Experiences and perceived needs of children and teenagers with cancer and their families
Purpose:- To know the experiencies and perceived needs of children and teenagers with cancer and their care givers regarding the received care and their oncological process. - To identify proposals for improving care.Methodology: A qualitative study based on individual semistructured interviews and...
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Format: | Article |
Language: | Spanish |
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Fundación para el Desarrollo de la Enfermería
2005-06-01
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Series: | NURE Investigación |
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Online Access: | http://www.fuden.es/originales_detalle.cfm?ID_ORIGINAL=86&FilaInicio=13 |
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author | Pilar González Carrión |
author_facet | Pilar González Carrión |
author_sort | Pilar González Carrión |
collection | DOAJ |
description | Purpose:- To know the experiencies and perceived needs of children and teenagers with cancer and their care givers regarding the received care and their oncological process. - To identify proposals for improving care.Methodology: A qualitative study based on individual semistructured interviews and focus interviews with children and teenagers diagnosed of cancer was designed. Results: Hospitalization, therapeutic and diagnose procedures, side effects and isolation when neutropenia, were identified as the main traumatic experiencies suffered by children and relatives. These issues were related to physic, psycologic, social and educational problems. Mothers showed sad and other depression feelings, although those feelings changed as the process of the illness evolved. Some improvement proposals were made by relatives, including the need of a better correlation between health resources and patient/relatives needs. The proffesional support and the care received were given great value.Conclusions: The illness was associated to physic, psycologic and social consequencies for both patients and relatives. Taking their opinion into account is very useful to improve the quality of the health servicies offered to children with cancer and their family. |
first_indexed | 2024-12-16T06:50:01Z |
format | Article |
id | doaj.art-e8b348f71f5a4a5da92615f166650f94 |
institution | Directory Open Access Journal |
issn | 1697-218X |
language | Spanish |
last_indexed | 2024-12-16T06:50:01Z |
publishDate | 2005-06-01 |
publisher | Fundación para el Desarrollo de la Enfermería |
record_format | Article |
series | NURE Investigación |
spelling | doaj.art-e8b348f71f5a4a5da92615f166650f942022-12-21T22:40:26ZspaFundación para el Desarrollo de la EnfermeríaNURE Investigación1697-218X2005-06-01216Experiences and perceived needs of children and teenagers with cancer and their familiesPilar González CarriónPurpose:- To know the experiencies and perceived needs of children and teenagers with cancer and their care givers regarding the received care and their oncological process. - To identify proposals for improving care.Methodology: A qualitative study based on individual semistructured interviews and focus interviews with children and teenagers diagnosed of cancer was designed. Results: Hospitalization, therapeutic and diagnose procedures, side effects and isolation when neutropenia, were identified as the main traumatic experiencies suffered by children and relatives. These issues were related to physic, psycologic, social and educational problems. Mothers showed sad and other depression feelings, although those feelings changed as the process of the illness evolved. Some improvement proposals were made by relatives, including the need of a better correlation between health resources and patient/relatives needs. The proffesional support and the care received were given great value.Conclusions: The illness was associated to physic, psycologic and social consequencies for both patients and relatives. Taking their opinion into account is very useful to improve the quality of the health servicies offered to children with cancer and their family.http://www.fuden.es/originales_detalle.cfm?ID_ORIGINAL=86&FilaInicio=13Childrenteenagerscancerqualitative methodologynursing |
spellingShingle | Pilar González Carrión Experiences and perceived needs of children and teenagers with cancer and their families NURE Investigación Children teenagers cancer qualitative methodology nursing |
title | Experiences and perceived needs of children and teenagers with cancer and their families |
title_full | Experiences and perceived needs of children and teenagers with cancer and their families |
title_fullStr | Experiences and perceived needs of children and teenagers with cancer and their families |
title_full_unstemmed | Experiences and perceived needs of children and teenagers with cancer and their families |
title_short | Experiences and perceived needs of children and teenagers with cancer and their families |
title_sort | experiences and perceived needs of children and teenagers with cancer and their families |
topic | Children teenagers cancer qualitative methodology nursing |
url | http://www.fuden.es/originales_detalle.cfm?ID_ORIGINAL=86&FilaInicio=13 |
work_keys_str_mv | AT pilargonzalezcarrion experiencesandperceivedneedsofchildrenandteenagerswithcancerandtheirfamilies |