Diabetic Retinopathy Screening Programme: Attendance, Barriers and Enablers amongst Young People with Diabetes Mellitus Aged 12–26 Years

The study aim is to investigate characteristics, barriers and enablers for attendance at the Diabetic Eye Screening Programme Northern Ireland (DESPNI) among people with diabetes aged 12–26 years. A mixed-methods approach with retrospective analysis and prospective, questionnaire-based data collecti...

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Main Authors: Laura N. Cushley, Katie Curran, Nicola B. Quinn, Aaron Bell, Alyson Muldrew, Una M. Graham, David R. McCance, Qing Wen, Tunde Peto
Format: Article
Language:English
Published: MDPI AG 2021-09-01
Series:International Journal of Translational Medicine
Subjects:
Online Access:https://www.mdpi.com/2673-8937/1/3/11
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author Laura N. Cushley
Katie Curran
Nicola B. Quinn
Aaron Bell
Alyson Muldrew
Una M. Graham
David R. McCance
Qing Wen
Tunde Peto
author_facet Laura N. Cushley
Katie Curran
Nicola B. Quinn
Aaron Bell
Alyson Muldrew
Una M. Graham
David R. McCance
Qing Wen
Tunde Peto
author_sort Laura N. Cushley
collection DOAJ
description The study aim is to investigate characteristics, barriers and enablers for attendance at the Diabetic Eye Screening Programme Northern Ireland (DESPNI) among people with diabetes aged 12–26 years. A mixed-methods approach with retrospective analysis and prospective, questionnaire-based data collection was completed. Data were analysed using ordinal logistic regression. A questionnaire collected information on barriers and enablers to attending DESPNI. Age, diabetes duration, attendance at diabetes clinic and lower HbA1c values were significantly associated with better attendance. Those aged 12–15 were more likely to attend screening than 16–26 years, odds ratio (OR) 4.01. Subjects diagnosed less than 5 years were more likely to attend than those with longer diabetes duration (OR = 2.52, <i>p</i> =< 0.001). Subjects who attended diabetes clinics were more likely to attend screening (OR = 1.89, <i>p</i> =< 0.001) and have a lower HbA1c (OR = 1.46, <i>p</i> =< 0.001). Questionnaires revealed major barriers to attendance which included inconvenient appointment times, lack of access and poor communication. While many subjects were aware of the impact of diabetes on the eye, many had little understanding of screening. This study provides pivotal information on potential barriers and enablers for young people attending eye screening. We suggest modest changes such as convenient appointment times, clearer communication and one-stop clinics could improve attendance.
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spelling doaj.art-e9923d5ece054af8b6a0d3b08dd8a44f2023-11-23T08:50:18ZengMDPI AGInternational Journal of Translational Medicine2673-89372021-09-011315416210.3390/ijtm1030011Diabetic Retinopathy Screening Programme: Attendance, Barriers and Enablers amongst Young People with Diabetes Mellitus Aged 12–26 YearsLaura N. Cushley0Katie Curran1Nicola B. Quinn2Aaron Bell3Alyson Muldrew4Una M. Graham5David R. McCance6Qing Wen7Tunde Peto8Centre for Public Health, School of Medicine, Dentistry and Biomedical Sciences, Faculty of Medicine, Health and Life Sciences, Queen’s University Belfast, Grosvenor Road, BT12 6BA Belfast, IrelandCentre for Public Health, School of Medicine, Dentistry and Biomedical Sciences, Faculty of Medicine, Health and Life Sciences, Queen’s University Belfast, Grosvenor Road, BT12 6BA Belfast, IrelandCentre for Public Health, School of Medicine, Dentistry and Biomedical Sciences, Faculty of Medicine, Health and Life Sciences, Queen’s University Belfast, Grosvenor Road, BT12 6BA Belfast, IrelandCentre for Public Health, School of Medicine, Dentistry and Biomedical Sciences, Faculty of Medicine, Health and Life Sciences, Queen’s University Belfast, Grosvenor Road, BT12 6BA Belfast, IrelandCentre for Public Health, School of Medicine, Dentistry and Biomedical Sciences, Faculty of Medicine, Health and Life Sciences, Queen’s University Belfast, Grosvenor Road, BT12 6BA Belfast, IrelandDepartment of Endocrinology, Belfast Health and Social Care Trust, Grosvenor Road, BT12 6BA Belfast, IrelandDepartment of Endocrinology, Belfast Health and Social Care Trust, Grosvenor Road, BT12 6BA Belfast, IrelandCentre for Public Health, School of Medicine, Dentistry and Biomedical Sciences, Faculty of Medicine, Health and Life Sciences, Queen’s University Belfast, Grosvenor Road, BT12 6BA Belfast, IrelandCentre for Public Health, School of Medicine, Dentistry and Biomedical Sciences, Faculty of Medicine, Health and Life Sciences, Queen’s University Belfast, Grosvenor Road, BT12 6BA Belfast, IrelandThe study aim is to investigate characteristics, barriers and enablers for attendance at the Diabetic Eye Screening Programme Northern Ireland (DESPNI) among people with diabetes aged 12–26 years. A mixed-methods approach with retrospective analysis and prospective, questionnaire-based data collection was completed. Data were analysed using ordinal logistic regression. A questionnaire collected information on barriers and enablers to attending DESPNI. Age, diabetes duration, attendance at diabetes clinic and lower HbA1c values were significantly associated with better attendance. Those aged 12–15 were more likely to attend screening than 16–26 years, odds ratio (OR) 4.01. Subjects diagnosed less than 5 years were more likely to attend than those with longer diabetes duration (OR = 2.52, <i>p</i> =< 0.001). Subjects who attended diabetes clinics were more likely to attend screening (OR = 1.89, <i>p</i> =< 0.001) and have a lower HbA1c (OR = 1.46, <i>p</i> =< 0.001). Questionnaires revealed major barriers to attendance which included inconvenient appointment times, lack of access and poor communication. While many subjects were aware of the impact of diabetes on the eye, many had little understanding of screening. This study provides pivotal information on potential barriers and enablers for young people attending eye screening. We suggest modest changes such as convenient appointment times, clearer communication and one-stop clinics could improve attendance.https://www.mdpi.com/2673-8937/1/3/11diabetic retinopathydiabetic eye screeningdiabetesyoung people
spellingShingle Laura N. Cushley
Katie Curran
Nicola B. Quinn
Aaron Bell
Alyson Muldrew
Una M. Graham
David R. McCance
Qing Wen
Tunde Peto
Diabetic Retinopathy Screening Programme: Attendance, Barriers and Enablers amongst Young People with Diabetes Mellitus Aged 12–26 Years
International Journal of Translational Medicine
diabetic retinopathy
diabetic eye screening
diabetes
young people
title Diabetic Retinopathy Screening Programme: Attendance, Barriers and Enablers amongst Young People with Diabetes Mellitus Aged 12–26 Years
title_full Diabetic Retinopathy Screening Programme: Attendance, Barriers and Enablers amongst Young People with Diabetes Mellitus Aged 12–26 Years
title_fullStr Diabetic Retinopathy Screening Programme: Attendance, Barriers and Enablers amongst Young People with Diabetes Mellitus Aged 12–26 Years
title_full_unstemmed Diabetic Retinopathy Screening Programme: Attendance, Barriers and Enablers amongst Young People with Diabetes Mellitus Aged 12–26 Years
title_short Diabetic Retinopathy Screening Programme: Attendance, Barriers and Enablers amongst Young People with Diabetes Mellitus Aged 12–26 Years
title_sort diabetic retinopathy screening programme attendance barriers and enablers amongst young people with diabetes mellitus aged 12 26 years
topic diabetic retinopathy
diabetic eye screening
diabetes
young people
url https://www.mdpi.com/2673-8937/1/3/11
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