Experiences and perceived needs of children and teenagers with cancer and their families

Purpose:- To know the experiencies and perceived needs of children and teenagers with cancer and their care givers regarding the received care and their oncological process. - To identify proposals for improving care.Methodology: A qualitative study based on individual semistructured interviews and...

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Main Author: Pilar González Carrión
Format: Article
Language:Spanish
Published: Fundación para el Desarrollo de la Enfermería 2005-06-01
Series:NURE Investigación
Subjects:
Online Access:http://www.fuden.es/originales_detalle.cfm?ID_ORIGINAL=86&FilaInicio=13
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author Pilar González Carrión
author_facet Pilar González Carrión
author_sort Pilar González Carrión
collection DOAJ
description Purpose:- To know the experiencies and perceived needs of children and teenagers with cancer and their care givers regarding the received care and their oncological process. - To identify proposals for improving care.Methodology: A qualitative study based on individual semistructured interviews and focus interviews with children and teenagers diagnosed of cancer was designed. Results: Hospitalization, therapeutic and diagnose procedures, side effects and isolation when neutropenia, were identified as the main traumatic experiencies suffered by children and relatives. These issues were related to physic, psycologic, social and educational problems. Mothers showed sad and other depression feelings, although those feelings changed as the process of the illness evolved. Some improvement proposals were made by relatives, including the need of a better correlation between health resources and patient/relatives needs. The proffesional support and the care received were given great value.Conclusions: The illness was associated to physic, psycologic and social consequencies for both patients and relatives. Taking their opinion into account is very useful to improve the quality of the health servicies offered to children with cancer and their family.
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spelling doaj.art-e8b348f71f5a4a5da92615f166650f942022-12-21T22:40:26ZspaFundación para el Desarrollo de la EnfermeríaNURE Investigación1697-218X2005-06-01216Experiences and perceived needs of children and teenagers with cancer and their familiesPilar González CarriónPurpose:- To know the experiencies and perceived needs of children and teenagers with cancer and their care givers regarding the received care and their oncological process. - To identify proposals for improving care.Methodology: A qualitative study based on individual semistructured interviews and focus interviews with children and teenagers diagnosed of cancer was designed. Results: Hospitalization, therapeutic and diagnose procedures, side effects and isolation when neutropenia, were identified as the main traumatic experiencies suffered by children and relatives. These issues were related to physic, psycologic, social and educational problems. Mothers showed sad and other depression feelings, although those feelings changed as the process of the illness evolved. Some improvement proposals were made by relatives, including the need of a better correlation between health resources and patient/relatives needs. The proffesional support and the care received were given great value.Conclusions: The illness was associated to physic, psycologic and social consequencies for both patients and relatives. Taking their opinion into account is very useful to improve the quality of the health servicies offered to children with cancer and their family.http://www.fuden.es/originales_detalle.cfm?ID_ORIGINAL=86&FilaInicio=13Childrenteenagerscancerqualitative methodologynursing
spellingShingle Pilar González Carrión
Experiences and perceived needs of children and teenagers with cancer and their families
NURE Investigación
Children
teenagers
cancer
qualitative methodology
nursing
title Experiences and perceived needs of children and teenagers with cancer and their families
title_full Experiences and perceived needs of children and teenagers with cancer and their families
title_fullStr Experiences and perceived needs of children and teenagers with cancer and their families
title_full_unstemmed Experiences and perceived needs of children and teenagers with cancer and their families
title_short Experiences and perceived needs of children and teenagers with cancer and their families
title_sort experiences and perceived needs of children and teenagers with cancer and their families
topic Children
teenagers
cancer
qualitative methodology
nursing
url http://www.fuden.es/originales_detalle.cfm?ID_ORIGINAL=86&FilaInicio=13
work_keys_str_mv AT pilargonzalezcarrion experiencesandperceivedneedsofchildrenandteenagerswithcancerandtheirfamilies