Evidence-based recruitment strategies for clinical research: Study personnel’s and research participants’ perceptions about successful methods of outreach for a U.S. Autism-Research Cohort
Abstract Introduction: Under enrollment of participants in clinical research is costly and delays study completion to impact public health. Given that research personnel make decisions about which strategies to pursue and participants are the recipients of these efforts, we surveyed research staff...
| Main Authors: | , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Cambridge University Press
2024-01-01
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| Series: | Journal of Clinical and Translational Science |
| Subjects: | |
| Online Access: | https://www.cambridge.org/core/product/identifier/S2059866124005120/type/journal_article |
| _version_ | 1797198751496929280 |
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| author | Robin P. Goin-Kochel Ivana Lozano Gabrielle Duhon Gabriela Marzano Amy Daniels J. Kiely Law Katharine Diehl LeeAnne Green Snyder Pamela Feliciano Wendy K. Chung SPARK Consortium |
| author_facet | Robin P. Goin-Kochel Ivana Lozano Gabrielle Duhon Gabriela Marzano Amy Daniels J. Kiely Law Katharine Diehl LeeAnne Green Snyder Pamela Feliciano Wendy K. Chung SPARK Consortium |
| author_sort | Robin P. Goin-Kochel |
| collection | DOAJ |
| description |
Abstract
Introduction:
Under enrollment of participants in clinical research is costly and delays study completion to impact public health. Given that research personnel make decisions about which strategies to pursue and participants are the recipients of these efforts, we surveyed research staff (n = 52) and participants (n = 4,144) affiliated with SPARK (Simons Foundation Powering Autism for Knowledge) – the largest study of autism in the U.S. – to understand their perceptions of effective recruitment strategies.
Methods:
In Study 1, research personnel were asked to report recruitment strategies that they tried for SPARK and to indicate which ones they would and would not repeat/recommend. In Study 2, SPARK participants were asked to indicate all the ways they heard about the study prior to enrollment and which one was most influential in their decisions to enroll.
Results:
Staff rated speaking with a SPARK-study-team member (36.5%), speaking with a medical provider (19.2%), word of mouth (11.5%), and a live TV news story (11.5%) as the most successful strategies. Participants most often heard about SPARK via social media (47.0%), speaking with a medical provider (23.1%), and an online search (20.1%). Research personnel’s and participants’ views on effective recruitment strategies often differed, with the exception of speaking with a medical provider.
Conclusion:
Results suggest that a combination of strategies is likely to be most effective in reaching diverse audiences. Findings have implications for the selection of strategies that meet a study’s specific needs, as well as recruitment-strategy “combinations” that may enhance the influence of outreach efforts.
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| first_indexed | 2024-04-24T07:04:50Z |
| format | Article |
| id | doaj.art-ef327776bfc843108a7025f0a48539a7 |
| institution | Directory Open Access Journal |
| issn | 2059-8661 |
| language | English |
| last_indexed | 2024-04-24T07:04:50Z |
| publishDate | 2024-01-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | Journal of Clinical and Translational Science |
| spelling | doaj.art-ef327776bfc843108a7025f0a48539a72024-04-22T04:32:33ZengCambridge University PressJournal of Clinical and Translational Science2059-86612024-01-01810.1017/cts.2024.512Evidence-based recruitment strategies for clinical research: Study personnel’s and research participants’ perceptions about successful methods of outreach for a U.S. Autism-Research CohortRobin P. Goin-Kochel0https://orcid.org/0000-0001-6666-4369Ivana Lozano1Gabrielle Duhon2Gabriela Marzano3Amy Daniels4https://orcid.org/0000-0003-4319-7993J. Kiely Law5Katharine Diehl6LeeAnne Green Snyder7Pamela Feliciano8Wendy K. Chung9SPARK ConsortiumBaylor College of Medicine, Houston, TX, USA Texas Children’s Hospital, Houston, TX, USABaylor College of Medicine, Houston, TX, USA Texas Children’s Hospital, Houston, TX, USABaylor College of Medicine, Houston, TX, USA Texas Children’s Hospital, Houston, TX, USABaylor College of Medicine, Houston, TX, USA Texas Children’s Hospital, Houston, TX, USASimons Foundation, New York, NY, USA Boston Children’s Hospital, Harvard Medical School, Boston, MA, USASimons Foundation, New York, NY, USA Boston Children’s Hospital, Harvard Medical School, Boston, MA, USASimons Foundation, New York, NY, USA Boston Children’s Hospital, Harvard Medical School, Boston, MA, USASimons Foundation, New York, NY, USASimons Foundation, New York, NY, USA Boston Children’s Hospital, Harvard Medical School, Boston, MA, USASimons Foundation, New York, NY, USA Boston Children’s Hospital, Harvard Medical School, Boston, MA, USA Abstract Introduction: Under enrollment of participants in clinical research is costly and delays study completion to impact public health. Given that research personnel make decisions about which strategies to pursue and participants are the recipients of these efforts, we surveyed research staff (n = 52) and participants (n = 4,144) affiliated with SPARK (Simons Foundation Powering Autism for Knowledge) – the largest study of autism in the U.S. – to understand their perceptions of effective recruitment strategies. Methods: In Study 1, research personnel were asked to report recruitment strategies that they tried for SPARK and to indicate which ones they would and would not repeat/recommend. In Study 2, SPARK participants were asked to indicate all the ways they heard about the study prior to enrollment and which one was most influential in their decisions to enroll. Results: Staff rated speaking with a SPARK-study-team member (36.5%), speaking with a medical provider (19.2%), word of mouth (11.5%), and a live TV news story (11.5%) as the most successful strategies. Participants most often heard about SPARK via social media (47.0%), speaking with a medical provider (23.1%), and an online search (20.1%). Research personnel’s and participants’ views on effective recruitment strategies often differed, with the exception of speaking with a medical provider. Conclusion: Results suggest that a combination of strategies is likely to be most effective in reaching diverse audiences. Findings have implications for the selection of strategies that meet a study’s specific needs, as well as recruitment-strategy “combinations” that may enhance the influence of outreach efforts. https://www.cambridge.org/core/product/identifier/S2059866124005120/type/journal_articleResearch recruitmentparticipant enrollmentautismparent/caregiver |
| spellingShingle | Robin P. Goin-Kochel Ivana Lozano Gabrielle Duhon Gabriela Marzano Amy Daniels J. Kiely Law Katharine Diehl LeeAnne Green Snyder Pamela Feliciano Wendy K. Chung SPARK Consortium Evidence-based recruitment strategies for clinical research: Study personnel’s and research participants’ perceptions about successful methods of outreach for a U.S. Autism-Research Cohort Journal of Clinical and Translational Science Research recruitment participant enrollment autism parent/caregiver |
| title | Evidence-based recruitment strategies for clinical research: Study personnel’s and research participants’ perceptions about successful methods of outreach for a U.S. Autism-Research Cohort |
| title_full | Evidence-based recruitment strategies for clinical research: Study personnel’s and research participants’ perceptions about successful methods of outreach for a U.S. Autism-Research Cohort |
| title_fullStr | Evidence-based recruitment strategies for clinical research: Study personnel’s and research participants’ perceptions about successful methods of outreach for a U.S. Autism-Research Cohort |
| title_full_unstemmed | Evidence-based recruitment strategies for clinical research: Study personnel’s and research participants’ perceptions about successful methods of outreach for a U.S. Autism-Research Cohort |
| title_short | Evidence-based recruitment strategies for clinical research: Study personnel’s and research participants’ perceptions about successful methods of outreach for a U.S. Autism-Research Cohort |
| title_sort | evidence based recruitment strategies for clinical research study personnel s and research participants perceptions about successful methods of outreach for a u s autism research cohort |
| topic | Research recruitment participant enrollment autism parent/caregiver |
| url | https://www.cambridge.org/core/product/identifier/S2059866124005120/type/journal_article |
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