Engaging with patients in research on knowledge translation/implementation science methods: a self study
Plain English summary In this self-study we aimed to understand how members of research teams work together. We explored how research teams included patients and public members in studying research approaches (methods) that support the creation, sharing, and use of research results that matter to pa...
| Main Authors: | , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2022-08-01
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| Series: | Research Involvement and Engagement |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s40900-022-00375-5 |
| _version_ | 1811215539835502592 |
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| author | Martha L. P. MacLeod Jenny Leese Leana Garraway Nelly D. Oelke Sarah Munro Sacha Bailey Alison M. Hoens Sunny Loo Ana Valdovinos Ursula Wick Peter Zimmer Linda C. Li |
| author_facet | Martha L. P. MacLeod Jenny Leese Leana Garraway Nelly D. Oelke Sarah Munro Sacha Bailey Alison M. Hoens Sunny Loo Ana Valdovinos Ursula Wick Peter Zimmer Linda C. Li |
| author_sort | Martha L. P. MacLeod |
| collection | DOAJ |
| description | Plain English summary In this self-study we aimed to understand how members of research teams work together. We explored how research teams included patients and public members in studying research approaches (methods) that support the creation, sharing, and use of research results that matter to patients and the public (patient and public-oriented research). We analyzed interviews with 18 members of 4 teams and discussed the findings with each team. We then further refined the results and their interpretation with patients/public team members. We found that research teams had to deal with the uncertainty that is common for this type of research, which is often exploratory and focuses on processes. There needed to be a good match between patient/public members, the topic, and the team. Teams had to be flexible in how they worked together and they needed to address how power was shared within the team. Finally, the teams were affected by world events such as COVID and social unrest. Research team members had a chance to reflect and gain new understandings through the self-study. A key learning was that patients and public members bring their life experiences and world views to the project. They become researchers in their own right. When team members have a chance to reflect they can become more aware of their own and others’ talents, needs, and vulnerabilities, that awareness can help improve communication and teamwork. Patients and public members as co-researchers can bring new ways of understanding important features of knowledge translation and implementation science research approaches. |
| first_indexed | 2024-04-12T06:24:13Z |
| format | Article |
| id | doaj.art-f07fdea9a8a649a4978877f5f1cecc33 |
| institution | Directory Open Access Journal |
| issn | 2056-7529 |
| language | English |
| last_indexed | 2024-04-12T06:24:13Z |
| publishDate | 2022-08-01 |
| publisher | BMC |
| record_format | Article |
| series | Research Involvement and Engagement |
| spelling | doaj.art-f07fdea9a8a649a4978877f5f1cecc332022-12-22T03:44:13ZengBMCResearch Involvement and Engagement2056-75292022-08-018111510.1186/s40900-022-00375-5Engaging with patients in research on knowledge translation/implementation science methods: a self studyMartha L. P. MacLeod0Jenny Leese1Leana Garraway2Nelly D. Oelke3Sarah Munro4Sacha Bailey5Alison M. Hoens6Sunny Loo7Ana Valdovinos8Ursula Wick9Peter Zimmer10Linda C. Li11School of Nursing, University of Northern British ColumbiaSchool of Epidemiology and Public Health, University of OttawaHealth Research Institute, University of Northern British ColumbiaSchool of Nursing, University of British Columbia, OkanaganDepartment of Obstetrics and Gynaecology, University of British ColumbiaBC Centre for AbilityArthritis Research CanadaPatient Partner, Michael Smith Health Research BC, PaCER Certified, University of CalgaryDepartment of Obstetrics and Gynaecology, University of British ColumbiaUniversity of British ColumbiaUniversity of Northern British ColumbiaArthritis Research CanadaPlain English summary In this self-study we aimed to understand how members of research teams work together. We explored how research teams included patients and public members in studying research approaches (methods) that support the creation, sharing, and use of research results that matter to patients and the public (patient and public-oriented research). We analyzed interviews with 18 members of 4 teams and discussed the findings with each team. We then further refined the results and their interpretation with patients/public team members. We found that research teams had to deal with the uncertainty that is common for this type of research, which is often exploratory and focuses on processes. There needed to be a good match between patient/public members, the topic, and the team. Teams had to be flexible in how they worked together and they needed to address how power was shared within the team. Finally, the teams were affected by world events such as COVID and social unrest. Research team members had a chance to reflect and gain new understandings through the self-study. A key learning was that patients and public members bring their life experiences and world views to the project. They become researchers in their own right. When team members have a chance to reflect they can become more aware of their own and others’ talents, needs, and vulnerabilities, that awareness can help improve communication and teamwork. Patients and public members as co-researchers can bring new ways of understanding important features of knowledge translation and implementation science research approaches.https://doi.org/10.1186/s40900-022-00375-5Knowledge translationImplementation scienceMethods researchPatient and public researchPatient authorPatient-orientated research |
| spellingShingle | Martha L. P. MacLeod Jenny Leese Leana Garraway Nelly D. Oelke Sarah Munro Sacha Bailey Alison M. Hoens Sunny Loo Ana Valdovinos Ursula Wick Peter Zimmer Linda C. Li Engaging with patients in research on knowledge translation/implementation science methods: a self study Research Involvement and Engagement Knowledge translation Implementation science Methods research Patient and public research Patient author Patient-orientated research |
| title | Engaging with patients in research on knowledge translation/implementation science methods: a self study |
| title_full | Engaging with patients in research on knowledge translation/implementation science methods: a self study |
| title_fullStr | Engaging with patients in research on knowledge translation/implementation science methods: a self study |
| title_full_unstemmed | Engaging with patients in research on knowledge translation/implementation science methods: a self study |
| title_short | Engaging with patients in research on knowledge translation/implementation science methods: a self study |
| title_sort | engaging with patients in research on knowledge translation implementation science methods a self study |
| topic | Knowledge translation Implementation science Methods research Patient and public research Patient author Patient-orientated research |
| url | https://doi.org/10.1186/s40900-022-00375-5 |
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