Physician View and Experience of the Diagnosis of Autism Spectrum Disorder in Young Children

Introduction: Clinicians working with children with autism spectrum disorder (ASD) occupy an important position between parents and the wide-ranging research findings. However, it is not widely known how clinicians view and experience ASD in children, even though their perspective has been shown to...

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Main Authors: Delphine Jacobs, Jean Steyaert, Kris Dierickx, Kristien Hens
Format: Article
Language:English
Published: Frontiers Media S.A. 2019-05-01
Series:Frontiers in Psychiatry
Subjects:
Online Access:https://www.frontiersin.org/article/10.3389/fpsyt.2019.00372/full
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author Delphine Jacobs
Jean Steyaert
Jean Steyaert
Kris Dierickx
Kristien Hens
author_facet Delphine Jacobs
Jean Steyaert
Jean Steyaert
Kris Dierickx
Kristien Hens
author_sort Delphine Jacobs
collection DOAJ
description Introduction: Clinicians working with children with autism spectrum disorder (ASD) occupy an important position between parents and the wide-ranging research findings. However, it is not widely known how clinicians view and experience ASD in children, even though their perspective has been shown to significantly influence their work.Material and methods: Sixteen physicians working with preschool children without a diagnosis of (intellectual or other) disability with a (presumed) diagnosis of ASD participated in a semistructured interview. They described their professional views on ASD, and how they experienced its use in their clinical practice. The data were analyzed by applying the qualitative research method of interpretative phenomenological analysis of the data through Nvivo 11.Results: The main topic of the interviewed physicians’ views and experiences of ASD in a young child comprised three inductively established themes: 1) physicians’ views on ASD are multifaceted but fit within their personal clinical styles; 2) the ASD diagnosis is a “descriptive” part of a clinical trajectory; and 3) ASD treatment is a mix of “standard” approaches and a personalized search. These physicians’ perspectives on ASD are composed of multiple and sometimes ambiguous facets. However, their views are embedded in their personal clinical styles in general (i.e., beyond ASD) and are experienced as clinically “workable.” With the aim of finding an adequate approach to the problems parents bring to their office, many interviewed physicians say that—complementary to or rather than a classificatory diagnosis—they prefer using a personalized “profile” of a child in a therapeutic “process.”Conclusions: The interviewed physicians consider doubts and concerns to be an inherent part of their clinical work with ASD in young children, but do not experience this ambiguity as an obstacle to clinical care. These physicians deal with the multiplicity of their views on ASD by basing their eclectic views on their generally adopted clinical styles, and by selecting what works for them, and for the parents and child, from what they regard as the ‘textbook knowledge’ on ASD. We discuss the implications of these findings for translating research results to the clinic.
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spelling doaj.art-e549b367934647a8939a9a66efcbb8c02022-12-21T19:19:53ZengFrontiers Media S.A.Frontiers in Psychiatry1664-06402019-05-011010.3389/fpsyt.2019.00372435763Physician View and Experience of the Diagnosis of Autism Spectrum Disorder in Young ChildrenDelphine Jacobs0Jean Steyaert1Jean Steyaert2Kris Dierickx3Kristien Hens4Center for Biomedical Ethics and Law, Department of Medicine, KU Leuven, Leuven, BelgiumCenter for Autism Expertise, Child and Adolescent Psychiatry, University Hospitals Leuven, Leuven, BelgiumDepartment of Neurosciences, KU Leuven, Leuven, BelgiumCenter for Biomedical Ethics and Law, Department of Medicine, KU Leuven, Leuven, BelgiumDepartment of Philosophy, University of Antwerp, Antwerp, BelgiumIntroduction: Clinicians working with children with autism spectrum disorder (ASD) occupy an important position between parents and the wide-ranging research findings. However, it is not widely known how clinicians view and experience ASD in children, even though their perspective has been shown to significantly influence their work.Material and methods: Sixteen physicians working with preschool children without a diagnosis of (intellectual or other) disability with a (presumed) diagnosis of ASD participated in a semistructured interview. They described their professional views on ASD, and how they experienced its use in their clinical practice. The data were analyzed by applying the qualitative research method of interpretative phenomenological analysis of the data through Nvivo 11.Results: The main topic of the interviewed physicians’ views and experiences of ASD in a young child comprised three inductively established themes: 1) physicians’ views on ASD are multifaceted but fit within their personal clinical styles; 2) the ASD diagnosis is a “descriptive” part of a clinical trajectory; and 3) ASD treatment is a mix of “standard” approaches and a personalized search. These physicians’ perspectives on ASD are composed of multiple and sometimes ambiguous facets. However, their views are embedded in their personal clinical styles in general (i.e., beyond ASD) and are experienced as clinically “workable.” With the aim of finding an adequate approach to the problems parents bring to their office, many interviewed physicians say that—complementary to or rather than a classificatory diagnosis—they prefer using a personalized “profile” of a child in a therapeutic “process.”Conclusions: The interviewed physicians consider doubts and concerns to be an inherent part of their clinical work with ASD in young children, but do not experience this ambiguity as an obstacle to clinical care. These physicians deal with the multiplicity of their views on ASD by basing their eclectic views on their generally adopted clinical styles, and by selecting what works for them, and for the parents and child, from what they regard as the ‘textbook knowledge’ on ASD. We discuss the implications of these findings for translating research results to the clinic.https://www.frontiersin.org/article/10.3389/fpsyt.2019.00372/fullautism spectrum disorderdiagnosisphysiciansinterviewsexperiencesviews
spellingShingle Delphine Jacobs
Jean Steyaert
Jean Steyaert
Kris Dierickx
Kristien Hens
Physician View and Experience of the Diagnosis of Autism Spectrum Disorder in Young Children
Frontiers in Psychiatry
autism spectrum disorder
diagnosis
physicians
interviews
experiences
views
title Physician View and Experience of the Diagnosis of Autism Spectrum Disorder in Young Children
title_full Physician View and Experience of the Diagnosis of Autism Spectrum Disorder in Young Children
title_fullStr Physician View and Experience of the Diagnosis of Autism Spectrum Disorder in Young Children
title_full_unstemmed Physician View and Experience of the Diagnosis of Autism Spectrum Disorder in Young Children
title_short Physician View and Experience of the Diagnosis of Autism Spectrum Disorder in Young Children
title_sort physician view and experience of the diagnosis of autism spectrum disorder in young children
topic autism spectrum disorder
diagnosis
physicians
interviews
experiences
views
url https://www.frontiersin.org/article/10.3389/fpsyt.2019.00372/full
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