Validation of the Persian Translation of the TAND Checklist in Children with Tuberous Sclerosis Syndrome
Background: Tuberous Sclerosis Complex is an autosomal dominant heterogeneous disease that mostly affects the skin and nervous system. The goal of this study was to provide a framework for addressing these patients' psychological and behavioral issues, as well as the therapy and management of t...
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| Format: | Article |
| Language: | English |
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Mashhad University of Medical Sciences
2024-01-01
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| Series: | International Journal of Pediatrics |
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| Online Access: | https://ijp.mums.ac.ir/article_23730_f8903792fbf1df0dc67579c626df87ca.pdf |
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| author | Ghazaleh Talati Mehran Beiraghi Toosi Reza Nejad Shahrokh Abadi Farah Ashrafzadeh Javad Akhoondian Shahrbanoo Aali Sheyla Kianifar Shima Imannezhad Narges Hashemi |
| author_facet | Ghazaleh Talati Mehran Beiraghi Toosi Reza Nejad Shahrokh Abadi Farah Ashrafzadeh Javad Akhoondian Shahrbanoo Aali Sheyla Kianifar Shima Imannezhad Narges Hashemi |
| author_sort | Ghazaleh Talati |
| collection | DOAJ |
| description | Background: Tuberous Sclerosis Complex is an autosomal dominant heterogeneous disease that mostly affects the skin and nervous system. The goal of this study was to provide a framework for addressing these patients' psychological and behavioral issues, as well as the therapy and management of these aspects.
Methods: As a pilot study for this investigation, 25 patients with Tuberous Sclerosis were assessed. The presence of psychological disorders in these patients was assessed using the TAND (Tuberous Sclerosis Associated Neuropsychiatric Disorders) checklist. The checklist was translated into Persian first, then back into English, and finally verified by the designer of the original checklist. Interviews with the patients' parents took place twice a week with the help of a caregiver, and the checklist was used to analyze the data.
Results: A high correlation was found between the parents' (or caregivers') evaluations of the checklist during the first and second distributions (with a Pearson value of 0.99 and P-value of 0.001). The coefficient of correlation for question eight was -0.76, indicating an inverse correlation. According to the parents' evaluation, the two-stage distribution of this checklist had a strong and respectable reliability with a Cronbach's alpha of 0.79.
Conclusion: Parents and faculty members generally view the reliability and repeatability of all questions in a satisfactory manner as complete and credible from a position of solidarity. |
| first_indexed | 2024-03-08T09:23:32Z |
| format | Article |
| id | doaj.art-edf8ef40b9fb4af0887d563dfd29d653 |
| institution | Directory Open Access Journal |
| issn | 2345-5047 2345-5055 |
| language | English |
| last_indexed | 2024-03-08T09:23:32Z |
| publishDate | 2024-01-01 |
| publisher | Mashhad University of Medical Sciences |
| record_format | Article |
| series | International Journal of Pediatrics |
| spelling | doaj.art-edf8ef40b9fb4af0887d563dfd29d6532024-01-31T10:52:29ZengMashhad University of Medical SciencesInternational Journal of Pediatrics2345-50472345-50552024-01-01121185011850510.22038/ijp.2024.75853.538223730Validation of the Persian Translation of the TAND Checklist in Children with Tuberous Sclerosis SyndromeGhazaleh Talati0Mehran Beiraghi Toosi1Reza Nejad Shahrokh Abadi2Farah Ashrafzadeh3Javad Akhoondian4Shahrbanoo Aali5Sheyla Kianifar6Shima Imannezhad7Narges Hashemi8Department of Pediatrics, school of Medicine, Mashhad University of Medical Sciences, Mashhad, IranDepartment of Pediatrics, school of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran.Student of Research Committee, Faculty of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran.Department of Pediatrics, school of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran.Department of Pediatrics, school of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran.Assistant Professor of Psychology, Faculty of Educational Science and Psychology, Ferdowsi University of Mashhad, Mashhad, Iran.Department of Pediatrics, school of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran.Department of Pediatrics, school of Medicine, Mashhad University of Medical Sciences, Mashhad, Iran.Department of Pediatric Neurology, Faculty of Medicine, Mashhad University of Medical Sciences, Mashhad, IranBackground: Tuberous Sclerosis Complex is an autosomal dominant heterogeneous disease that mostly affects the skin and nervous system. The goal of this study was to provide a framework for addressing these patients' psychological and behavioral issues, as well as the therapy and management of these aspects. Methods: As a pilot study for this investigation, 25 patients with Tuberous Sclerosis were assessed. The presence of psychological disorders in these patients was assessed using the TAND (Tuberous Sclerosis Associated Neuropsychiatric Disorders) checklist. The checklist was translated into Persian first, then back into English, and finally verified by the designer of the original checklist. Interviews with the patients' parents took place twice a week with the help of a caregiver, and the checklist was used to analyze the data. Results: A high correlation was found between the parents' (or caregivers') evaluations of the checklist during the first and second distributions (with a Pearson value of 0.99 and P-value of 0.001). The coefficient of correlation for question eight was -0.76, indicating an inverse correlation. According to the parents' evaluation, the two-stage distribution of this checklist had a strong and respectable reliability with a Cronbach's alpha of 0.79. Conclusion: Parents and faculty members generally view the reliability and repeatability of all questions in a satisfactory manner as complete and credible from a position of solidarity.https://ijp.mums.ac.ir/article_23730_f8903792fbf1df0dc67579c626df87ca.pdftuberous sclerosis,,,،neuropsychiatric,,,،pediatric neurology,,,،checklist,,,،psychological disorders |
| spellingShingle | Ghazaleh Talati Mehran Beiraghi Toosi Reza Nejad Shahrokh Abadi Farah Ashrafzadeh Javad Akhoondian Shahrbanoo Aali Sheyla Kianifar Shima Imannezhad Narges Hashemi Validation of the Persian Translation of the TAND Checklist in Children with Tuberous Sclerosis Syndrome International Journal of Pediatrics tuberous sclerosis,, ,،neuropsychiatric,, ,،pediatric neurology,, ,،checklist,, ,،psychological disorders |
| title | Validation of the Persian Translation of the TAND Checklist in Children with Tuberous Sclerosis Syndrome |
| title_full | Validation of the Persian Translation of the TAND Checklist in Children with Tuberous Sclerosis Syndrome |
| title_fullStr | Validation of the Persian Translation of the TAND Checklist in Children with Tuberous Sclerosis Syndrome |
| title_full_unstemmed | Validation of the Persian Translation of the TAND Checklist in Children with Tuberous Sclerosis Syndrome |
| title_short | Validation of the Persian Translation of the TAND Checklist in Children with Tuberous Sclerosis Syndrome |
| title_sort | validation of the persian translation of the tand checklist in children with tuberous sclerosis syndrome |
| topic | tuberous sclerosis,, ,،neuropsychiatric,, ,،pediatric neurology,, ,،checklist,, ,،psychological disorders |
| url | https://ijp.mums.ac.ir/article_23730_f8903792fbf1df0dc67579c626df87ca.pdf |
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