Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis

Purpose: This study aims to explore quality of life (QOL) during the first year of recovery after stroke in North Norway and Central Denmark. Method: Individual in-depth interviews with 11 stroke survivors were performed twelve months after stroke onset. An interpretative, inductive approach shaped...

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Main Authors: Synne G. Pedersen, Audny Anke, Lena Aadal, Hanne Pallesen, Siri Moe, Cathrine Arntzen
Format: Article
Language:English
Published: Taylor & Francis Group 2019-01-01
Series:International Journal of Qualitative Studies on Health & Well-Being
Subjects:
Online Access:http://dx.doi.org/10.1080/17482631.2019.1659540
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author Synne G. Pedersen
Audny Anke
Lena Aadal
Hanne Pallesen
Siri Moe
Cathrine Arntzen
author_facet Synne G. Pedersen
Audny Anke
Lena Aadal
Hanne Pallesen
Siri Moe
Cathrine Arntzen
author_sort Synne G. Pedersen
collection DOAJ
description Purpose: This study aims to explore quality of life (QOL) during the first year of recovery after stroke in North Norway and Central Denmark. Method: Individual in-depth interviews with 11 stroke survivors were performed twelve months after stroke onset. An interpretative, inductive approach shaped the interview process and the processing of data. Results: We found that QOL reflected the individuals’ reconstruction of the embodied self, which was identified by three intertwined and negotiating processes: a familiar self, an unfamiliar self, and a recovery of self. Further, we found that reconstruction of the embodied self and QOL could be framed as an ongoing and interrelated process of “being, doing, belonging and becoming”. Enriching social relations, successful return to work, and continuity and presence in professional support during recovery enhanced the experience of QOL. Fatigue and sustained reduced function hindered participation in meaningful activities and influenced the perceived QOL negatively. Conclusions: The two countries differed in descriptions of continuity and support in the professional follow-up during the recovery process, influencing the degree of encouragement in reconstructing the embodied self. Reconstruction of the embodied self is a means of understanding stroke survivors’ QOL during the first year of recovery, supporting an individualized and tailored rehabilitation practice.
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spelling doaj.art-e60e1e029b69442c9b6bfea2946df6772024-02-01T14:39:34ZengTaylor & Francis GroupInternational Journal of Qualitative Studies on Health & Well-Being1748-26231748-26312019-01-0114110.1080/17482631.2019.16595401659540Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysisSynne G. Pedersen0Audny Anke1Lena Aadal2Hanne Pallesen3Siri Moe4Cathrine Arntzen5University Hospital of North NorwayUniversity Hospital of North NorwayAarhus UniversityAarhus Universitythe Arctic University of NorwayUniversity Hospital of North NorwayPurpose: This study aims to explore quality of life (QOL) during the first year of recovery after stroke in North Norway and Central Denmark. Method: Individual in-depth interviews with 11 stroke survivors were performed twelve months after stroke onset. An interpretative, inductive approach shaped the interview process and the processing of data. Results: We found that QOL reflected the individuals’ reconstruction of the embodied self, which was identified by three intertwined and negotiating processes: a familiar self, an unfamiliar self, and a recovery of self. Further, we found that reconstruction of the embodied self and QOL could be framed as an ongoing and interrelated process of “being, doing, belonging and becoming”. Enriching social relations, successful return to work, and continuity and presence in professional support during recovery enhanced the experience of QOL. Fatigue and sustained reduced function hindered participation in meaningful activities and influenced the perceived QOL negatively. Conclusions: The two countries differed in descriptions of continuity and support in the professional follow-up during the recovery process, influencing the degree of encouragement in reconstructing the embodied self. Reconstruction of the embodied self is a means of understanding stroke survivors’ QOL during the first year of recovery, supporting an individualized and tailored rehabilitation practice.http://dx.doi.org/10.1080/17482631.2019.1659540quality of lifestrokerecoveryselfembodimentfatiguequalitative research
spellingShingle Synne G. Pedersen
Audny Anke
Lena Aadal
Hanne Pallesen
Siri Moe
Cathrine Arntzen
Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis
International Journal of Qualitative Studies on Health & Well-Being
quality of life
stroke
recovery
self
embodiment
fatigue
qualitative research
title Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis
title_full Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis
title_fullStr Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis
title_full_unstemmed Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis
title_short Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis
title_sort experiences of quality of life the first year after stroke in denmark and norway a qualitative analysis
topic quality of life
stroke
recovery
self
embodiment
fatigue
qualitative research
url http://dx.doi.org/10.1080/17482631.2019.1659540
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AT hannepallesen experiencesofqualityoflifethefirstyearafterstrokeindenmarkandnorwayaqualitativeanalysis
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