Using community‐led development to build health communication about rheumatic heart disease in Aboriginal children: a developmental evaluation
Abstract Objective: A high prevalence of acute rheumatic fever (ARF) and rheumatic heart disease (RHD) among Aboriginal children in northern Australia is coupled with low understanding among families. This has negative impacts on children's health, limits opportunities for prevention and sugges...
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| Format: | Article |
| Language: | English |
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Elsevier
2021-06-01
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| Series: | Australian and New Zealand Journal of Public Health |
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| Online Access: | https://doi.org/10.1111/1753-6405.13100 |
| _version_ | 1797717708660277248 |
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| author | Alice G. Mitchell Joseph Diddo Alistair Djalolba James Laurie Guraylayla Cindy Jinmarabynana Abigail Carter Stanley Djalarra Rankin Gideon Djorlom Carolyn Coleman Mason Scholes Emma Haynes Boglarka Remenyi Jennifer Yan Joshua Reginald Francis |
| author_facet | Alice G. Mitchell Joseph Diddo Alistair Djalolba James Laurie Guraylayla Cindy Jinmarabynana Abigail Carter Stanley Djalarra Rankin Gideon Djorlom Carolyn Coleman Mason Scholes Emma Haynes Boglarka Remenyi Jennifer Yan Joshua Reginald Francis |
| author_sort | Alice G. Mitchell |
| collection | DOAJ |
| description | Abstract Objective: A high prevalence of acute rheumatic fever (ARF) and rheumatic heart disease (RHD) among Aboriginal children in northern Australia is coupled with low understanding among families. This has negative impacts on children's health, limits opportunities for prevention and suggests that better health communication is needed. Methods: During an RHD echocardiography screening project, Aboriginal teachers in a remote community school created lessons to teach children about RHD in their home languages, drawing on principles of community‐led development. Access to community‐level RHD data, previously unknown to teachers and families, was a catalyst for this innovative work. Careful, iterative discussions among speakers of four Aboriginal languages ensured a culturally coherent narrative and accompanying teaching resources. Results: The evaluation demonstrated the importance of collective work, local Indigenous Knowledge and metaphors. As a result of the lessons, some children showed new responses and attitudes to skin infections and their RHD treatment. Language teachers used natural social networks to disseminate new information. A community interagency collaboration working to prevent RHD commenced. Conclusions and implications for public health: Action to address high rates of RHD must include effective health communication strategies that value Indigenous Knowledge, language and culture, collaborative leadership and respect for Indigenous data sovereignty. |
| first_indexed | 2024-03-12T08:40:17Z |
| format | Article |
| id | doaj.art-e68c56bf462b427ca74bb540eeea8df4 |
| institution | Directory Open Access Journal |
| issn | 1326-0200 1753-6405 |
| language | English |
| last_indexed | 2024-03-12T08:40:17Z |
| publishDate | 2021-06-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Australian and New Zealand Journal of Public Health |
| spelling | doaj.art-e68c56bf462b427ca74bb540eeea8df42023-09-02T16:57:01ZengElsevierAustralian and New Zealand Journal of Public Health1326-02001753-64052021-06-0145321221910.1111/1753-6405.13100Using community‐led development to build health communication about rheumatic heart disease in Aboriginal children: a developmental evaluationAlice G. Mitchell0Joseph Diddo1Alistair Djalolba James2Laurie Guraylayla3Cindy Jinmarabynana4Abigail Carter5Stanley Djalarra Rankin6Gideon Djorlom7Carolyn Coleman8Mason Scholes9Emma Haynes10Boglarka Remenyi11Jennifer Yan12Joshua Reginald Francis13Menzies School of Health Research Charles Darwin University Northern TerritoryLúrra Language and Culture Unit Maningrida College Northern TerritoryLúrra Language and Culture Unit Maningrida College Northern TerritoryLúrra Language and Culture Unit Maningrida College Northern TerritoryLúrra Language and Culture Unit Maningrida College Northern TerritoryLúrra Language and Culture Unit Maningrida College Northern TerritoryLúrra Language and Culture Unit Maningrida College Northern TerritoryLúrra Language and Culture Unit Maningrida College Northern TerritoryLúrra Language and Culture Unit Maningrida College Northern TerritoryLúrra Language and Culture Unit Maningrida College Northern TerritorySchool of Population and Global Health University of Western Australia Western AustraliaMenzies School of Health Research Charles Darwin University Northern TerritoryMenzies School of Health Research Charles Darwin University Northern TerritoryMenzies School of Health Research Charles Darwin University Northern TerritoryAbstract Objective: A high prevalence of acute rheumatic fever (ARF) and rheumatic heart disease (RHD) among Aboriginal children in northern Australia is coupled with low understanding among families. This has negative impacts on children's health, limits opportunities for prevention and suggests that better health communication is needed. Methods: During an RHD echocardiography screening project, Aboriginal teachers in a remote community school created lessons to teach children about RHD in their home languages, drawing on principles of community‐led development. Access to community‐level RHD data, previously unknown to teachers and families, was a catalyst for this innovative work. Careful, iterative discussions among speakers of four Aboriginal languages ensured a culturally coherent narrative and accompanying teaching resources. Results: The evaluation demonstrated the importance of collective work, local Indigenous Knowledge and metaphors. As a result of the lessons, some children showed new responses and attitudes to skin infections and their RHD treatment. Language teachers used natural social networks to disseminate new information. A community interagency collaboration working to prevent RHD commenced. Conclusions and implications for public health: Action to address high rates of RHD must include effective health communication strategies that value Indigenous Knowledge, language and culture, collaborative leadership and respect for Indigenous data sovereignty.https://doi.org/10.1111/1753-6405.13100community‐led developmentdevelopmental evaluationhealth communicationIndigenous Knowledgesrheumatic heart disease |
| spellingShingle | Alice G. Mitchell Joseph Diddo Alistair Djalolba James Laurie Guraylayla Cindy Jinmarabynana Abigail Carter Stanley Djalarra Rankin Gideon Djorlom Carolyn Coleman Mason Scholes Emma Haynes Boglarka Remenyi Jennifer Yan Joshua Reginald Francis Using community‐led development to build health communication about rheumatic heart disease in Aboriginal children: a developmental evaluation Australian and New Zealand Journal of Public Health community‐led development developmental evaluation health communication Indigenous Knowledges rheumatic heart disease |
| title | Using community‐led development to build health communication about rheumatic heart disease in Aboriginal children: a developmental evaluation |
| title_full | Using community‐led development to build health communication about rheumatic heart disease in Aboriginal children: a developmental evaluation |
| title_fullStr | Using community‐led development to build health communication about rheumatic heart disease in Aboriginal children: a developmental evaluation |
| title_full_unstemmed | Using community‐led development to build health communication about rheumatic heart disease in Aboriginal children: a developmental evaluation |
| title_short | Using community‐led development to build health communication about rheumatic heart disease in Aboriginal children: a developmental evaluation |
| title_sort | using community led development to build health communication about rheumatic heart disease in aboriginal children a developmental evaluation |
| topic | community‐led development developmental evaluation health communication Indigenous Knowledges rheumatic heart disease |
| url | https://doi.org/10.1111/1753-6405.13100 |
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