Experience of providing care to a family member with Crohn's disease and a temporary stoma: A qualitative study
Objectives: The aim of this study is to understand the feelings and experiences of the main caregivers of temporary ostomy patien ts with Crohn's disease (CD). And explore the caregivers' inner feelings, to provide reference and basis for constructing the health education content of the ma...
| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
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Elsevier
2023-10-01
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| Series: | Heliyon |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S240584402308221X |
| _version_ | 1797646480508452864 |
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| author | Sicong Liu Bowei Sun Wenjie Tian Li Zhang Fang Kong Mengmeng Wang Jing Yan Ailing Zhang |
| author_facet | Sicong Liu Bowei Sun Wenjie Tian Li Zhang Fang Kong Mengmeng Wang Jing Yan Ailing Zhang |
| author_sort | Sicong Liu |
| collection | DOAJ |
| description | Objectives: The aim of this study is to understand the feelings and experiences of the main caregivers of temporary ostomy patien ts with Crohn's disease (CD). And explore the caregivers' inner feelings, to provide reference and basis for constructing the health education content of the main caregivers of CD patients with a temporary stoma. Methods: A qualitative descriptive approach was used to conduct an unstructured interview among 11 primary caregivers of CD patients with temporary enterostomy from the gastroenterology department of The Second Hospital of Nanjing. Participants were selected using a purposive sampling technique. Data were collected between July 2021 and September 2021. The interviews were audio recorded and then transcribed for a qualitative thematic analysis. Results: Five themes and accompanying subthemes were identified: (1) negative psychological experience (2) perceived caregiver burden (3) future uncertainty (4) disease benefit (5) insufficien support system. Conclusions: Study findings suggest that caregivers of CD temporary enterostomy patients have problems such as negative psychology, heavy caregiver burden, uncertain future, lack of support system, etc., but they also have positive experience of feeling of benefit from the disease, and are eager to obtain more disease information from more channels.Therefore, medical staff should improve their professionalism and health education capabilities, carry out diversified and targeted health education activities to reduce the burden of care, stimulate positive caregiver responses and help caregivers respond to and deal with caregiving problems in a timely and accurate manner. |
| first_indexed | 2024-03-11T15:02:14Z |
| format | Article |
| id | doaj.art-e56682525ebe4b039aa2b8100227089f |
| institution | Directory Open Access Journal |
| issn | 2405-8440 |
| language | English |
| last_indexed | 2024-03-11T15:02:14Z |
| publishDate | 2023-10-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Heliyon |
| spelling | doaj.art-e56682525ebe4b039aa2b8100227089f2023-10-30T06:08:07ZengElsevierHeliyon2405-84402023-10-01910e21013Experience of providing care to a family member with Crohn's disease and a temporary stoma: A qualitative studySicong Liu0Bowei Sun1Wenjie Tian2Li Zhang3Fang Kong4Mengmeng Wang5Jing Yan6Ailing Zhang7Nursing staff room, Changzhou Hygiene Vocational Technology College, Changzhou, ChinaNursing staff room, Changzhou Hygiene Vocational Technology College, Changzhou, ChinaNeurosurgical intensive care unit, The Affiliated Changzhou No 2 People's Hospital of Nanjing Medical University, Changzhou, ChinaWound ostomy nursing clinic,The Second Hospital of Nanjing, Nanjing University of Chinese Medicine, Nanjing, China; Corresponding author.Address: 1-1 Zhongfu Road, Gulou District, Nanjing City, Jiangsu Province, China.Department of Gastroenterology Treatment Center,The Second Hospital of Nanjing, Nanjing University of Chinese Medicine, Nanjing, ChinaSchool of Nursing, Nanjing University of Chinese Medicine, Nanjing, ChinaSchool of Nursing, Nanjing University of Chinese Medicine, Nanjing, ChinaSchool of Nursing, Nanjing University of Chinese Medicine, Nanjing, ChinaObjectives: The aim of this study is to understand the feelings and experiences of the main caregivers of temporary ostomy patien ts with Crohn's disease (CD). And explore the caregivers' inner feelings, to provide reference and basis for constructing the health education content of the main caregivers of CD patients with a temporary stoma. Methods: A qualitative descriptive approach was used to conduct an unstructured interview among 11 primary caregivers of CD patients with temporary enterostomy from the gastroenterology department of The Second Hospital of Nanjing. Participants were selected using a purposive sampling technique. Data were collected between July 2021 and September 2021. The interviews were audio recorded and then transcribed for a qualitative thematic analysis. Results: Five themes and accompanying subthemes were identified: (1) negative psychological experience (2) perceived caregiver burden (3) future uncertainty (4) disease benefit (5) insufficien support system. Conclusions: Study findings suggest that caregivers of CD temporary enterostomy patients have problems such as negative psychology, heavy caregiver burden, uncertain future, lack of support system, etc., but they also have positive experience of feeling of benefit from the disease, and are eager to obtain more disease information from more channels.Therefore, medical staff should improve their professionalism and health education capabilities, carry out diversified and targeted health education activities to reduce the burden of care, stimulate positive caregiver responses and help caregivers respond to and deal with caregiving problems in a timely and accurate manner.http://www.sciencedirect.com/science/article/pii/S240584402308221XCrohn's diseaseTemporary enterostomyCaregiverCaregiver burdenNursingQualitative study |
| spellingShingle | Sicong Liu Bowei Sun Wenjie Tian Li Zhang Fang Kong Mengmeng Wang Jing Yan Ailing Zhang Experience of providing care to a family member with Crohn's disease and a temporary stoma: A qualitative study Heliyon Crohn's disease Temporary enterostomy Caregiver Caregiver burden Nursing Qualitative study |
| title | Experience of providing care to a family member with Crohn's disease and a temporary stoma: A qualitative study |
| title_full | Experience of providing care to a family member with Crohn's disease and a temporary stoma: A qualitative study |
| title_fullStr | Experience of providing care to a family member with Crohn's disease and a temporary stoma: A qualitative study |
| title_full_unstemmed | Experience of providing care to a family member with Crohn's disease and a temporary stoma: A qualitative study |
| title_short | Experience of providing care to a family member with Crohn's disease and a temporary stoma: A qualitative study |
| title_sort | experience of providing care to a family member with crohn s disease and a temporary stoma a qualitative study |
| topic | Crohn's disease Temporary enterostomy Caregiver Caregiver burden Nursing Qualitative study |
| url | http://www.sciencedirect.com/science/article/pii/S240584402308221X |
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