofanovelwebbasedacceptanceandcommitmenttherapyprogramforpatientswithlupus AT rebeccajcleveland actforlupuspilotfeasibilityandacceptabilitystudyofanovelwebbasedacceptanceandcommitmenttherapyprogramforpatientswithlupus AT teresaadickson actforlupuspilotfeasibilityandacceptabilitystudyofanovelwebbasedacceptanceandcommitmenttherapyprogramforpatientswithlupus AT crystaleschiller actforlupuspilotfeasibilityandacceptabilitystudyofanovelwebbasedacceptanceandcommitmenttherapyprogramforpatientswithlupus AT sairazsheikh actforlupuspilotfeasibilityandacceptabilitystudyofanovelwebbasedacceptanceandcommitmenttherapyprogramforpatientswithlupus |