An emerging framework for digital mental health design with Indigenous young people: a scoping review of the involvement of Indigenous young people in the design and evaluation of digital mental health interventions
Abstract Background Indigenous young people worldwide possess unique protective factors that support wellbeing. However, they experience mental illness at higher rates than their non-indigenous counterparts. Digital mental health (dMH) resources can increase access to structured, timely, and cultura...
| Main Authors: | , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
BMC
2023-07-01
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| Series: | Systematic Reviews |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s13643-023-02262-w |
| _version_ | 1797789945009537024 |
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| author | Josie Povey Buaphrao Raphiphatthana Michelle Torok Tricia Nagel Patj Patj Janama Robert Mills Joshua Russell Howard Sells Fiona Shand Michelle Sweet Anne Lowell Kylie Dingwall |
| author_facet | Josie Povey Buaphrao Raphiphatthana Michelle Torok Tricia Nagel Patj Patj Janama Robert Mills Joshua Russell Howard Sells Fiona Shand Michelle Sweet Anne Lowell Kylie Dingwall |
| author_sort | Josie Povey |
| collection | DOAJ |
| description | Abstract Background Indigenous young people worldwide possess unique protective factors that support wellbeing. However, they experience mental illness at higher rates than their non-indigenous counterparts. Digital mental health (dMH) resources can increase access to structured, timely, and culturally tailored mental health interventions by reducing structural and attitudinal barriers to accessing treatment. The involvement of Indigenous young people in dMH resource development is recommended, however, no guidelines exist on how this can best be facilitated. Methods A scoping review examining processes to involve Indigenous young people in developing or evaluating dMH interventions was conducted. Studies reported between 1990 and 2023 involving Indigenous young people aged 12–24 years, originating from Canada, the USA, New Zealand, and Australia, in the development or evaluation of dMH interventions were eligible for inclusion. Following a three-step search process, four electronic databases were searched. Data were extracted, synthesized, and described under three categories: dMH intervention attributes, study design, and alignment with research best practice. Best practice recommendations for Indigenous research and participatory design principles derived from the literature were identified and synthesised. Included studies were assessed against these recommendations. Consultation with two Senior Indigenous Research Officers ensured Indigenous worldviews informed analysis. Results Twenty-four studies describing eleven dMH interventions met inclusion criteria. Studies included formative, design, pilot, and efficacy studies. Overall, most included studies demonstrated a high degree of Indigenous governance, capacity building, and community benefit. All studies adapted their research processes to ensure that local community protocols were followed and most aligned these within an Indigenous research paradigm. Formal agreements regarding existing and created intellectual property and implementation evaluations were rare. Outcomes were the primary focus of reporting, with limited detailed descriptions of governance and decision-making processes or strategies for managing predictable tensions between co-design stakeholders. Conclusions This study identified recommendations for undertaking participatory design with Indigenous young people and evaluated the current literature against these criteria. Common gaps were evident in the reporting of study processes. Consistent, in-depth reporting is needed to allow assessment of approaches for this hard-to-reach population. An emergent framework, informed by our findings, for guiding the involvement of Indigenous young people in the design and evaluation of dMH tools is presented. Trial registration Available via osf.io/2nkc6 |
| first_indexed | 2024-03-13T01:57:51Z |
| format | Article |
| id | doaj.art-ebeb12acd8a848cd8d23163ed5a4a897 |
| institution | Directory Open Access Journal |
| issn | 2046-4053 |
| language | English |
| last_indexed | 2024-03-13T01:57:51Z |
| publishDate | 2023-07-01 |
| publisher | BMC |
| record_format | Article |
| series | Systematic Reviews |
| spelling | doaj.art-ebeb12acd8a848cd8d23163ed5a4a8972023-07-02T11:09:08ZengBMCSystematic Reviews2046-40532023-07-0112111910.1186/s13643-023-02262-wAn emerging framework for digital mental health design with Indigenous young people: a scoping review of the involvement of Indigenous young people in the design and evaluation of digital mental health interventionsJosie Povey0Buaphrao Raphiphatthana1Michelle Torok2Tricia Nagel3Patj Patj Janama Robert Mills4Joshua Russell Howard Sells5Fiona Shand6Michelle Sweet7Anne Lowell8Kylie Dingwall9Menzies School of Health Research, Charles Darwin UniversityMenzies School of Health Research, Charles Darwin UniversityBlack Dog Institute, University of New South WalesMenzies School of Health Research, Charles Darwin UniversityMenzies School of Health Research, Charles Darwin UniversityMenzies School of Health Research, Charles Darwin UniversityBlack Dog Institute, University of New South WalesMenzies School of Health Research, Charles Darwin UniversityNorthern Institute, Charles Darwin UniversityNorthern Institute, Charles Darwin UniversityAbstract Background Indigenous young people worldwide possess unique protective factors that support wellbeing. However, they experience mental illness at higher rates than their non-indigenous counterparts. Digital mental health (dMH) resources can increase access to structured, timely, and culturally tailored mental health interventions by reducing structural and attitudinal barriers to accessing treatment. The involvement of Indigenous young people in dMH resource development is recommended, however, no guidelines exist on how this can best be facilitated. Methods A scoping review examining processes to involve Indigenous young people in developing or evaluating dMH interventions was conducted. Studies reported between 1990 and 2023 involving Indigenous young people aged 12–24 years, originating from Canada, the USA, New Zealand, and Australia, in the development or evaluation of dMH interventions were eligible for inclusion. Following a three-step search process, four electronic databases were searched. Data were extracted, synthesized, and described under three categories: dMH intervention attributes, study design, and alignment with research best practice. Best practice recommendations for Indigenous research and participatory design principles derived from the literature were identified and synthesised. Included studies were assessed against these recommendations. Consultation with two Senior Indigenous Research Officers ensured Indigenous worldviews informed analysis. Results Twenty-four studies describing eleven dMH interventions met inclusion criteria. Studies included formative, design, pilot, and efficacy studies. Overall, most included studies demonstrated a high degree of Indigenous governance, capacity building, and community benefit. All studies adapted their research processes to ensure that local community protocols were followed and most aligned these within an Indigenous research paradigm. Formal agreements regarding existing and created intellectual property and implementation evaluations were rare. Outcomes were the primary focus of reporting, with limited detailed descriptions of governance and decision-making processes or strategies for managing predictable tensions between co-design stakeholders. Conclusions This study identified recommendations for undertaking participatory design with Indigenous young people and evaluated the current literature against these criteria. Common gaps were evident in the reporting of study processes. Consistent, in-depth reporting is needed to allow assessment of approaches for this hard-to-reach population. An emergent framework, informed by our findings, for guiding the involvement of Indigenous young people in the design and evaluation of dMH tools is presented. Trial registration Available via osf.io/2nkc6https://doi.org/10.1186/s13643-023-02262-wDigital mental healthIndigenousAdolescentYoung adultScoping reviewParticipatory |
| spellingShingle | Josie Povey Buaphrao Raphiphatthana Michelle Torok Tricia Nagel Patj Patj Janama Robert Mills Joshua Russell Howard Sells Fiona Shand Michelle Sweet Anne Lowell Kylie Dingwall An emerging framework for digital mental health design with Indigenous young people: a scoping review of the involvement of Indigenous young people in the design and evaluation of digital mental health interventions Systematic Reviews Digital mental health Indigenous Adolescent Young adult Scoping review Participatory |
| title | An emerging framework for digital mental health design with Indigenous young people: a scoping review of the involvement of Indigenous young people in the design and evaluation of digital mental health interventions |
| title_full | An emerging framework for digital mental health design with Indigenous young people: a scoping review of the involvement of Indigenous young people in the design and evaluation of digital mental health interventions |
| title_fullStr | An emerging framework for digital mental health design with Indigenous young people: a scoping review of the involvement of Indigenous young people in the design and evaluation of digital mental health interventions |
| title_full_unstemmed | An emerging framework for digital mental health design with Indigenous young people: a scoping review of the involvement of Indigenous young people in the design and evaluation of digital mental health interventions |
| title_short | An emerging framework for digital mental health design with Indigenous young people: a scoping review of the involvement of Indigenous young people in the design and evaluation of digital mental health interventions |
| title_sort | emerging framework for digital mental health design with indigenous young people a scoping review of the involvement of indigenous young people in the design and evaluation of digital mental health interventions |
| topic | Digital mental health Indigenous Adolescent Young adult Scoping review Participatory |
| url | https://doi.org/10.1186/s13643-023-02262-w |
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