Are nurse`s needs assessment methods robust enough to recognise palliative care needs in people with dementia? A scoping review

Abstract Background People with dementia are most at risk of experiencing serious health related suffering, if they do not have a palliative care approach introduced early enough in the illness. It can be challenging for nurses to assess experienced needs of people, who are thought no longer able to...

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Main Authors: Susanne de Wolf-Linder, Margarete Reisinger, Elisabeth Gohles, Emma L. Wolverson, Maria Schubert, Fliss E. M. Murtagh
Format: Article
Language:English
Published: BMC 2022-07-01
Series:BMC Nursing
Subjects:
Online Access:https://doi.org/10.1186/s12912-022-00947-6
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author Susanne de Wolf-Linder
Margarete Reisinger
Elisabeth Gohles
Emma L. Wolverson
Maria Schubert
Fliss E. M. Murtagh
author_facet Susanne de Wolf-Linder
Margarete Reisinger
Elisabeth Gohles
Emma L. Wolverson
Maria Schubert
Fliss E. M. Murtagh
author_sort Susanne de Wolf-Linder
collection DOAJ
description Abstract Background People with dementia are most at risk of experiencing serious health related suffering, if they do not have a palliative care approach introduced early enough in the illness. It can be challenging for nurses to assess experienced needs of people, who are thought no longer able to self-report such as people with dementia. Assessment help to understand the care the patient and their family need promptly. It is unknown how nurses recognise holistic palliative care needs in people with dementia during routine care. Methods Scoping review where EMBASE, MEDLINE, CINAHL, PsycInfo databases, and references were searched with an advanced search strategy, which was built on three concepts (nurses, dementia, and nursing assessment) using corresponding Medical Subject Headings. Data were charted in a piloted extraction form, based on the assessment domains within the nursing process followed by summarise and synthesise results narratively. Results 37 out of 2,028 qualitative and quantitative articles published between 2000 and 2021, and relating to 2600 + nurses, were identified. Pain was sole focus of assessment in 29 articles, leaving 8 articles to describe assessment of additional needs (e.g., discomfort). Nurses working in a nursing home assess pain and other needs by observing the persons with dementia behaviour during routine care. Nurses in the acute care setting are more likely to assess symptoms with standard assessment tools at admission and evaluate symptoms by observational methods. Across settings, about one third of pain assessments are supported by person-centred pain assessment tools. Assessments were mostly triggered when the person with dementia vocalised discomfort or a change in usual behaviour was observed. Nurses rely on family members and colleagues to gain more information about needs experienced by people with dementia. Conclusion There is a scarcity of evidence about techniques and methods used by nurses to assess needs other than pain experienced by people with dementia. A holistic, person-centred screening tool to aid real-time observations at the bedside and used in conversations with health care professionals and families/friends, may improve need recognition other than pain, to ensure holistic needs could then be addressed timely to improve care in people with dementia.
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spelling doaj.art-ec6cad0c3c654c38a6b33627abf591882022-12-22T03:04:59ZengBMCBMC Nursing1472-69552022-07-0121112810.1186/s12912-022-00947-6Are nurse`s needs assessment methods robust enough to recognise palliative care needs in people with dementia? A scoping reviewSusanne de Wolf-Linder0Margarete Reisinger1Elisabeth Gohles2Emma L. Wolverson3Maria Schubert4Fliss E. M. Murtagh5School of Health Science, Institute of Nursing, Zurich University of Applied SciencesSchool of Health Science, Institute of Nursing, Zurich University of Applied SciencesSchool of Health Science, Institute of Nursing, Zurich University of Applied SciencesWolfson Palliative Care Research Centre, Hull York Medical School, University of HullSchool of Health Science, Institute of Nursing, Zurich University of Applied SciencesWolfson Palliative Care Research Centre, Hull York Medical School, University of HullAbstract Background People with dementia are most at risk of experiencing serious health related suffering, if they do not have a palliative care approach introduced early enough in the illness. It can be challenging for nurses to assess experienced needs of people, who are thought no longer able to self-report such as people with dementia. Assessment help to understand the care the patient and their family need promptly. It is unknown how nurses recognise holistic palliative care needs in people with dementia during routine care. Methods Scoping review where EMBASE, MEDLINE, CINAHL, PsycInfo databases, and references were searched with an advanced search strategy, which was built on three concepts (nurses, dementia, and nursing assessment) using corresponding Medical Subject Headings. Data were charted in a piloted extraction form, based on the assessment domains within the nursing process followed by summarise and synthesise results narratively. Results 37 out of 2,028 qualitative and quantitative articles published between 2000 and 2021, and relating to 2600 + nurses, were identified. Pain was sole focus of assessment in 29 articles, leaving 8 articles to describe assessment of additional needs (e.g., discomfort). Nurses working in a nursing home assess pain and other needs by observing the persons with dementia behaviour during routine care. Nurses in the acute care setting are more likely to assess symptoms with standard assessment tools at admission and evaluate symptoms by observational methods. Across settings, about one third of pain assessments are supported by person-centred pain assessment tools. Assessments were mostly triggered when the person with dementia vocalised discomfort or a change in usual behaviour was observed. Nurses rely on family members and colleagues to gain more information about needs experienced by people with dementia. Conclusion There is a scarcity of evidence about techniques and methods used by nurses to assess needs other than pain experienced by people with dementia. A holistic, person-centred screening tool to aid real-time observations at the bedside and used in conversations with health care professionals and families/friends, may improve need recognition other than pain, to ensure holistic needs could then be addressed timely to improve care in people with dementia.https://doi.org/10.1186/s12912-022-00947-6DementiaPatient Reported Outcome MeasureNursing AssessmentNeeds AssessmentHolistic NursingHospice and Palliative Care Nursing
spellingShingle Susanne de Wolf-Linder
Margarete Reisinger
Elisabeth Gohles
Emma L. Wolverson
Maria Schubert
Fliss E. M. Murtagh
Are nurse`s needs assessment methods robust enough to recognise palliative care needs in people with dementia? A scoping review
BMC Nursing
Dementia
Patient Reported Outcome Measure
Nursing Assessment
Needs Assessment
Holistic Nursing
Hospice and Palliative Care Nursing
title Are nurse`s needs assessment methods robust enough to recognise palliative care needs in people with dementia? A scoping review
title_full Are nurse`s needs assessment methods robust enough to recognise palliative care needs in people with dementia? A scoping review
title_fullStr Are nurse`s needs assessment methods robust enough to recognise palliative care needs in people with dementia? A scoping review
title_full_unstemmed Are nurse`s needs assessment methods robust enough to recognise palliative care needs in people with dementia? A scoping review
title_short Are nurse`s needs assessment methods robust enough to recognise palliative care needs in people with dementia? A scoping review
title_sort are nurse s needs assessment methods robust enough to recognise palliative care needs in people with dementia a scoping review
topic Dementia
Patient Reported Outcome Measure
Nursing Assessment
Needs Assessment
Holistic Nursing
Hospice and Palliative Care Nursing
url https://doi.org/10.1186/s12912-022-00947-6
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