Identifying facilitators of and barriers to the adoption of dynamic consent in digital health ecosystems: a scoping review
Abstract Background Conventional consent practices face ethical challenges in continuously evolving digital health environments due to their static, one-time nature. Dynamic consent offers a promising solution, providing adaptability and flexibility to address these ethical concerns. However, due to...
| Main Authors: | , , , , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2023-12-01
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| Series: | BMC Medical Ethics |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12910-023-00988-9 |
| _version_ | 1827602878243536896 |
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| author | Ah Ra Lee Dongjun Koo Il Kon Kim Eunjoo Lee Hyun Ho Kim Sooyoung Yoo Jeong-Hyun Kim Eun Kyung Choi Ho-Young Lee |
| author_facet | Ah Ra Lee Dongjun Koo Il Kon Kim Eunjoo Lee Hyun Ho Kim Sooyoung Yoo Jeong-Hyun Kim Eun Kyung Choi Ho-Young Lee |
| author_sort | Ah Ra Lee |
| collection | DOAJ |
| description | Abstract Background Conventional consent practices face ethical challenges in continuously evolving digital health environments due to their static, one-time nature. Dynamic consent offers a promising solution, providing adaptability and flexibility to address these ethical concerns. However, due to the immaturity of the concept and accompanying technology, dynamic consent has not yet been widely used in practice. This study aims to identify the facilitators of and barriers to adopting dynamic consent in real-world scenarios. Methods This scoping review, conducted in December 2022, adhered to the PRISMA Extension for Scoping Reviews guidelines, focusing on dynamic consent within the health domain. A comprehensive search across Web of Science, PubMed, and Scopus yielded 22 selected articles based on predefined inclusion and exclusion criteria. Results The facilitators for the adoption of dynamic consent in digital health ecosystems were the provision of multiple consent modalities, personalized alternatives, continuous communication, and the dissemination of up-to-date information. Nevertheless, several barriers, such as consent fatigue, the digital divide, complexities in system implementation, and privacy and security concerns, needed to be addressed. This study also investigated current technological advancements and suggested considerations for further research aimed at resolving the remaining challenges surrounding dynamic consent. Conclusions Dynamic consent emerges as an ethically advantageous method for digital health ecosystems, driven by its adaptability and support for continuous, two-way communication between data subjects and consumers. Ethical implementation in real-world settings requires the development of a robust technical framework capable of accommodating the diverse needs of stakeholders, thereby ensuring ethical integrity and data privacy in the evolving digital health landscape. |
| first_indexed | 2024-03-09T05:27:49Z |
| format | Article |
| id | doaj.art-e5e2d1aa1afa4c928ab68d01341958ce |
| institution | Directory Open Access Journal |
| issn | 1472-6939 |
| language | English |
| last_indexed | 2024-03-09T05:27:49Z |
| publishDate | 2023-12-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Medical Ethics |
| spelling | doaj.art-e5e2d1aa1afa4c928ab68d01341958ce2023-12-03T12:35:26ZengBMCBMC Medical Ethics1472-69392023-12-0124111210.1186/s12910-023-00988-9Identifying facilitators of and barriers to the adoption of dynamic consent in digital health ecosystems: a scoping reviewAh Ra Lee0Dongjun Koo1Il Kon Kim2Eunjoo Lee3Hyun Ho Kim4Sooyoung Yoo5Jeong-Hyun Kim6Eun Kyung Choi7Ho-Young Lee8Office of eHealth Research and Business, Seoul National University Bundang HospitalOffice of eHealth Research and Business, Seoul National University Bundang HospitalSchool of Computer Science & Engineering, College of IT Engineering, Kyungpook National UniversityCollege of Nursing, Research Institute of Nursing Science, Kyungpook National UniversityDepartment of Pediatrics, Research Institute of Clinical Medicine, Jeonbuk National UniversityOffice of eHealth Research and Business, Seoul National University Bundang HospitalDepartment of Psychiatry, Seoul National University Bundang HospitalDepartment of Medical Humanities and Medical Education, Kyungpook National University School of MedicineOffice of eHealth Research and Business, Seoul National University Bundang HospitalAbstract Background Conventional consent practices face ethical challenges in continuously evolving digital health environments due to their static, one-time nature. Dynamic consent offers a promising solution, providing adaptability and flexibility to address these ethical concerns. However, due to the immaturity of the concept and accompanying technology, dynamic consent has not yet been widely used in practice. This study aims to identify the facilitators of and barriers to adopting dynamic consent in real-world scenarios. Methods This scoping review, conducted in December 2022, adhered to the PRISMA Extension for Scoping Reviews guidelines, focusing on dynamic consent within the health domain. A comprehensive search across Web of Science, PubMed, and Scopus yielded 22 selected articles based on predefined inclusion and exclusion criteria. Results The facilitators for the adoption of dynamic consent in digital health ecosystems were the provision of multiple consent modalities, personalized alternatives, continuous communication, and the dissemination of up-to-date information. Nevertheless, several barriers, such as consent fatigue, the digital divide, complexities in system implementation, and privacy and security concerns, needed to be addressed. This study also investigated current technological advancements and suggested considerations for further research aimed at resolving the remaining challenges surrounding dynamic consent. Conclusions Dynamic consent emerges as an ethically advantageous method for digital health ecosystems, driven by its adaptability and support for continuous, two-way communication between data subjects and consumers. Ethical implementation in real-world settings requires the development of a robust technical framework capable of accommodating the diverse needs of stakeholders, thereby ensuring ethical integrity and data privacy in the evolving digital health landscape.https://doi.org/10.1186/s12910-023-00988-9Dynamic consentDigital healthData sovereigntyBlockchainConsent systems |
| spellingShingle | Ah Ra Lee Dongjun Koo Il Kon Kim Eunjoo Lee Hyun Ho Kim Sooyoung Yoo Jeong-Hyun Kim Eun Kyung Choi Ho-Young Lee Identifying facilitators of and barriers to the adoption of dynamic consent in digital health ecosystems: a scoping review BMC Medical Ethics Dynamic consent Digital health Data sovereignty Blockchain Consent systems |
| title | Identifying facilitators of and barriers to the adoption of dynamic consent in digital health ecosystems: a scoping review |
| title_full | Identifying facilitators of and barriers to the adoption of dynamic consent in digital health ecosystems: a scoping review |
| title_fullStr | Identifying facilitators of and barriers to the adoption of dynamic consent in digital health ecosystems: a scoping review |
| title_full_unstemmed | Identifying facilitators of and barriers to the adoption of dynamic consent in digital health ecosystems: a scoping review |
| title_short | Identifying facilitators of and barriers to the adoption of dynamic consent in digital health ecosystems: a scoping review |
| title_sort | identifying facilitators of and barriers to the adoption of dynamic consent in digital health ecosystems a scoping review |
| topic | Dynamic consent Digital health Data sovereignty Blockchain Consent systems |
| url | https://doi.org/10.1186/s12910-023-00988-9 |
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