Advocacy worldwide for women with bleeding disorders
Raising awareness that bleeding disorders affect women – not just men – is a key part of advocacy initiatives around the world. The European Haemophilia Consortium (EHC) and national patient organisations have run successful campaigns, with a wealth of information for women and girls with bleeding d...
| Main Author: | |
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| Format: | Article |
| Language: | English |
| Published: |
Sciendo
2022-11-01
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| Series: | The Journal of Haemophilia Practice |
| Subjects: | |
| Online Access: | https://doi.org/10.2478/jhp-2022-0019 |
| _version_ | 1827953202377523200 |
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| author | Grimberg Evelyn |
| author_facet | Grimberg Evelyn |
| author_sort | Grimberg Evelyn |
| collection | DOAJ |
| description | Raising awareness that bleeding disorders affect women – not just men – is a key part of advocacy initiatives around the world. The European Haemophilia Consortium (EHC) and national patient organisations have run successful campaigns, with a wealth of information for women and girls with bleeding disorders and non-specialist healthcare professionals, including bleeding assessment tools, patient stories, blogs and videos. Some hold conference sessions and webinars devoted to bleeding disorders in women. By drawing on ideas and resources already available, patient organisations and other groups for women with bleeding disorders can fast-forward their advocacy plans, improve awareness and accelerate change. |
| first_indexed | 2024-04-09T14:10:23Z |
| format | Article |
| id | doaj.art-eb20b63fbfc446d98743da52863f3093 |
| institution | Directory Open Access Journal |
| issn | 2055-3390 |
| language | English |
| last_indexed | 2024-04-09T14:10:23Z |
| publishDate | 2022-11-01 |
| publisher | Sciendo |
| record_format | Article |
| series | The Journal of Haemophilia Practice |
| spelling | doaj.art-eb20b63fbfc446d98743da52863f30932023-05-06T15:31:52ZengSciendoThe Journal of Haemophilia Practice2055-33902022-11-019114314610.2478/jhp-2022-0019Advocacy worldwide for women with bleeding disordersGrimberg Evelyn0European Haemophilia Consortium, Brussels, BelgiumRaising awareness that bleeding disorders affect women – not just men – is a key part of advocacy initiatives around the world. The European Haemophilia Consortium (EHC) and national patient organisations have run successful campaigns, with a wealth of information for women and girls with bleeding disorders and non-specialist healthcare professionals, including bleeding assessment tools, patient stories, blogs and videos. Some hold conference sessions and webinars devoted to bleeding disorders in women. By drawing on ideas and resources already available, patient organisations and other groups for women with bleeding disorders can fast-forward their advocacy plans, improve awareness and accelerate change.https://doi.org/10.2478/jhp-2022-0019women with bleeding disordersadvocacyraising awarenesspatient organisations |
| spellingShingle | Grimberg Evelyn Advocacy worldwide for women with bleeding disorders The Journal of Haemophilia Practice women with bleeding disorders advocacy raising awareness patient organisations |
| title | Advocacy worldwide for women with bleeding disorders |
| title_full | Advocacy worldwide for women with bleeding disorders |
| title_fullStr | Advocacy worldwide for women with bleeding disorders |
| title_full_unstemmed | Advocacy worldwide for women with bleeding disorders |
| title_short | Advocacy worldwide for women with bleeding disorders |
| title_sort | advocacy worldwide for women with bleeding disorders |
| topic | women with bleeding disorders advocacy raising awareness patient organisations |
| url | https://doi.org/10.2478/jhp-2022-0019 |
| work_keys_str_mv | AT grimbergevelyn advocacyworldwideforwomenwithbleedingdisorders |