FASD: The Living Experience of People with Fetal Alcohol Spectrum Disorder—Results of an Anonymous Survey

FASD: The Living Experience of People with Fetal Alcohol Spectrum Disorder—Results of an Anonymous Survey

Fetal Alcohol Spectrum Disorder (FASD) is considered a lifelong disability that has been framed with neurobiological descriptions focused on the brain. These are important features but fail to tell the story of living with FASD. By surveying those with FASD, this work expanded upon prior survey work...

Deskribapen osoa

Xehetasun bibliografikoak
Egile Nagusiak:	Emily Hargrove, C. J. Lutke, Katrina Griffin, Myles Himmelreich, Justin Mitchell, Anique Lutke, Peter Choate
Formatua:	Artikulua
Hizkuntza:	English
Argitaratua:	MDPI AG 2024-05-01
Saila:	Disabilities
Gaiak:	Fetal Alcohol Spectrum Disorder FASD FASD living experiences anonymous survey stigma and FASD self-stigma and FASD
Sarrera elektronikoa:	https://www.mdpi.com/2673-7272/4/2/22

Antzeko izenburuak

The Invisible Struggle: Parents with FASD, the Courts and the Child Intervention System
nork: Peter Choate, et al.
Argitaratua: (2024-09-01)

IT’S NOT A GLITCH, IT’S MY LIFE!
nork: Mikayla Goodwin-Reid
Argitaratua: (2024-05-01)

The Influence of FASD on Psychiatric Disorders
nork: Alicja Staszek, et al.
Argitaratua: (2025-03-01)

Editorial: Perspectives and recent advances in Fetal Alcohol Spectrum Disorders research
nork: Lisa K. Akison, et al.
Argitaratua: (2023-12-01)

Reflections of experts by experience and research team members on research and development about a sensitive issue that attracts stigma
Argitaratua: (2023-02-01)

Evaluating the Difference in Neuropsychological Profiles of Individuals with FASD Based on the Number of Sentinel Facial Features: A Service Evaluation of the FASD UK National Clinic Database
nork: Bethany M. Webster, et al.
Argitaratua: (2023-01-01)

Risk and Resilience Variants in the Retinoic Acid Metabolic and Developmental Pathways Associated with Risk of FASD Outcomes
nork: Leo McKay, et al.
Argitaratua: (2024-05-01)

Stigmatisation, Exaggeration, and Contradiction: An Analysis of Scientific and Clinical Content in Canadian Print Media Discourse About Fetal Alcohol Spectrum Disorder
nork: John Aspler, et al.
Argitaratua: (2019-03-01)

Ethanol-induced cerebellar transcriptomic changes in a postnatal model of fetal alcohol spectrum disorders: Focus on disease onset
nork: Kalee N. Holloway, et al.
Argitaratua: (2023-03-01)

Low-dose prenatal alcohol exposure modulates weight gain and eliminates fractalkine expression in e14.5 mouse embryos
nork: Jordyn Karliner, et al.
Argitaratua: (2017-07-01)

Sleep and Cognition in Children with Fetal Alcohol Spectrum Disorders (FASD) and Children with Autism Spectrum Disorders (ASD)
nork: Rabya Mughal, et al.
Argitaratua: (2020-11-01)

The Impact of Oxidative Stress on the Epigenetics of Fetal Alcohol Spectrum Disorders
nork: Sergio Terracina, et al.
Argitaratua: (2024-03-01)

Fetal Alcohol Spectrum Disorders and their Transmission through Genetic and Epigenetic Mechanisms
nork: Edward A Mead, et al.
Argitaratua: (2014-06-01)

Exercise in Adolescence Enhances Callosal White Matter Refinement in the Female Brain in a Rat Model of Fetal Alcohol Spectrum Disorders
nork: Katrina A. Milbocker, et al.
Argitaratua: (2023-03-01)

Towards a Distinct Sleep and Behavioural Profile of Fetal Alcohol Spectrum Disorder (FASD): A Comparison between FASD, Autism and Typically Developing Children
nork: Amy A. Benson, et al.
Argitaratua: (2023-05-01)

A systematic review of prevention interventions to reduce prenatal alcohol exposure and fetal alcohol spectrum disorder in indigenous communities
nork: Martyn Symons, et al.
Argitaratua: (2018-11-01)

GLIA AND NEURODEVELOPMENT: FOCUS ON FETAL ALCOHOL SPECTRUM DISORDERS
nork: Marina eGuizzetti, et al.
Argitaratua: (2014-11-01)

Das Fetale Alkoholsyndrom als pädagogische Herausforderung
nork: Friederike Gödecke, et al.
Argitaratua: (2024-04-01)

Fetal alcohol syndrome – causes, diagnostic criteria and prevalence
nork: Agata Horecka-Lewitowicz, et al.
Argitaratua: (2014-04-01)

“Taking part in the project has really changed our experience as a family” investigating parents’ experience of participation in a study to screen for fetal alcohol spectrum disorder
nork: Robyn McCarthy, et al.
Argitaratua: (2024-05-01)

The Marulu Strategy 2008–2012: overcoming Fetal Alcohol Spectrum Disorder (FASD) in the Fitzroy Valley
nork: James P. Fitzpatrick, et al.
Argitaratua: (2017-10-01)

Heated Behaviour in the Classroom for Children with FASD: The Relationship between Characteristics Associated with ADHD, ODD and ASD, Hot Executive Function and Classroom Based Reward Systems
nork: Andrea Carrick, et al.
Argitaratua: (2023-04-01)

An evaluation of a multi-site fetal alcohol spectrum disorder models of care project
nork: Kirsten R. Panton, et al.
Argitaratua: (2023-07-01)

Function of Thymosin Beta-4 in Ethanol-Induced Microglial Activation
nork: Jianfeng Zhang, et al.
Argitaratua: (2016-05-01)

Development of a Model of Care resource for FASD in the justice system
nork: Fleur E.P. van Dooren, et al.
Argitaratua: (2024-12-01)

Knowledge, attitudes, practices, and beliefs regarding prenatal alcohol consumption among women in Leyte, the Philippines
nork: Alice M. Huang, et al.
Argitaratua: (2023-08-01)

A comparison of the different animal models of Fetal Alcohol Spectrum Disorders and their use in studying complex behaviors.
nork: Anna R Patten, et al.
Argitaratua: (2014-09-01)

Genetics and epigenetics of fetal alcohol spectrum disorders.
nork: Stephen eMason, et al.
Argitaratua: (2015-04-01)

Atypical developmental trajectories of white matter microstructure in prenatal alcohol exposure: Preliminary evidence from neurite orientation dispersion and density imaging
nork: Blake A. Gimbel, et al.
Argitaratua: (2023-04-01)

Fetal alcohol spectrum disorders prevention and clinical guidelines research - workshop report
nork: Tracey Pérez Koehlmoos, et al.
Argitaratua: (2024-08-01)

Children with FASD—Evolving Patterns of Developmental Problems and Intervention Costs in Ages 0 through 16 in Finland
nork: Laura Mirjami Jolma, et al.
Argitaratua: (2023-04-01)

Detection of Children/Youth With Fetal Alcohol Spectrum Disorder Through Eye Movement, Psychometric, and Neuroimaging Data
nork: Chen Zhang, et al.
Argitaratua: (2019-02-01)

Reducing the risk of prenatal alcohol exposure and FASD through social services: promising results from the FAR SEAS pilot project
nork: Katarzyna Okulicz-Kozaryn, et al.
Argitaratua: (2023-09-01)

A tornado in the family: fetal alcohol spectrum disorder and aggression during childhood and adolescence: a scoping review
nork: Maude Champagne, et al.
Argitaratua: (2023-06-01)

Sex differences in the transcriptome of extracellular vesicles secreted by fetal neural stem cells and effects of chronic alcohol exposure
nork: Dae D. Chung, et al.
Argitaratua: (2023-04-01)

Binge-like Prenatal Ethanol Exposure Causes Impaired Cellular Differentiation in the Embryonic Forebrain and Synaptic and Behavioral Defects in Adult Mice
nork: Shivakumar Subbanna, et al.
Argitaratua: (2022-06-01)

Postnatal Ethanol-Induced Neurodegeneration Involves CB1R-Mediated β-Catenin Degradation in Neonatal Mice
nork: Shivakumar Subbanna, et al.
Argitaratua: (2020-05-01)

Effects of Genetics and Sex on Acute Gene Expression Changes in the Hippocampus Following Neonatal Ethanol Exposure in BXD Recombinant Inbred Mouse Strains
nork: Jessica A. Baker, et al.
Argitaratua: (2022-11-01)

Automated cerebellar segmentation: Validation and application to detect smaller volumes in children prenatally exposed to alcohol
nork: Valerie A. Cardenas, et al.
Argitaratua: (2014-01-01)

Nutritional status of a group of polish children with FASD: A retrospective study
nork: Agnieszka Domin, et al.
Argitaratua: (2023-05-01)