Analysis of reasons for loss to follow up in a prospective study in Chandigarh, India and impact from telecom changes

Abstract Objective Mobile phones are used in research studies, to enroll and follow-up participants, collect data, and implement mHealth initiatives. We conducted a longitudinal study in a birth cohort, where infants were required to make four scheduled visits by 12 months of age. Families of those...

Full description

Bibliographic Details
Main Authors: Joseph L. Mathew, Pooja N. Patel, Abram L. Wagner, Vanita Suri, Bhavneet Bharti, Bradley F. Carlson, Matthew L. Boulton
Format: Article
Language:English
Published: BMC 2021-11-01
Series:BMC Research Notes
Subjects:
Online Access:https://doi.org/10.1186/s13104-021-05837-9
_version_ 1798034816858324992
author Joseph L. Mathew
Pooja N. Patel
Abram L. Wagner
Vanita Suri
Bhavneet Bharti
Bradley F. Carlson
Matthew L. Boulton
author_facet Joseph L. Mathew
Pooja N. Patel
Abram L. Wagner
Vanita Suri
Bhavneet Bharti
Bradley F. Carlson
Matthew L. Boulton
author_sort Joseph L. Mathew
collection DOAJ
description Abstract Objective Mobile phones are used in research studies, to enroll and follow-up participants, collect data, and implement mHealth initiatives. We conducted a longitudinal study in a birth cohort, where infants were required to make four scheduled visits by 12 months of age. Families of those failing to attend scheduled follow-up visits, were contacted telephonically to ascertain the reasons, which were categorized as: not interested to continue participating, migrated, phone disconnected due to telecom change, or other reason. Results A total of 413 mother-infant dyads were enrolled. The overall attrition was 56%, with majority occurring at the first follow-up visit. This temporally coincided with a telecom service provider announcing strong incentives to switch providers. Attrition monotonically decreased at subsequent visits. The reasons were: moved away (13%), no longer interested (8%), phone disconnected (7%), and multiple other reasons (28%), the majority of whom had unreachable phones. Those who remained in the study and those lost to follow-up were similar on most demographic variables. Among common reasons for attrition in cohort studies, we experienced a new dimension introduced by telecom changes. These findings underscore the need to consider unexpected reasons for attrition in longitudinal studies, and design more robust methods to follow-up participants.
first_indexed 2024-04-11T20:49:36Z
format Article
id doaj.art-eb1290009b054118bc47af409662e86b
institution Directory Open Access Journal
issn 1756-0500
language English
last_indexed 2024-04-11T20:49:36Z
publishDate 2021-11-01
publisher BMC
record_format Article
series BMC Research Notes
spelling doaj.art-eb1290009b054118bc47af409662e86b2022-12-22T04:03:53ZengBMCBMC Research Notes1756-05002021-11-011411610.1186/s13104-021-05837-9Analysis of reasons for loss to follow up in a prospective study in Chandigarh, India and impact from telecom changesJoseph L. Mathew0Pooja N. Patel1Abram L. Wagner2Vanita Suri3Bhavneet Bharti4Bradley F. Carlson5Matthew L. Boulton6Advanced Pediatrics Center, PGIMERDepartment of Epidemiology, School of Public Health, University of MichiganDepartment of Epidemiology, School of Public Health, University of MichiganDepartment of Obstetrics and Gynecology, PGIMERAdvanced Pediatrics Center, PGIMERAdvanced Pediatrics Center, PGIMERDepartment of Epidemiology, School of Public Health, University of MichiganAbstract Objective Mobile phones are used in research studies, to enroll and follow-up participants, collect data, and implement mHealth initiatives. We conducted a longitudinal study in a birth cohort, where infants were required to make four scheduled visits by 12 months of age. Families of those failing to attend scheduled follow-up visits, were contacted telephonically to ascertain the reasons, which were categorized as: not interested to continue participating, migrated, phone disconnected due to telecom change, or other reason. Results A total of 413 mother-infant dyads were enrolled. The overall attrition was 56%, with majority occurring at the first follow-up visit. This temporally coincided with a telecom service provider announcing strong incentives to switch providers. Attrition monotonically decreased at subsequent visits. The reasons were: moved away (13%), no longer interested (8%), phone disconnected (7%), and multiple other reasons (28%), the majority of whom had unreachable phones. Those who remained in the study and those lost to follow-up were similar on most demographic variables. Among common reasons for attrition in cohort studies, we experienced a new dimension introduced by telecom changes. These findings underscore the need to consider unexpected reasons for attrition in longitudinal studies, and design more robust methods to follow-up participants.https://doi.org/10.1186/s13104-021-05837-9Loss to follow-upmHealthTelecommunications
spellingShingle Joseph L. Mathew
Pooja N. Patel
Abram L. Wagner
Vanita Suri
Bhavneet Bharti
Bradley F. Carlson
Matthew L. Boulton
Analysis of reasons for loss to follow up in a prospective study in Chandigarh, India and impact from telecom changes
BMC Research Notes
Loss to follow-up
mHealth
Telecommunications
title Analysis of reasons for loss to follow up in a prospective study in Chandigarh, India and impact from telecom changes
title_full Analysis of reasons for loss to follow up in a prospective study in Chandigarh, India and impact from telecom changes
title_fullStr Analysis of reasons for loss to follow up in a prospective study in Chandigarh, India and impact from telecom changes
title_full_unstemmed Analysis of reasons for loss to follow up in a prospective study in Chandigarh, India and impact from telecom changes
title_short Analysis of reasons for loss to follow up in a prospective study in Chandigarh, India and impact from telecom changes
title_sort analysis of reasons for loss to follow up in a prospective study in chandigarh india and impact from telecom changes
topic Loss to follow-up
mHealth
Telecommunications
url https://doi.org/10.1186/s13104-021-05837-9
work_keys_str_mv AT josephlmathew analysisofreasonsforlosstofollowupinaprospectivestudyinchandigarhindiaandimpactfromtelecomchanges
AT poojanpatel analysisofreasonsforlosstofollowupinaprospectivestudyinchandigarhindiaandimpactfromtelecomchanges
AT abramlwagner analysisofreasonsforlosstofollowupinaprospectivestudyinchandigarhindiaandimpactfromtelecomchanges
AT vanitasuri analysisofreasonsforlosstofollowupinaprospectivestudyinchandigarhindiaandimpactfromtelecomchanges
AT bhavneetbharti analysisofreasonsforlosstofollowupinaprospectivestudyinchandigarhindiaandimpactfromtelecomchanges
AT bradleyfcarlson analysisofreasonsforlosstofollowupinaprospectivestudyinchandigarhindiaandimpactfromtelecomchanges
AT matthewlboulton analysisofreasonsforlosstofollowupinaprospectivestudyinchandigarhindiaandimpactfromtelecomchanges