Developing a method to capture parental experience in a neonatal surgical centre in the context of COVID-19: a qualitative study
Introduction Improved parental experience is related to improved mental and physical health outcomes for the infant. The COVID-19 pandemic abruptly impacted on healthcare delivery and services need information to shape how to manage the disruption and recovery.Methods Our aim was to develop a system...
| Main Authors: | , , , , , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMJ Publishing Group
2022-07-01
|
| Series: | BMJ Paediatrics Open |
| Online Access: | https://bmjpaedsopen.bmj.com/content/6/1/e001434.full |
| _version_ | 1818006644660895744 |
|---|---|
| author | Liz McKechnie Jonathan Sutcliffe Elizabeth Lawson Hemma Chauhan Gurdeep Singh Sagoo Rebecca Kate Mernenko Anna Littlejohns Gary Latchford Emile Crouzen Waaka Moni-Nwinia Bhanumathi Lakshminarayanan Douglas McConachie John G McElwaine Fiona Metcalfe |
| author_facet | Liz McKechnie Jonathan Sutcliffe Elizabeth Lawson Hemma Chauhan Gurdeep Singh Sagoo Rebecca Kate Mernenko Anna Littlejohns Gary Latchford Emile Crouzen Waaka Moni-Nwinia Bhanumathi Lakshminarayanan Douglas McConachie John G McElwaine Fiona Metcalfe |
| author_sort | Liz McKechnie |
| collection | DOAJ |
| description | Introduction Improved parental experience is related to improved mental and physical health outcomes for the infant. The COVID-19 pandemic abruptly impacted on healthcare delivery and services need information to shape how to manage the disruption and recovery.Methods Our aim was to develop a systematic process to capture parents’ experience of their neonatal surgical healthcare journey during the pandemic. We identified relevant stakeholders and using semistructured interviews, we explored three key themes.(1) How to recruit and collect data from representative parents?(2) What questions should be asked?(3) How to disseminate results for service development?Results Responses indicated the need to involve ‘difficult to access groups’ (eg, first language not English, high social deprivation, low health literacy), defined the range of family and patient characteristics variables to be considered for representative responses (eg, antenatal diagnosis, disease complexity, number of siblings, single parent, parental health). The proposed questions were grouped into five main topics: information preadmission; in-patient experience; support during admission; the effect of COVID-19; discharge and posthospital experience. Recommendations for dissemination included local, regional and national fora as well as the need to feedback to participants about the changes made.Based on the analysis, we developed a semistructured interview which underwent cognitive testing, prepilot and pilot phase testing.Discussion This protocol is grounded in the views of relevant stakeholders to ensure it captures relevant information in a pragmatic but methodologically sound way. It will next be used to assess parental experience in a large neonatal surgical unit. We hope that the protocol could be adapted and used by other groups. |
| first_indexed | 2024-04-14T05:04:07Z |
| format | Article |
| id | doaj.art-ef69e548249149c5886133729938b91a |
| institution | Directory Open Access Journal |
| issn | 2399-9772 |
| language | English |
| last_indexed | 2024-04-14T05:04:07Z |
| publishDate | 2022-07-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Paediatrics Open |
| spelling | doaj.art-ef69e548249149c5886133729938b91a2022-12-22T02:10:49ZengBMJ Publishing GroupBMJ Paediatrics Open2399-97722022-07-016110.1136/bmjpo-2022-001434Developing a method to capture parental experience in a neonatal surgical centre in the context of COVID-19: a qualitative studyLiz McKechnie0Jonathan Sutcliffe1Elizabeth Lawson2Hemma Chauhan3Gurdeep Singh Sagoo4Rebecca Kate Mernenko5Anna Littlejohns6Gary Latchford7Emile Crouzen8Waaka Moni-Nwinia9Bhanumathi Lakshminarayanan10Douglas McConachie11John G McElwaine12Fiona Metcalfe13Neonatology, Leeds Teaching Hospitals NHS Trust, Leeds, UKPaediatric Surgery, Leeds General Infirmary, Leeds, UK2School of Psychological Sciences and Health, University of Strathclyde, Glasgow, UK1University of Medicine and Pharmacy ‘Carol Davila’ Bucharest, RomaniaAcademic Unit of Health Economics, University of Leeds, Leeds, UKDepartment of Paediatric Surgery, Leeds Children`s Hospital, Leeds, West Yorkshire, UKDepartment of Anaesthetics, Leeds Teaching Hospitals NHS Trust, Leeds, West Yorkshire, UKUniversity of Leeds, Leeds Institute of Health Sciences, Leeds, West Yorkshire, UKDepartment of Paediatric Surgery, Leeds Children`s Hospital, Leeds, West Yorkshire, UKDepartment of Paediatric Surgery, Leeds Children`s Hospital, Leeds, West Yorkshire, UKDepartment of Paediatric Surgery, Leeds Children`s Hospital, Leeds, West Yorkshire, UKUniversity of Leeds School of Medicine, Leeds, West Yorkshire, UKDepartment of Anaesthetics, Leeds Teaching Hospitals NHS Trust, Leeds, West Yorkshire, UKDepartment of Paediatric Surgery, Leeds Children`s Hospital, Leeds, West Yorkshire, UKIntroduction Improved parental experience is related to improved mental and physical health outcomes for the infant. The COVID-19 pandemic abruptly impacted on healthcare delivery and services need information to shape how to manage the disruption and recovery.Methods Our aim was to develop a systematic process to capture parents’ experience of their neonatal surgical healthcare journey during the pandemic. We identified relevant stakeholders and using semistructured interviews, we explored three key themes.(1) How to recruit and collect data from representative parents?(2) What questions should be asked?(3) How to disseminate results for service development?Results Responses indicated the need to involve ‘difficult to access groups’ (eg, first language not English, high social deprivation, low health literacy), defined the range of family and patient characteristics variables to be considered for representative responses (eg, antenatal diagnosis, disease complexity, number of siblings, single parent, parental health). The proposed questions were grouped into five main topics: information preadmission; in-patient experience; support during admission; the effect of COVID-19; discharge and posthospital experience. Recommendations for dissemination included local, regional and national fora as well as the need to feedback to participants about the changes made.Based on the analysis, we developed a semistructured interview which underwent cognitive testing, prepilot and pilot phase testing.Discussion This protocol is grounded in the views of relevant stakeholders to ensure it captures relevant information in a pragmatic but methodologically sound way. It will next be used to assess parental experience in a large neonatal surgical unit. We hope that the protocol could be adapted and used by other groups.https://bmjpaedsopen.bmj.com/content/6/1/e001434.full |
| spellingShingle | Liz McKechnie Jonathan Sutcliffe Elizabeth Lawson Hemma Chauhan Gurdeep Singh Sagoo Rebecca Kate Mernenko Anna Littlejohns Gary Latchford Emile Crouzen Waaka Moni-Nwinia Bhanumathi Lakshminarayanan Douglas McConachie John G McElwaine Fiona Metcalfe Developing a method to capture parental experience in a neonatal surgical centre in the context of COVID-19: a qualitative study BMJ Paediatrics Open |
| title | Developing a method to capture parental experience in a neonatal surgical centre in the context of COVID-19: a qualitative study |
| title_full | Developing a method to capture parental experience in a neonatal surgical centre in the context of COVID-19: a qualitative study |
| title_fullStr | Developing a method to capture parental experience in a neonatal surgical centre in the context of COVID-19: a qualitative study |
| title_full_unstemmed | Developing a method to capture parental experience in a neonatal surgical centre in the context of COVID-19: a qualitative study |
| title_short | Developing a method to capture parental experience in a neonatal surgical centre in the context of COVID-19: a qualitative study |
| title_sort | developing a method to capture parental experience in a neonatal surgical centre in the context of covid 19 a qualitative study |
| url | https://bmjpaedsopen.bmj.com/content/6/1/e001434.full |
| work_keys_str_mv | AT lizmckechnie developingamethodtocaptureparentalexperienceinaneonatalsurgicalcentreinthecontextofcovid19aqualitativestudy AT jonathansutcliffe developingamethodtocaptureparentalexperienceinaneonatalsurgicalcentreinthecontextofcovid19aqualitativestudy AT elizabethlawson developingamethodtocaptureparentalexperienceinaneonatalsurgicalcentreinthecontextofcovid19aqualitativestudy AT hemmachauhan developingamethodtocaptureparentalexperienceinaneonatalsurgicalcentreinthecontextofcovid19aqualitativestudy AT gurdeepsinghsagoo developingamethodtocaptureparentalexperienceinaneonatalsurgicalcentreinthecontextofcovid19aqualitativestudy AT rebeccakatemernenko developingamethodtocaptureparentalexperienceinaneonatalsurgicalcentreinthecontextofcovid19aqualitativestudy AT annalittlejohns developingamethodtocaptureparentalexperienceinaneonatalsurgicalcentreinthecontextofcovid19aqualitativestudy AT garylatchford developingamethodtocaptureparentalexperienceinaneonatalsurgicalcentreinthecontextofcovid19aqualitativestudy AT emilecrouzen developingamethodtocaptureparentalexperienceinaneonatalsurgicalcentreinthecontextofcovid19aqualitativestudy AT waakamoninwinia developingamethodtocaptureparentalexperienceinaneonatalsurgicalcentreinthecontextofcovid19aqualitativestudy AT bhanumathilakshminarayanan developingamethodtocaptureparentalexperienceinaneonatalsurgicalcentreinthecontextofcovid19aqualitativestudy AT douglasmcconachie developingamethodtocaptureparentalexperienceinaneonatalsurgicalcentreinthecontextofcovid19aqualitativestudy AT johngmcelwaine developingamethodtocaptureparentalexperienceinaneonatalsurgicalcentreinthecontextofcovid19aqualitativestudy AT fionametcalfe developingamethodtocaptureparentalexperienceinaneonatalsurgicalcentreinthecontextofcovid19aqualitativestudy |