Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe

Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe

Whole genome/exome sequencing (WGS/WES) has become widely adopted in research and, more recently, in clinical settings. Many hope that the information obtained from the interpretation of these data will have medical benefits for patients and—in some cases—also their biological relatives. Because of...

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Bibliographic Details
Main Authors: Shaman Narayanasamy, Varvara Markina, Adrian Thorogood, Adriana Blazkova, Mahsa Shabani, Bartha M. Knoppers, Barbara Prainsack, Robert Koesters
Format: Article
Language:English
Published: Frontiers Media S.A. 2020-05-01
Series:Frontiers in Genetics
Subjects:
NGS
ELSI
policies
procedures
patient rights
research participant rights
Online Access:https://www.frontiersin.org/article/10.3389/fgene.2020.00303/full

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