The Impact of the CEDD-NET on the Evaluation of Rare Disorders: A Multicenter Scientific Research Platform in the Field of Pediatric Endocrinology
INTRODUCTION: The database http: //cedd.saglik-network.org (CEDD-NET) has been operating since 2013 in Turkey. All pediatric endocrinologists can propose projects to this network. The aim of our study was to determine the impact of CEDD-NET on the transformation of multicenter studies into scientifi...
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| Format: | Article |
| Language: | English |
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Galenos Yayincilik
2022-06-01
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| Series: | JCRPE |
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| Online Access: | https://jcrpe.org/jvi.aspx?pdir=jcrpe&plng=eng&un=JCRPE-91300&look4= |
| _version_ | 1797908859113701376 |
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| author | Samim Özen Aysun Ata Feyza Darendeliler |
| author_facet | Samim Özen Aysun Ata Feyza Darendeliler |
| author_sort | Samim Özen |
| collection | DOAJ |
| description | INTRODUCTION: The database http: //cedd.saglik-network.org (CEDD-NET) has been operating since 2013 in Turkey. All pediatric endocrinologists can propose projects to this network. The aim of our study was to determine the impact of CEDD-NET on the transformation of multicenter studies into scientific publications and assess the academic characteristics of the studies that have been transcribed into publication.
METHODS: All the studies that were opened to patient admission on the website between August 26, 2013 and March 1, 2021 were reviewed.
RESULTS: A total of 30 studies were accepted and opened for data entry. The median data collection period was 12 (1.5-24) months, while the median number of researchers participated was 23 (3-180), the median number of cases was 120 (26-192). The average cost was $2113 (1370-3118). Out of 30 studies, data entry was completed for 27. Sixteen publications were produced from 14 studies, 13 ot them have not published yet. The median time from the end of data entry to publication of the study was 686 (168-1608) days. While the median impact factor of the journals in which the studies were published was 1.803 (1.278-5.399), the median number of citations was 6.5 (0-49), and cited by 99 times in Web of Science indexed journals in total.
DISCUSSION AND CONCLUSION: CEDD-NET appears to be productive and effective as all the publications are of high quality that have been published in the Q1-Q2 categories. This study demonstrated the benefits and necessity of establishing nationwide databases, even covering more than one country, in specialized branches, such as pediatric endocrinology where rare diseases are of concern. |
| first_indexed | 2024-04-10T10:59:24Z |
| format | Article |
| id | doaj.art-f0266b5c932047a9ae7230b925eb9ce5 |
| institution | Directory Open Access Journal |
| issn | 1308-5727 1308-5735 |
| language | English |
| last_indexed | 2024-04-10T10:59:24Z |
| publishDate | 2022-06-01 |
| publisher | Galenos Yayincilik |
| record_format | Article |
| series | JCRPE |
| spelling | doaj.art-f0266b5c932047a9ae7230b925eb9ce52023-02-15T16:19:46ZengGalenos YayincilikJCRPE1308-57271308-57352022-06-0114221622010.4274/jcrpe.galenos.2022.2021-11-16The Impact of the CEDD-NET on the Evaluation of Rare Disorders: A Multicenter Scientific Research Platform in the Field of Pediatric EndocrinologySamim Özen0https://orcid.org/0000-0001-7037-2713Aysun Ata1https://orcid.org/0000-0002-6987-0923Feyza Darendeliler2https://orcid.org/0000-0003-4786-0780Ege University Faculty of Medicine, Department of Pediatric Endocrinology, İzmir, TurkeyUniversity of Health Sciences Turkey, Adana City Training and Research Hospital, Clinic of Pediatric Endocrinology, Adana, Turkeyİstanbul University, İstanbul Faculty of Medicine, Department of Pediatric Endocrinology, İstanbul, TurkeyINTRODUCTION: The database http: //cedd.saglik-network.org (CEDD-NET) has been operating since 2013 in Turkey. All pediatric endocrinologists can propose projects to this network. The aim of our study was to determine the impact of CEDD-NET on the transformation of multicenter studies into scientific publications and assess the academic characteristics of the studies that have been transcribed into publication. METHODS: All the studies that were opened to patient admission on the website between August 26, 2013 and March 1, 2021 were reviewed. RESULTS: A total of 30 studies were accepted and opened for data entry. The median data collection period was 12 (1.5-24) months, while the median number of researchers participated was 23 (3-180), the median number of cases was 120 (26-192). The average cost was $2113 (1370-3118). Out of 30 studies, data entry was completed for 27. Sixteen publications were produced from 14 studies, 13 ot them have not published yet. The median time from the end of data entry to publication of the study was 686 (168-1608) days. While the median impact factor of the journals in which the studies were published was 1.803 (1.278-5.399), the median number of citations was 6.5 (0-49), and cited by 99 times in Web of Science indexed journals in total. DISCUSSION AND CONCLUSION: CEDD-NET appears to be productive and effective as all the publications are of high quality that have been published in the Q1-Q2 categories. This study demonstrated the benefits and necessity of establishing nationwide databases, even covering more than one country, in specialized branches, such as pediatric endocrinology where rare diseases are of concern.https://jcrpe.org/jvi.aspx?pdir=jcrpe&plng=eng&un=JCRPE-91300&look4=nationwide studiespediatric endocrinologyrare diseasescedd-net |
| spellingShingle | Samim Özen Aysun Ata Feyza Darendeliler The Impact of the CEDD-NET on the Evaluation of Rare Disorders: A Multicenter Scientific Research Platform in the Field of Pediatric Endocrinology JCRPE nationwide studies pediatric endocrinology rare diseases cedd-net |
| title | The Impact of the CEDD-NET on the Evaluation of Rare Disorders: A Multicenter Scientific Research Platform in the Field of Pediatric Endocrinology |
| title_full | The Impact of the CEDD-NET on the Evaluation of Rare Disorders: A Multicenter Scientific Research Platform in the Field of Pediatric Endocrinology |
| title_fullStr | The Impact of the CEDD-NET on the Evaluation of Rare Disorders: A Multicenter Scientific Research Platform in the Field of Pediatric Endocrinology |
| title_full_unstemmed | The Impact of the CEDD-NET on the Evaluation of Rare Disorders: A Multicenter Scientific Research Platform in the Field of Pediatric Endocrinology |
| title_short | The Impact of the CEDD-NET on the Evaluation of Rare Disorders: A Multicenter Scientific Research Platform in the Field of Pediatric Endocrinology |
| title_sort | impact of the cedd net on the evaluation of rare disorders a multicenter scientific research platform in the field of pediatric endocrinology |
| topic | nationwide studies pediatric endocrinology rare diseases cedd-net |
| url | https://jcrpe.org/jvi.aspx?pdir=jcrpe&plng=eng&un=JCRPE-91300&look4= |
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