The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care Units

Background: Services in specialized day-care units for individuals with dementia are set up to enable these persons to live in their own home. The purpose of this paper is to discern the experiences of families with these services while caring for a close relative with dementia. Method: Longitudinal...

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Main Author: Margrét Gústafsdóttir
Format: Article
Language:English
Published: Karger Publishers 2014-09-01
Series:Dementia and Geriatric Cognitive Disorders Extra
Subjects:
Online Access:http://www.karger.com/Article/FullText/358823
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author Margrét Gústafsdóttir
author_facet Margrét Gústafsdóttir
author_sort Margrét Gústafsdóttir
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description Background: Services in specialized day-care units for individuals with dementia are set up to enable these persons to live in their own home. The purpose of this paper is to discern the experiences of families with these services while caring for a close relative with dementia. Method: Longitudinal interviews with 8 family members were conducted. In total, 25 interviews were carried out over a period of 5 years. Results: The experience of these families of looking after a close person with dementia appeared to be influenced by (a) the multifaceted meaning of ties, (b) the perception of purposeful relief of the day-care services and (c) the progress of the disease. Conclusion: All families found the services of specialized day-care units both useful and pleasant. This kind of resource was shown to make everyday life much more manageable for all persons involved, most importantly for the patient with dementia.
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spelling doaj.art-e7d5d8f24dcf4bfeb6a7949cff1cbb6f2022-12-21T23:48:41ZengKarger PublishersDementia and Geriatric Cognitive Disorders Extra1664-54642014-09-014334435410.1159/000358823358823The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care UnitsMargrét GústafsdóttirBackground: Services in specialized day-care units for individuals with dementia are set up to enable these persons to live in their own home. The purpose of this paper is to discern the experiences of families with these services while caring for a close relative with dementia. Method: Longitudinal interviews with 8 family members were conducted. In total, 25 interviews were carried out over a period of 5 years. Results: The experience of these families of looking after a close person with dementia appeared to be influenced by (a) the multifaceted meaning of ties, (b) the perception of purposeful relief of the day-care services and (c) the progress of the disease. Conclusion: All families found the services of specialized day-care units both useful and pleasant. This kind of resource was shown to make everyday life much more manageable for all persons involved, most importantly for the patient with dementia.http://www.karger.com/Article/FullText/358823Day careDementiaCaregivingFamilyInterpretive phenomenologyLongitudinal interviews
spellingShingle Margrét Gústafsdóttir
The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care Units
Dementia and Geriatric Cognitive Disorders Extra
Day care
Dementia
Caregiving
Family
Interpretive phenomenology
Longitudinal interviews
title The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care Units
title_full The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care Units
title_fullStr The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care Units
title_full_unstemmed The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care Units
title_short The Family's Experience of Sharing the Care of a Person with Dementia with the Services in Specialized Day-Care Units
title_sort family s experience of sharing the care of a person with dementia with the services in specialized day care units
topic Day care
Dementia
Caregiving
Family
Interpretive phenomenology
Longitudinal interviews
url http://www.karger.com/Article/FullText/358823
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