Co-created Mobile Apps for Palliative Care Using Community-Partnered Participatory Research: Development and Usability Study
BackgroundOpen design formats for mobile apps help clinicians and stakeholders bring their needs to direct, co-creative solutions. Palliative care for patients with advanced cancers requires intensive monitoring and support and remains an area in high need for innovation....
| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
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JMIR Publications
2022-06-01
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| Series: | JMIR Formative Research |
| Online Access: | https://formative.jmir.org/2022/6/e33849 |
| _version_ | 1797735026590220288 |
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| author | Jafar Al-Mondhiry Sarah D'Ambruoso Christopher Pietras Thomas Strouse Dikla Benzeevi Armen C Arevian Kenneth B Wells |
| author_facet | Jafar Al-Mondhiry Sarah D'Ambruoso Christopher Pietras Thomas Strouse Dikla Benzeevi Armen C Arevian Kenneth B Wells |
| author_sort | Jafar Al-Mondhiry |
| collection | DOAJ |
| description |
BackgroundOpen design formats for mobile apps help clinicians and stakeholders bring their needs to direct, co-creative solutions. Palliative care for patients with advanced cancers requires intensive monitoring and support and remains an area in high need for innovation.
ObjectiveThis study aims to use community-partnered participatory research to co-design and pretest a mobile app that focuses on palliative care priorities of clinicians and patients with advanced cancer.
MethodsIn-person and teleconference workshops were held with patient and family stakeholders, researchers, and clinicians in palliative care and oncology. Question prompts, written feedback, semistructured interviews, and facilitated group discussions identified the core palliative care needs. Using Chorus, a no-code app-building platform, a mobile app was co-designed with the stakeholders. A pretest with 11 patients was conducted, with semistructured interviews of clinician and patient users for feedback.
ResultsKey themes identified from the focus groups included needs for patient advocacy and encouragement, access to vetted information, patient-clinician communication support, and symptom management. The initial prototype, My Wellness App, contained a weekly wellness journal to track patient-reported symptoms, goals, and medication use; information on self-management of symptoms; community resources; and patient and caregiver testimonial videos. Initial pretesting identified value in app-based communication for clinicians, patients, and caregivers, with suggestions for improving user interface, feedback and presentation of symptom reports, and gamification and staff coordinators to support patient app engagement.
ConclusionsThe development of a mobile app using community-partnered participatory research is a low-technology and feasible intervention for palliative care. Iterative redesign and user interface expertise may improve implementation. |
| first_indexed | 2024-03-12T12:52:04Z |
| format | Article |
| id | doaj.art-e9740e432a884728b5b79729cabeca0a |
| institution | Directory Open Access Journal |
| issn | 2561-326X |
| language | English |
| last_indexed | 2024-03-12T12:52:04Z |
| publishDate | 2022-06-01 |
| publisher | JMIR Publications |
| record_format | Article |
| series | JMIR Formative Research |
| spelling | doaj.art-e9740e432a884728b5b79729cabeca0a2023-08-28T22:21:33ZengJMIR PublicationsJMIR Formative Research2561-326X2022-06-0166e3384910.2196/33849Co-created Mobile Apps for Palliative Care Using Community-Partnered Participatory Research: Development and Usability StudyJafar Al-Mondhiryhttps://orcid.org/0000-0001-8317-2251Sarah D'Ambruosohttps://orcid.org/0000-0002-0416-4489Christopher Pietrashttps://orcid.org/0000-0003-4449-1115Thomas Strousehttps://orcid.org/0000-0003-3085-8035Dikla Benzeevihttps://orcid.org/0000-0002-4365-7905Armen C Arevianhttps://orcid.org/0000-0001-5508-4131Kenneth B Wellshttps://orcid.org/0000-0002-7454-6589 BackgroundOpen design formats for mobile apps help clinicians and stakeholders bring their needs to direct, co-creative solutions. Palliative care for patients with advanced cancers requires intensive monitoring and support and remains an area in high need for innovation. ObjectiveThis study aims to use community-partnered participatory research to co-design and pretest a mobile app that focuses on palliative care priorities of clinicians and patients with advanced cancer. MethodsIn-person and teleconference workshops were held with patient and family stakeholders, researchers, and clinicians in palliative care and oncology. Question prompts, written feedback, semistructured interviews, and facilitated group discussions identified the core palliative care needs. Using Chorus, a no-code app-building platform, a mobile app was co-designed with the stakeholders. A pretest with 11 patients was conducted, with semistructured interviews of clinician and patient users for feedback. ResultsKey themes identified from the focus groups included needs for patient advocacy and encouragement, access to vetted information, patient-clinician communication support, and symptom management. The initial prototype, My Wellness App, contained a weekly wellness journal to track patient-reported symptoms, goals, and medication use; information on self-management of symptoms; community resources; and patient and caregiver testimonial videos. Initial pretesting identified value in app-based communication for clinicians, patients, and caregivers, with suggestions for improving user interface, feedback and presentation of symptom reports, and gamification and staff coordinators to support patient app engagement. ConclusionsThe development of a mobile app using community-partnered participatory research is a low-technology and feasible intervention for palliative care. Iterative redesign and user interface expertise may improve implementation.https://formative.jmir.org/2022/6/e33849 |
| spellingShingle | Jafar Al-Mondhiry Sarah D'Ambruoso Christopher Pietras Thomas Strouse Dikla Benzeevi Armen C Arevian Kenneth B Wells Co-created Mobile Apps for Palliative Care Using Community-Partnered Participatory Research: Development and Usability Study JMIR Formative Research |
| title | Co-created Mobile Apps for Palliative Care Using Community-Partnered Participatory Research: Development and Usability Study |
| title_full | Co-created Mobile Apps for Palliative Care Using Community-Partnered Participatory Research: Development and Usability Study |
| title_fullStr | Co-created Mobile Apps for Palliative Care Using Community-Partnered Participatory Research: Development and Usability Study |
| title_full_unstemmed | Co-created Mobile Apps for Palliative Care Using Community-Partnered Participatory Research: Development and Usability Study |
| title_short | Co-created Mobile Apps for Palliative Care Using Community-Partnered Participatory Research: Development and Usability Study |
| title_sort | co created mobile apps for palliative care using community partnered participatory research development and usability study |
| url | https://formative.jmir.org/2022/6/e33849 |
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