Patient organisations and the reimbursement process for medicines: an exploratory study in eight European countries

<p>Abstract</p> <p>Background</p> <p>Little is known about the role European patient organisations play in the process of deciding on reimbursement for medicines. Therefore we <it>explore </it>the current role of patient organisations in the process of reimb...

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Main Authors: Friele Roland, van Dijk Liset, Noordman Janneke
Format: Article
Language:English
Published: BMC 2010-02-01
Series:BMC Health Services Research
Online Access:http://www.biomedcentral.com/1472-6963/10/45
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author Friele Roland
van Dijk Liset
Noordman Janneke
author_facet Friele Roland
van Dijk Liset
Noordman Janneke
author_sort Friele Roland
collection DOAJ
description <p>Abstract</p> <p>Background</p> <p>Little is known about the role European patient organisations play in the process of deciding on reimbursement for medicines. Therefore we <it>explore </it>the current role of patient organisations in the process of reimbursement for medicines in Western Europe. We focus in particular on collaboration between patient organisations and the pharmaceutical industry in this respect.</p> <p>Methods</p> <p>Sixty-eight patient organisations representing seven medical conditions, from ten Western European countries, were asked to participate in the study. The participating organisations reported their experiences in a web-based questionnaire.</p> <p>Results</p> <p>Twenty-one patient organisations completed the questionnaire (response rate: 31%), of which ten (47.6%) demanded reimbursement for medicines. Organisations demanding reimbursement were larger than those not demanding reimbursement. The main aim of these organisations was to create better accessibility of medicines for patients. Most organisations limited themselves to single actions. Only two engaged in multiple actions. Almost all organisations had general policies on cooperation with the pharmaceutical industry, with autonomy as the key feature. The patient organisations said they were reasonably successful and almost always satisfied with their own role in the reimbursement process.</p> <p>Conclusion</p> <p>Our study has found that the role of European patient organisations in the reimbursement process still seems limited, especially for small patient organisations.</p>
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spelling doaj.art-e7603467479e4e6ba3255587583543962022-12-21T22:39:45ZengBMCBMC Health Services Research1472-69632010-02-011014510.1186/1472-6963-10-45Patient organisations and the reimbursement process for medicines: an exploratory study in eight European countriesFriele Rolandvan Dijk LisetNoordman Janneke<p>Abstract</p> <p>Background</p> <p>Little is known about the role European patient organisations play in the process of deciding on reimbursement for medicines. Therefore we <it>explore </it>the current role of patient organisations in the process of reimbursement for medicines in Western Europe. We focus in particular on collaboration between patient organisations and the pharmaceutical industry in this respect.</p> <p>Methods</p> <p>Sixty-eight patient organisations representing seven medical conditions, from ten Western European countries, were asked to participate in the study. The participating organisations reported their experiences in a web-based questionnaire.</p> <p>Results</p> <p>Twenty-one patient organisations completed the questionnaire (response rate: 31%), of which ten (47.6%) demanded reimbursement for medicines. Organisations demanding reimbursement were larger than those not demanding reimbursement. The main aim of these organisations was to create better accessibility of medicines for patients. Most organisations limited themselves to single actions. Only two engaged in multiple actions. Almost all organisations had general policies on cooperation with the pharmaceutical industry, with autonomy as the key feature. The patient organisations said they were reasonably successful and almost always satisfied with their own role in the reimbursement process.</p> <p>Conclusion</p> <p>Our study has found that the role of European patient organisations in the reimbursement process still seems limited, especially for small patient organisations.</p>http://www.biomedcentral.com/1472-6963/10/45
spellingShingle Friele Roland
van Dijk Liset
Noordman Janneke
Patient organisations and the reimbursement process for medicines: an exploratory study in eight European countries
BMC Health Services Research
title Patient organisations and the reimbursement process for medicines: an exploratory study in eight European countries
title_full Patient organisations and the reimbursement process for medicines: an exploratory study in eight European countries
title_fullStr Patient organisations and the reimbursement process for medicines: an exploratory study in eight European countries
title_full_unstemmed Patient organisations and the reimbursement process for medicines: an exploratory study in eight European countries
title_short Patient organisations and the reimbursement process for medicines: an exploratory study in eight European countries
title_sort patient organisations and the reimbursement process for medicines an exploratory study in eight european countries
url http://www.biomedcentral.com/1472-6963/10/45
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