Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of haemophilia: a qualitative study
Enhanced horizon scanning for emerging treatments has identified that both haemophilia A and haemophilia B pathways will be enriched with a range of new medicines with varying benefit-risk profiles. Patient and clinician views on the balance of the benefits and risks associated with emerging therapi...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Sciendo
2024-04-01
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| Series: | The Journal of Haemophilia Practice |
| Subjects: | |
| Online Access: | https://doi.org/10.2478/jhp-2024-0006 |
| _version_ | 1797197560885018624 |
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| author | Spoors John Payne Katherine Wright Stuart Horsley Will Bell Sadie Cairns John |
| author_facet | Spoors John Payne Katherine Wright Stuart Horsley Will Bell Sadie Cairns John |
| author_sort | Spoors John |
| collection | DOAJ |
| description | Enhanced horizon scanning for emerging treatments has identified that both haemophilia A and haemophilia B pathways will be enriched with a range of new medicines with varying benefit-risk profiles. Patient and clinician views on the balance of the benefits and risks associated with emerging therapies will affect their use for the treatment of haemophilia, while also introducing the need for effective communication strategies to enable informed patient-clinician decision-making. |
| first_indexed | 2024-04-24T06:45:55Z |
| format | Article |
| id | doaj.art-e4d857b06e8345bda99e6db96696c0b1 |
| institution | Directory Open Access Journal |
| issn | 2055-3390 |
| language | English |
| last_indexed | 2024-04-24T06:45:55Z |
| publishDate | 2024-04-01 |
| publisher | Sciendo |
| record_format | Article |
| series | The Journal of Haemophilia Practice |
| spelling | doaj.art-e4d857b06e8345bda99e6db96696c0b12024-04-22T19:40:56ZengSciendoThe Journal of Haemophilia Practice2055-33902024-04-01111213710.2478/jhp-2024-0006Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of haemophilia: a qualitative studySpoors John0Payne Katherine1Wright Stuart2Horsley Will3Bell Sadie4Cairns John5London School of Hygiene and Tropical Medicine, London, UKDivision of Population Health, Health Services and Primary Care, University of Manchester, Manchester, UKDivision of Population Health, Health Services and Primary Care, University of Manchester, Manchester, UKNHS England, London, UKLondon School of Hygiene and Tropical Medicine, London, UKLondon School of Hygiene and Tropical Medicine, London, UKEnhanced horizon scanning for emerging treatments has identified that both haemophilia A and haemophilia B pathways will be enriched with a range of new medicines with varying benefit-risk profiles. Patient and clinician views on the balance of the benefits and risks associated with emerging therapies will affect their use for the treatment of haemophilia, while also introducing the need for effective communication strategies to enable informed patient-clinician decision-making.https://doi.org/10.2478/jhp-2024-0006decision-makinggene therapyhaemophiliaqualitative researchrisk-benefit |
| spellingShingle | Spoors John Payne Katherine Wright Stuart Horsley Will Bell Sadie Cairns John Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of haemophilia: a qualitative study The Journal of Haemophilia Practice decision-making gene therapy haemophilia qualitative research risk-benefit |
| title | Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of haemophilia: a qualitative study |
| title_full | Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of haemophilia: a qualitative study |
| title_fullStr | Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of haemophilia: a qualitative study |
| title_full_unstemmed | Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of haemophilia: a qualitative study |
| title_short | Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of haemophilia: a qualitative study |
| title_sort | exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of haemophilia a qualitative study |
| topic | decision-making gene therapy haemophilia qualitative research risk-benefit |
| url | https://doi.org/10.2478/jhp-2024-0006 |
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