Patient life aspirations in the context of Duchenne Muscular Dystrophy: a mixed-methods case–control study

Patient life aspirations in the context of Duchenne Muscular Dystrophy: a mixed-methods case–control study

Abstract Background Aspirations refer to wishes, ways of defining quality of life (QOL), and life goals. Living with chronic illness likely impacts a person’s life aspirations. Duchenne Muscular Dystrophy (DMD) is an inherited disorder characterized by the inevitable and progressive loss of ambulati...

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Bibliographic Details
Main Authors: Carolyn E. Schwartz, Elijah Biletch, Richard B. B. Stuart, Bruce D. Rapkin
Format: Article
Language:English
Published: SpringerOpen 2022-09-01
Series:Journal of Patient-Reported Outcomes
Subjects:
Duchenne Muscular Dystrophy
Aspirations
Goals
Patients
Case–control
Mixed methods
Online Access:https://doi.org/10.1186/s41687-022-00500-8

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