Engaging Patients in Care (EPIC): A Framework for Heart Function and Heart Transplant–Specific Patient Engagement
Engaging Patients in Care (EPIC) is a local patient engagement initiative at the University Health Network for patients and families who have received care for heart failure, heart transplant, or mechanical circulatory support (left ventricular assist device). Patients and caregivers can engage at 4...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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Elsevier
2019-03-01
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| Series: | CJC Open |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2589790X19300022 |
| _version_ | 1818849198285520896 |
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| author | Jillian A Macklin, MSc Natalie Djihanian, BCom Tieghan Killackey, RN, MN Jane MacIver, RN, PhD |
| author_facet | Jillian A Macklin, MSc Natalie Djihanian, BCom Tieghan Killackey, RN, MN Jane MacIver, RN, PhD |
| author_sort | Jillian A Macklin, MSc |
| collection | DOAJ |
| description | Engaging Patients in Care (EPIC) is a local patient engagement initiative at the University Health Network for patients and families who have received care for heart failure, heart transplant, or mechanical circulatory support (left ventricular assist device). Patients and caregivers can engage at 4 different levels, including sharing, consulting, deliberating, and collaborating, depending on their knowledge, experience, and available time. The Engaging Patients In Care framework has 4 priority areas: Care Delivery and Policy, Patient Advocacy, Peer Support, and Research. We have identified key engagement barriers with a discussion of possible solutions. We hope this framework can be adapted as an evidentiary baseline for other heart failure and transplant institutions across Canada. Résumé: Engaging Patients in Care (EPIC) est une initiative locale de participation des patients du University Health Network pour les patients et les familles qui ont reçu des soins en lien avec l’insuffisance cardiaque, la transplantation du cœur ou l’assistance circulatoire mécanique (dispositif d’assistance ventriculaire gauche). Les patients et les soignants peuvent participer à 4 niveaux différents, à savoir le partage, la consultation, la délibération et la collaboration, selon leurs connaissances, leur expérience et leur disponibilité. Le cadre EPIC comporte 4 volets prioritaires : la prestation de soins et les politiques, la défense des droits des patients, le soutien aux pairs et la recherche. Nous avons déterminé les principaux obstacles à la participation par un échange sur les solutions possibles. Nous espérons que ce cadre peut servir de référence en matière de preuves à d’autres établissements offrant des soins aux patients atteints d’insuffisance cardiaque et la transplantation du Canada. |
| first_indexed | 2024-12-19T06:29:25Z |
| format | Article |
| id | doaj.art-e81c25bde3fc4b77aa96096af7108d4e |
| institution | Directory Open Access Journal |
| issn | 2589-790X |
| language | English |
| last_indexed | 2024-12-19T06:29:25Z |
| publishDate | 2019-03-01 |
| publisher | Elsevier |
| record_format | Article |
| series | CJC Open |
| spelling | doaj.art-e81c25bde3fc4b77aa96096af7108d4e2022-12-21T20:32:27ZengElsevierCJC Open2589-790X2019-03-01124346Engaging Patients in Care (EPIC): A Framework for Heart Function and Heart Transplant–Specific Patient EngagementJillian A Macklin, MSc0Natalie Djihanian, BCom1Tieghan Killackey, RN, MN2Jane MacIver, RN, PhD3Faculty of Medicine, University of Toronto, Toronto, Ontario, CanadaCo-Chair HeartLinks, Patient Support Group, Toronto, Ontario, CanadaTed Rogers Center for Heart Research and Peter Munk Cardiac Center, University Health Network, Toronto, Ontario, Canada; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, CanadaTed Rogers Center for Heart Research and Peter Munk Cardiac Center, University Health Network, Toronto, Ontario, Canada; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada; Corresponding author: Dr Jane MacIver, Toronto General Hospital 6N-632, 200 Elizabeth St, Toronto, Ontario M5G 2C4, Canada. Tel.: +1-416-340-4622.Engaging Patients in Care (EPIC) is a local patient engagement initiative at the University Health Network for patients and families who have received care for heart failure, heart transplant, or mechanical circulatory support (left ventricular assist device). Patients and caregivers can engage at 4 different levels, including sharing, consulting, deliberating, and collaborating, depending on their knowledge, experience, and available time. The Engaging Patients In Care framework has 4 priority areas: Care Delivery and Policy, Patient Advocacy, Peer Support, and Research. We have identified key engagement barriers with a discussion of possible solutions. We hope this framework can be adapted as an evidentiary baseline for other heart failure and transplant institutions across Canada. Résumé: Engaging Patients in Care (EPIC) est une initiative locale de participation des patients du University Health Network pour les patients et les familles qui ont reçu des soins en lien avec l’insuffisance cardiaque, la transplantation du cœur ou l’assistance circulatoire mécanique (dispositif d’assistance ventriculaire gauche). Les patients et les soignants peuvent participer à 4 niveaux différents, à savoir le partage, la consultation, la délibération et la collaboration, selon leurs connaissances, leur expérience et leur disponibilité. Le cadre EPIC comporte 4 volets prioritaires : la prestation de soins et les politiques, la défense des droits des patients, le soutien aux pairs et la recherche. Nous avons déterminé les principaux obstacles à la participation par un échange sur les solutions possibles. Nous espérons que ce cadre peut servir de référence en matière de preuves à d’autres établissements offrant des soins aux patients atteints d’insuffisance cardiaque et la transplantation du Canada.http://www.sciencedirect.com/science/article/pii/S2589790X19300022 |
| spellingShingle | Jillian A Macklin, MSc Natalie Djihanian, BCom Tieghan Killackey, RN, MN Jane MacIver, RN, PhD Engaging Patients in Care (EPIC): A Framework for Heart Function and Heart Transplant–Specific Patient Engagement CJC Open |
| title | Engaging Patients in Care (EPIC): A Framework for Heart Function and Heart Transplant–Specific Patient Engagement |
| title_full | Engaging Patients in Care (EPIC): A Framework for Heart Function and Heart Transplant–Specific Patient Engagement |
| title_fullStr | Engaging Patients in Care (EPIC): A Framework for Heart Function and Heart Transplant–Specific Patient Engagement |
| title_full_unstemmed | Engaging Patients in Care (EPIC): A Framework for Heart Function and Heart Transplant–Specific Patient Engagement |
| title_short | Engaging Patients in Care (EPIC): A Framework for Heart Function and Heart Transplant–Specific Patient Engagement |
| title_sort | engaging patients in care epic a framework for heart function and heart transplant specific patient engagement |
| url | http://www.sciencedirect.com/science/article/pii/S2589790X19300022 |
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