“He is normal”: phenomenological considerations of child/adolescent’s perception of the disabled sibling

ABSTRACT Objective: To understand the child/adolescent’s perception of the disabled sibling. Method: Qualitative research, with a phenomenological approach, conducted between 2018 and 2019, in a municipality in the south of Brazil, with 20 children/adolescents who are siblings of people with disab...

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Main Authors: Vera Lucia Freitag, Maria da Graça Corso Motta, Viviane Marten Milbrath, Jéssica Stragliotto Bazzan, Gabriel Debatin, Ruth Irmgard Bärtschi Gabatz
Format: Article
Language:English
Published: Universidade Federal do Rio Grande do Sul 2023-03-01
Series:Revista Gaúcha de Enfermagem
Subjects:
Online Access:http://revodonto.bvsalud.org/scielo.php?script=sci_arttext&pid=S1983-14472022000101006&lng=en&tlng=en
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author Vera Lucia Freitag
Maria da Graça Corso Motta
Viviane Marten Milbrath
Jéssica Stragliotto Bazzan
Gabriel Debatin
Ruth Irmgard Bärtschi Gabatz
author_facet Vera Lucia Freitag
Maria da Graça Corso Motta
Viviane Marten Milbrath
Jéssica Stragliotto Bazzan
Gabriel Debatin
Ruth Irmgard Bärtschi Gabatz
author_sort Vera Lucia Freitag
collection DOAJ
description ABSTRACT Objective: To understand the child/adolescent’s perception of the disabled sibling. Method: Qualitative research, with a phenomenological approach, conducted between 2018 and 2019, in a municipality in the south of Brazil, with 20 children/adolescents who are siblings of people with disabilities, through a phenomenological interview. Respecting ethical precepts, hermeneutics was used for interpretation. Results: The child/adolescent perceives his/her disabled sibling as a normal person, given his/her behavior, way of being and intellectual capacity. Still, it understands him as a special being, who has limitations regarding learning, but does not see him as different, thus, unlinks the idea of disability associated with the disease/abnormality. Final considerations: The perception of the disabled sibling occurs within the perception of normality. The child identifies his sibling’s lower learning capacitor a way that is unique to him, a fact that does not condition him to be seen as abnormal, defining his being-in-the-world as a special way of existing.
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spelling doaj.art-e69f114a400d4c0bb383a7023a6e0c532023-03-07T07:31:00ZengUniversidade Federal do Rio Grande do SulRevista Gaúcha de Enfermagem1983-14472023-03-014310.1590/1983-1447.2022.20220129.en“He is normal”: phenomenological considerations of child/adolescent’s perception of the disabled siblingVera Lucia Freitaghttps://orcid.org/0000-0002-5897-7012Maria da Graça Corso Mottahttps://orcid.org/0000-0002-4335-1084Viviane Marten Milbrathhttps://orcid.org/0000-0001-5523-3803Jéssica Stragliotto Bazzanhttps://orcid.org/0000-0002-8457-134XGabriel Debatinhttps://orcid.org/0000-0003-1139-0115Ruth Irmgard Bärtschi Gabatzhttps://orcid.org/0000-0001-6075-8516ABSTRACT Objective: To understand the child/adolescent’s perception of the disabled sibling. Method: Qualitative research, with a phenomenological approach, conducted between 2018 and 2019, in a municipality in the south of Brazil, with 20 children/adolescents who are siblings of people with disabilities, through a phenomenological interview. Respecting ethical precepts, hermeneutics was used for interpretation. Results: The child/adolescent perceives his/her disabled sibling as a normal person, given his/her behavior, way of being and intellectual capacity. Still, it understands him as a special being, who has limitations regarding learning, but does not see him as different, thus, unlinks the idea of disability associated with the disease/abnormality. Final considerations: The perception of the disabled sibling occurs within the perception of normality. The child identifies his sibling’s lower learning capacitor a way that is unique to him, a fact that does not condition him to be seen as abnormal, defining his being-in-the-world as a special way of existing.http://revodonto.bvsalud.org/scielo.php?script=sci_arttext&pid=S1983-14472022000101006&lng=en&tlng=enAdolescentChild careDisabled childrenSiblings
spellingShingle Vera Lucia Freitag
Maria da Graça Corso Motta
Viviane Marten Milbrath
Jéssica Stragliotto Bazzan
Gabriel Debatin
Ruth Irmgard Bärtschi Gabatz
“He is normal”: phenomenological considerations of child/adolescent’s perception of the disabled sibling
Revista Gaúcha de Enfermagem
Adolescent
Child care
Disabled children
Siblings
title “He is normal”: phenomenological considerations of child/adolescent’s perception of the disabled sibling
title_full “He is normal”: phenomenological considerations of child/adolescent’s perception of the disabled sibling
title_fullStr “He is normal”: phenomenological considerations of child/adolescent’s perception of the disabled sibling
title_full_unstemmed “He is normal”: phenomenological considerations of child/adolescent’s perception of the disabled sibling
title_short “He is normal”: phenomenological considerations of child/adolescent’s perception of the disabled sibling
title_sort he is normal phenomenological considerations of child adolescent s perception of the disabled sibling
topic Adolescent
Child care
Disabled children
Siblings
url http://revodonto.bvsalud.org/scielo.php?script=sci_arttext&pid=S1983-14472022000101006&lng=en&tlng=en
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