A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research

A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research

The participation of individuals who lack decision-making capacity is essential for advancing genomics research and neuroscience, but raises ethical and legal challenges relating to vulnerability, consent, and exclusion. Capacity differences between populations and individuals, the dynamics of capac...

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Bibliographic Details
Main Authors: Gratien Dalpé, Adrian Thorogood, Bartha Maria Knoppers
Format: Article
Language:English
Published: Frontiers Media S.A. 2019-04-01
Series:Frontiers in Genetics
Subjects:
capacity
consent
human rights
legally authorized representatives
incompetent adults
data sharing
Online Access:https://www.frontiersin.org/article/10.3389/fgene.2019.00289/full

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