Patient life aspirations in the context of Duchenne Muscular Dystrophy: a mixed-methods case–control study
Abstract Background Aspirations refer to wishes, ways of defining quality of life (QOL), and life goals. Living with chronic illness likely impacts a person’s life aspirations. Duchenne Muscular Dystrophy (DMD) is an inherited disorder characterized by the inevitable and progressive loss of ambulati...
Main Authors: | Carolyn E. Schwartz, Elijah Biletch, Richard B. B. Stuart, Bruce D. Rapkin |
---|---|
Format: | Article |
Language: | English |
Published: |
SpringerOpen
2022-09-01
|
Series: | Journal of Patient-Reported Outcomes |
Subjects: | |
Online Access: | https://doi.org/10.1186/s41687-022-00500-8 |
Similar Items
-
Siblings’ life aspirations in the context of Duchenne muscular dystrophy: a mixed-methods case-control study
by: Carolyn E. Schwartz, et al.
Published: (2022-09-01) -
Duchenne muscular dystrophy: an historical treatment review
by: Lineu Cesar Werneck, et al. -
A rare case of dystrophinopathy: Duchenne muscular dystrophy–Becker muscular dystrophy intermediate complex
by: Rachna Gulati, et al.
Published: (2022-01-01) -
Rehabilitation therapy of Duchenne muscular dystrophy
by: Cheng ZHANG, et al.
Published: (2012-06-01) -
Absence of the dystrophin protein in Duchenne muscular dystrophy: effects on transcriptome, proteome and microRNA secretome
by: van Westering, T
Published: (2018)