Caregiver-Reported Quality Measures and Their Correlates in Home Hospice Care
Background: A majority of hospice care is delivered at home, with significant caregiver involvement. Identifying factors associated with caregiver-reported quality measures could help improve hospice care in the United States. Objectives: To identify correlates of caregiver-reported quality measures...
| Main Authors: | , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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Mary Ann Liebert
2020-07-01
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| Series: | Palliative Medicine Reports |
| Subjects: | |
| Online Access: | https://www.liebertpub.com/doi/full/10.1089/PMR.2020.0055 |
| _version_ | 1827374143057690624 |
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| author | Veerawat Phongtankuel M.C. Reid Sara J. Czaja Jeanne Teresi Joseph P. Eimicke Jian X. Kong Holly Prigerson Ariel Shalev Ritchell Dignam Rosemary Baughn Ronald D. Adelman |
| author_facet | Veerawat Phongtankuel M.C. Reid Sara J. Czaja Jeanne Teresi Joseph P. Eimicke Jian X. Kong Holly Prigerson Ariel Shalev Ritchell Dignam Rosemary Baughn Ronald D. Adelman |
| author_sort | Veerawat Phongtankuel |
| collection | DOAJ |
| description | Background: A majority of hospice care is delivered at home, with significant caregiver involvement. Identifying factors associated with caregiver-reported quality measures could help improve hospice care in the United States.
Objectives: To identify correlates of caregiver-reported quality measures: burden, satisfaction, and quality of end-of-life (EoL) care in home hospice care.
Design: A cross-sectional study was conducted from April 2017 through February 2018.
Setting/Subjects: A nonprofit, urban hospice organization. We recruited caregivers whose patients were discharged from home hospice care. Eligible caregiver participants had to be 18 years or older, English-speaking, and listed as a primary caregiver at the time the patient was admitted to hospice.
Measures: The (1) short version of the Burden Scale for Family Caregivers; (2) Family Satisfaction with Care; and (3) Caregiver Evaluation of the Quality of End-Of-Life Care.
Results: Caregivers (n?=?391) had a mean age of 59 years and most were female (n?=?297, 76.0%), children of the patient (n?=?233, 59.7%), and non-Hispanic White (n?=?180, 46.0%). The mean age of home hospice patients was 83 years; a majority had a non-cancer diagnosis (n?=?235, 60.1%), were female (n?=?250, 63.9%), and were non-Hispanic White (n?=?210, 53.7%). Higher symptom scores were significantly associated with greater caregiver burden and lower satisfaction with care; but not lower quality of EoL care. Caregivers who were less comfortable managing patient symptoms during the last week on hospice had higher caregiver burden, lower caregiver satisfaction, and lower ratings of quality of EoL care.
Conclusion: Potentially modifiable symptom-related variables were correlated with caregiver-reported quality measures. Our study reinforces the important relationship between the perceived suffering/symptoms of patients and caregivers' hospice experiences. |
| first_indexed | 2024-03-08T11:28:29Z |
| format | Article |
| id | doaj.art-f03d86a054f54a95bc447adbee5f350d |
| institution | Directory Open Access Journal |
| issn | 2689-2820 |
| language | English |
| last_indexed | 2024-03-08T11:28:29Z |
| publishDate | 2020-07-01 |
| publisher | Mary Ann Liebert |
| record_format | Article |
| series | Palliative Medicine Reports |
| spelling | doaj.art-f03d86a054f54a95bc447adbee5f350d2024-01-26T04:51:46ZengMary Ann LiebertPalliative Medicine Reports2689-28202020-07-011111111810.1089/PMR.2020.0055Caregiver-Reported Quality Measures and Their Correlates in Home Hospice CareVeerawat PhongtankuelM.C. ReidSara J. CzajaJeanne TeresiJoseph P. EimickeJian X. KongHolly PrigersonAriel ShalevRitchell DignamRosemary BaughnRonald D. AdelmanBackground: A majority of hospice care is delivered at home, with significant caregiver involvement. Identifying factors associated with caregiver-reported quality measures could help improve hospice care in the United States. Objectives: To identify correlates of caregiver-reported quality measures: burden, satisfaction, and quality of end-of-life (EoL) care in home hospice care. Design: A cross-sectional study was conducted from April 2017 through February 2018. Setting/Subjects: A nonprofit, urban hospice organization. We recruited caregivers whose patients were discharged from home hospice care. Eligible caregiver participants had to be 18 years or older, English-speaking, and listed as a primary caregiver at the time the patient was admitted to hospice. Measures: The (1) short version of the Burden Scale for Family Caregivers; (2) Family Satisfaction with Care; and (3) Caregiver Evaluation of the Quality of End-Of-Life Care. Results: Caregivers (n?=?391) had a mean age of 59 years and most were female (n?=?297, 76.0%), children of the patient (n?=?233, 59.7%), and non-Hispanic White (n?=?180, 46.0%). The mean age of home hospice patients was 83 years; a majority had a non-cancer diagnosis (n?=?235, 60.1%), were female (n?=?250, 63.9%), and were non-Hispanic White (n?=?210, 53.7%). Higher symptom scores were significantly associated with greater caregiver burden and lower satisfaction with care; but not lower quality of EoL care. Caregivers who were less comfortable managing patient symptoms during the last week on hospice had higher caregiver burden, lower caregiver satisfaction, and lower ratings of quality of EoL care. Conclusion: Potentially modifiable symptom-related variables were correlated with caregiver-reported quality measures. Our study reinforces the important relationship between the perceived suffering/symptoms of patients and caregivers' hospice experiences.https://www.liebertpub.com/doi/full/10.1089/PMR.2020.0055caregivingend of lifehospicepalliative care |
| spellingShingle | Veerawat Phongtankuel M.C. Reid Sara J. Czaja Jeanne Teresi Joseph P. Eimicke Jian X. Kong Holly Prigerson Ariel Shalev Ritchell Dignam Rosemary Baughn Ronald D. Adelman Caregiver-Reported Quality Measures and Their Correlates in Home Hospice Care Palliative Medicine Reports caregiving end of life hospice palliative care |
| title | Caregiver-Reported Quality Measures and Their Correlates in Home Hospice Care |
| title_full | Caregiver-Reported Quality Measures and Their Correlates in Home Hospice Care |
| title_fullStr | Caregiver-Reported Quality Measures and Their Correlates in Home Hospice Care |
| title_full_unstemmed | Caregiver-Reported Quality Measures and Their Correlates in Home Hospice Care |
| title_short | Caregiver-Reported Quality Measures and Their Correlates in Home Hospice Care |
| title_sort | caregiver reported quality measures and their correlates in home hospice care |
| topic | caregiving end of life hospice palliative care |
| url | https://www.liebertpub.com/doi/full/10.1089/PMR.2020.0055 |
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