Correlation between burden and sleep quality in informal caregivers of infants with orofacial cleft

Abstract Objective: To evaluate the correlation between burden and sleep quality in caregivers of infants with cleft lip and/or palate. Methods: This descriptive cross-sectional study was carried out in a Brazilian tertiary public hospital between March and September 2020. The sample included the...

Full description

Bibliographic Details
Main Authors: Nayara Tomazi Batista, Ana Flávia Martinez, Gesiane Cristina Bom, Francely Tineli Farinha, Priscila Capelato Prado, Armando dos Santos Trettene
Format: Article
Language:English
Published: Sociedade de Pediatria de São Paulo 2022-11-01
Series:Revista Paulista de Pediatria
Subjects:
Online Access:http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0103-05822023000100419&lng=en&tlng=en
_version_ 1811220634790789120
author Nayara Tomazi Batista
Ana Flávia Martinez
Gesiane Cristina Bom
Francely Tineli Farinha
Priscila Capelato Prado
Armando dos Santos Trettene
author_facet Nayara Tomazi Batista
Ana Flávia Martinez
Gesiane Cristina Bom
Francely Tineli Farinha
Priscila Capelato Prado
Armando dos Santos Trettene
author_sort Nayara Tomazi Batista
collection DOAJ
description Abstract Objective: To evaluate the correlation between burden and sleep quality in caregivers of infants with cleft lip and/or palate. Methods: This descriptive cross-sectional study was carried out in a Brazilian tertiary public hospital between March and September 2020. The sample included the main informal, literate caregivers of infants with cleft lip and/or palate, aged 18 years or older. The instruments used were the Burden Interview Scale and the Pittsburgh Sleep Quality Index. Data were collected during the infants’ hospitalization. Statistical analysis adopted Pearson and Spearman correlations, with a 5% significance level. Results: A total of 31 informal caregivers participated in the study, most of them mothers (n=28; 90%), with a mean age of 30 years (standard deviation – SD=7.5), low socioeconomic status (n=20; 64%), who completed high school (n=19; 61%), were married (58%), had two children (n=15; 48%), and no employment relationship (n=18; 58%). A moderate correlation was found between sleep quality and burden (r=0.39; p=0.032) and between burden and subjective sleep quality (r=0.39; p=0.029), sleep latency (r=0.43; p=0.017), and daytime dysfunction (r=0.49; p<0.001). Conclusions: The study showed that the higher the burden, the lower the sleep quality. The findings indicate the need to plan and implement interventions to minimize the burden experienced by these informal caregivers in order to improve their sleep quality.
first_indexed 2024-04-12T07:45:02Z
format Article
id doaj.art-ee71b55273c145e380279c6e2d71ccdf
institution Directory Open Access Journal
issn 1984-0462
language English
last_indexed 2024-04-12T07:45:02Z
publishDate 2022-11-01
publisher Sociedade de Pediatria de São Paulo
record_format Article
series Revista Paulista de Pediatria
spelling doaj.art-ee71b55273c145e380279c6e2d71ccdf2022-12-22T03:41:44ZengSociedade de Pediatria de São PauloRevista Paulista de Pediatria1984-04622022-11-014110.1590/1984-0462/2023/41/2021352Correlation between burden and sleep quality in informal caregivers of infants with orofacial cleftNayara Tomazi Batistahttps://orcid.org/0000-0002-5343-5855Ana Flávia Martinezhttps://orcid.org/0000-0002-7919-1983Gesiane Cristina Bomhttps://orcid.org/0000-0003-1091-1767Francely Tineli Farinhahttps://orcid.org/0000-0002-1982-5024Priscila Capelato Pradohttps://orcid.org/0000-0003-1489-1783Armando dos Santos Trettenehttps://orcid.org/0000-0002-9772-857XAbstract Objective: To evaluate the correlation between burden and sleep quality in caregivers of infants with cleft lip and/or palate. Methods: This descriptive cross-sectional study was carried out in a Brazilian tertiary public hospital between March and September 2020. The sample included the main informal, literate caregivers of infants with cleft lip and/or palate, aged 18 years or older. The instruments used were the Burden Interview Scale and the Pittsburgh Sleep Quality Index. Data were collected during the infants’ hospitalization. Statistical analysis adopted Pearson and Spearman correlations, with a 5% significance level. Results: A total of 31 informal caregivers participated in the study, most of them mothers (n=28; 90%), with a mean age of 30 years (standard deviation – SD=7.5), low socioeconomic status (n=20; 64%), who completed high school (n=19; 61%), were married (58%), had two children (n=15; 48%), and no employment relationship (n=18; 58%). A moderate correlation was found between sleep quality and burden (r=0.39; p=0.032) and between burden and subjective sleep quality (r=0.39; p=0.029), sleep latency (r=0.43; p=0.017), and daytime dysfunction (r=0.49; p<0.001). Conclusions: The study showed that the higher the burden, the lower the sleep quality. The findings indicate the need to plan and implement interventions to minimize the burden experienced by these informal caregivers in order to improve their sleep quality.http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0103-05822023000100419&lng=en&tlng=enCaregiversSleepStress, psychologicalNursingCleft lipCleft palate
spellingShingle Nayara Tomazi Batista
Ana Flávia Martinez
Gesiane Cristina Bom
Francely Tineli Farinha
Priscila Capelato Prado
Armando dos Santos Trettene
Correlation between burden and sleep quality in informal caregivers of infants with orofacial cleft
Revista Paulista de Pediatria
Caregivers
Sleep
Stress, psychological
Nursing
Cleft lip
Cleft palate
title Correlation between burden and sleep quality in informal caregivers of infants with orofacial cleft
title_full Correlation between burden and sleep quality in informal caregivers of infants with orofacial cleft
title_fullStr Correlation between burden and sleep quality in informal caregivers of infants with orofacial cleft
title_full_unstemmed Correlation between burden and sleep quality in informal caregivers of infants with orofacial cleft
title_short Correlation between burden and sleep quality in informal caregivers of infants with orofacial cleft
title_sort correlation between burden and sleep quality in informal caregivers of infants with orofacial cleft
topic Caregivers
Sleep
Stress, psychological
Nursing
Cleft lip
Cleft palate
url http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0103-05822023000100419&lng=en&tlng=en
work_keys_str_mv AT nayaratomazibatista correlationbetweenburdenandsleepqualityininformalcaregiversofinfantswithorofacialcleft
AT anaflaviamartinez correlationbetweenburdenandsleepqualityininformalcaregiversofinfantswithorofacialcleft
AT gesianecristinabom correlationbetweenburdenandsleepqualityininformalcaregiversofinfantswithorofacialcleft
AT francelytinelifarinha correlationbetweenburdenandsleepqualityininformalcaregiversofinfantswithorofacialcleft
AT priscilacapelatoprado correlationbetweenburdenandsleepqualityininformalcaregiversofinfantswithorofacialcleft
AT armandodossantostrettene correlationbetweenburdenandsleepqualityininformalcaregiversofinfantswithorofacialcleft