Design and validation of a Questionnaire on the factors influencing self-care behaviors in patients with Multiple sclerosis (QFASMS)
Abstract Background Multiple sclerosis (MS) is a chronic inflammatory autoimmune disease of the central nervous system (CNS). Since MS does not have a definitive cure, individuals affected by it need to adapt and coordinate with their chronic illness in order to fulfill their duties and responsibili...
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| Format: | Article |
| Language: | English |
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BMC
2024-01-01
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| Series: | BMC Neurology |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12883-023-03522-x |
| _version_ | 1797363200338952192 |
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| author | Fahimeh Pourhaji Jamshid Jamali Mousa Mahdizadeh Taraghdar Nooshin Peyman Hadi Tehrani |
| author_facet | Fahimeh Pourhaji Jamshid Jamali Mousa Mahdizadeh Taraghdar Nooshin Peyman Hadi Tehrani |
| author_sort | Fahimeh Pourhaji |
| collection | DOAJ |
| description | Abstract Background Multiple sclerosis (MS) is a chronic inflammatory autoimmune disease of the central nervous system (CNS). Since MS does not have a definitive cure, individuals affected by it need to adapt and coordinate with their chronic illness in order to fulfill their duties and responsibilities. The first step in helping patients to better care for and manage their illness is to engage in self-care behaviors. This study was conducted with the aim of design and validation of a questionnaire on the factors influencing self-care behaviors in patients with Multiple sclerosis. Methods This cross-sectional study was conducted on Multiple sclerosis patients in Iran in 2023. The age range of patients varied between 22 and 52 years. Having MS disease, passing one year of the disease duration, living in Mashhad city, having informed consent to participate in the study and not completing the questionnaire were the entry and exit criteria of the study. Results This study was conducted on 500 patients with multiple sclerosis. Based on the results of psychometrics (face, content and construct validity), the number of questions was reduced from 120 to 47 questions and 73 questions were eliminated. Finally, the questionnaire was approved with 47 questions and 4 subscales of understanding the symptoms of the disease (9 questions), tendency to conscious and targeted care (21 questions), laziness in care (8 questions) and tendency to receive therapy services (9 questions). Cronbach's alpha and McDonald's omega index for all questionnaire questions were 0.877 and 0.881, respectively. Conclusions Based on the results of this questionnaire, 47 questions and 4 subscales can be used to measure the factors influencing the adoption of self-care behaviour’s in patients with multiple sclerosis. |
| first_indexed | 2024-03-08T16:17:50Z |
| format | Article |
| id | doaj.art-e9459bf5f3e54471aa6992df03c3a110 |
| institution | Directory Open Access Journal |
| issn | 1471-2377 |
| language | English |
| last_indexed | 2024-03-08T16:17:50Z |
| publishDate | 2024-01-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Neurology |
| spelling | doaj.art-e9459bf5f3e54471aa6992df03c3a1102024-01-07T12:31:32ZengBMCBMC Neurology1471-23772024-01-0124111110.1186/s12883-023-03522-xDesign and validation of a Questionnaire on the factors influencing self-care behaviors in patients with Multiple sclerosis (QFASMS)Fahimeh Pourhaji0Jamshid Jamali1Mousa Mahdizadeh Taraghdar2Nooshin Peyman3Hadi Tehrani4Department of Health Education and Health Promotion, Student Research Committee, Mashhad University of Medical SciencesSocial Determinants of Health Research Center, Mashhad University of Medical SciencesDepartment of Medical Surgical Nursing, School of Nursing and Midwifery, Mashhad University of Medical SciencesSocial Determinants of Health Research Center, Mashhad University of Medical SciencesSocial Determinants of Health Research Center, Mashhad University of Medical SciencesAbstract Background Multiple sclerosis (MS) is a chronic inflammatory autoimmune disease of the central nervous system (CNS). Since MS does not have a definitive cure, individuals affected by it need to adapt and coordinate with their chronic illness in order to fulfill their duties and responsibilities. The first step in helping patients to better care for and manage their illness is to engage in self-care behaviors. This study was conducted with the aim of design and validation of a questionnaire on the factors influencing self-care behaviors in patients with Multiple sclerosis. Methods This cross-sectional study was conducted on Multiple sclerosis patients in Iran in 2023. The age range of patients varied between 22 and 52 years. Having MS disease, passing one year of the disease duration, living in Mashhad city, having informed consent to participate in the study and not completing the questionnaire were the entry and exit criteria of the study. Results This study was conducted on 500 patients with multiple sclerosis. Based on the results of psychometrics (face, content and construct validity), the number of questions was reduced from 120 to 47 questions and 73 questions were eliminated. Finally, the questionnaire was approved with 47 questions and 4 subscales of understanding the symptoms of the disease (9 questions), tendency to conscious and targeted care (21 questions), laziness in care (8 questions) and tendency to receive therapy services (9 questions). Cronbach's alpha and McDonald's omega index for all questionnaire questions were 0.877 and 0.881, respectively. Conclusions Based on the results of this questionnaire, 47 questions and 4 subscales can be used to measure the factors influencing the adoption of self-care behaviour’s in patients with multiple sclerosis.https://doi.org/10.1186/s12883-023-03522-xMultiple sclerosisSelf-careValidity and reliabilityPsychometrics |
| spellingShingle | Fahimeh Pourhaji Jamshid Jamali Mousa Mahdizadeh Taraghdar Nooshin Peyman Hadi Tehrani Design and validation of a Questionnaire on the factors influencing self-care behaviors in patients with Multiple sclerosis (QFASMS) BMC Neurology Multiple sclerosis Self-care Validity and reliability Psychometrics |
| title | Design and validation of a Questionnaire on the factors influencing self-care behaviors in patients with Multiple sclerosis (QFASMS) |
| title_full | Design and validation of a Questionnaire on the factors influencing self-care behaviors in patients with Multiple sclerosis (QFASMS) |
| title_fullStr | Design and validation of a Questionnaire on the factors influencing self-care behaviors in patients with Multiple sclerosis (QFASMS) |
| title_full_unstemmed | Design and validation of a Questionnaire on the factors influencing self-care behaviors in patients with Multiple sclerosis (QFASMS) |
| title_short | Design and validation of a Questionnaire on the factors influencing self-care behaviors in patients with Multiple sclerosis (QFASMS) |
| title_sort | design and validation of a questionnaire on the factors influencing self care behaviors in patients with multiple sclerosis qfasms |
| topic | Multiple sclerosis Self-care Validity and reliability Psychometrics |
| url | https://doi.org/10.1186/s12883-023-03522-x |
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