Improving hidradenitis suppurativa patient education using written action plan: a randomized controlled trial
The waxing-and-waning nature of hidradenitis suppurativa (HS), complex treatment plans, along with variable responsiveness to therapy, can create management challenges for patients. In this pilot cross-over randomized controlled trial, we aim to evaluate the effectiveness a HS-written action plan (H...
| Main Authors: | , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Taylor & Francis Group
2022-07-01
|
| Series: | Journal of Dermatological Treatment |
| Subjects: | |
| Online Access: | http://dx.doi.org/10.1080/09546634.2021.1970707 |
| _version_ | 1797683508670365696 |
|---|---|
| author | Alyssa M. Thompson Jennifer M. Fernandez Terri Shih Iltefat Hamzavi Jennifer L. Hsiao Vivian Y. Shi |
| author_facet | Alyssa M. Thompson Jennifer M. Fernandez Terri Shih Iltefat Hamzavi Jennifer L. Hsiao Vivian Y. Shi |
| author_sort | Alyssa M. Thompson |
| collection | DOAJ |
| description | The waxing-and-waning nature of hidradenitis suppurativa (HS), complex treatment plans, along with variable responsiveness to therapy, can create management challenges for patients. In this pilot cross-over randomized controlled trial, we aim to evaluate the effectiveness a HS-written action plan (HSWAP) on patient disease understanding and confidence in recognizing flares and adjusting management. Participants were randomized into a pre-crossover control group that received a verbal consultation (VC)-only, and an intervention group which received the VC + HSWAP. The pre-crossover control group then crossed over (post-crossover control) to also receive the VC + HSWAP (ClinicalTrials.gov Identifier: NCT04600375). Patient comprehension of their disease and management steps was high after both a thorough VC and HSWAPs. However, the majority of patients prefer receiving both a VC and a HSWAP. After the addition of the HSWAP, pre-crossover control group patients’ understanding and confidence of their disease and management plan increased across all surveyed questions. |
| first_indexed | 2024-03-12T00:16:26Z |
| format | Article |
| id | doaj.art-e718459009b841b6a94188723a93c7bd |
| institution | Directory Open Access Journal |
| issn | 0954-6634 1471-1753 |
| language | English |
| last_indexed | 2024-03-12T00:16:26Z |
| publishDate | 2022-07-01 |
| publisher | Taylor & Francis Group |
| record_format | Article |
| series | Journal of Dermatological Treatment |
| spelling | doaj.art-e718459009b841b6a94188723a93c7bd2023-09-15T14:28:51ZengTaylor & Francis GroupJournal of Dermatological Treatment0954-66341471-17532022-07-013352677267910.1080/09546634.2021.19707071970707Improving hidradenitis suppurativa patient education using written action plan: a randomized controlled trialAlyssa M. Thompson0Jennifer M. Fernandez1Terri Shih2Iltefat Hamzavi3Jennifer L. Hsiao4Vivian Y. Shi5College of Medicine, University of ArizonaCollege of Medicine, University of ArizonaDavid Geffen School of Medicine, University of CaliforniaDepartment of Dermatology, Henry Ford HospitalDepartment of Medicine, Division of Dermatology, University of California Los AngelesDepartment of Dermatology, University of Arkansas for Medical SciencesThe waxing-and-waning nature of hidradenitis suppurativa (HS), complex treatment plans, along with variable responsiveness to therapy, can create management challenges for patients. In this pilot cross-over randomized controlled trial, we aim to evaluate the effectiveness a HS-written action plan (HSWAP) on patient disease understanding and confidence in recognizing flares and adjusting management. Participants were randomized into a pre-crossover control group that received a verbal consultation (VC)-only, and an intervention group which received the VC + HSWAP. The pre-crossover control group then crossed over (post-crossover control) to also receive the VC + HSWAP (ClinicalTrials.gov Identifier: NCT04600375). Patient comprehension of their disease and management steps was high after both a thorough VC and HSWAPs. However, the majority of patients prefer receiving both a VC and a HSWAP. After the addition of the HSWAP, pre-crossover control group patients’ understanding and confidence of their disease and management plan increased across all surveyed questions.http://dx.doi.org/10.1080/09546634.2021.1970707hidradenitis suppurativawritten action planrandomized controlled trialmanagement |
| spellingShingle | Alyssa M. Thompson Jennifer M. Fernandez Terri Shih Iltefat Hamzavi Jennifer L. Hsiao Vivian Y. Shi Improving hidradenitis suppurativa patient education using written action plan: a randomized controlled trial Journal of Dermatological Treatment hidradenitis suppurativa written action plan randomized controlled trial management |
| title | Improving hidradenitis suppurativa patient education using written action plan: a randomized controlled trial |
| title_full | Improving hidradenitis suppurativa patient education using written action plan: a randomized controlled trial |
| title_fullStr | Improving hidradenitis suppurativa patient education using written action plan: a randomized controlled trial |
| title_full_unstemmed | Improving hidradenitis suppurativa patient education using written action plan: a randomized controlled trial |
| title_short | Improving hidradenitis suppurativa patient education using written action plan: a randomized controlled trial |
| title_sort | improving hidradenitis suppurativa patient education using written action plan a randomized controlled trial |
| topic | hidradenitis suppurativa written action plan randomized controlled trial management |
| url | http://dx.doi.org/10.1080/09546634.2021.1970707 |
| work_keys_str_mv | AT alyssamthompson improvinghidradenitissuppurativapatienteducationusingwrittenactionplanarandomizedcontrolledtrial AT jennifermfernandez improvinghidradenitissuppurativapatienteducationusingwrittenactionplanarandomizedcontrolledtrial AT terrishih improvinghidradenitissuppurativapatienteducationusingwrittenactionplanarandomizedcontrolledtrial AT iltefathamzavi improvinghidradenitissuppurativapatienteducationusingwrittenactionplanarandomizedcontrolledtrial AT jenniferlhsiao improvinghidradenitissuppurativapatienteducationusingwrittenactionplanarandomizedcontrolledtrial AT vivianyshi improvinghidradenitissuppurativapatienteducationusingwrittenactionplanarandomizedcontrolledtrial |