The Charlotte Project: Recommendations for patient-reported outcomes and clinical parameters in Dravet syndrome through a qualitative and Delphi consensus study
ObjectiveThe appropriate management of patients with Dravet Syndrome (DS) is challenging, given the severity of symptoms and the burden of the disease for patients and caregivers. This study aimed to identify, through a qualitative methodology and a Delphi consensus-driven process, a set of recommen...
Main Authors: | Ángel Aledo-Serrano, Ana Mingorance, Vicente Villanueva, Juan José García-Peñas, Antonio Gil-Nagel, Susana Boronat, JoséÁngel Aibar, Silvia Cámara, María José Yániz, Luis Miguel Aras, Bárbara Blanco, Rocío Sánchez-Carpintero |
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Format: | Article |
Language: | English |
Published: |
Frontiers Media S.A.
2022-09-01
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Series: | Frontiers in Neurology |
Subjects: | |
Online Access: | https://www.frontiersin.org/articles/10.3389/fneur.2022.975034/full |
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