The experiences and strategies of parents’ of adults with anorexia nervosa or bulimia nervosa: a qualitative study

Abstract Background Caring for an individual with an eating disorder involves guilt, distress and many extra burdens and unmet needs. This qualitative study explored the experiences of parents with adult daughters suffering from anorexia nervosa or bulimia nervosa and the strategies they adopted. A...

Full description

Bibliographic Details
Main Authors: Jannike Karlstad, Cathrine Fredriksen Moe, Mari Wattum, Berit Støre Brinchmann
Format: Article
Language:English
Published: BMC 2021-07-01
Series:BMC Psychiatry
Subjects:
Online Access:https://doi.org/10.1186/s12888-021-03345-5
_version_ 1818577459674611712
author Jannike Karlstad
Cathrine Fredriksen Moe
Mari Wattum
Berit Støre Brinchmann
author_facet Jannike Karlstad
Cathrine Fredriksen Moe
Mari Wattum
Berit Støre Brinchmann
author_sort Jannike Karlstad
collection DOAJ
description Abstract Background Caring for an individual with an eating disorder involves guilt, distress and many extra burdens and unmet needs. This qualitative study explored the experiences of parents with adult daughters suffering from anorexia nervosa or bulimia nervosa and the strategies they adopted. A subsidiary aim of the study was to explore the relationship between the caregivers’ perceived need for professional support and the support they reported receiving in practice from the health services. Methods Semi-structured interviews were conducted with 11 mothers and fathers from across Norway. Data collection, coding and analysis was conducted using the principles of constructivist grounded theory in an iterative process. The main concern shared by participants was identified by this process and their “solution” to the main concern then formed the content of the core category. Results ″Wearing all the hats″ emerged as the core category, indicating that the parents have to fulfil several roles to compensate the lack of help from health services. The three subcategories: “adapting to the illness”, “struggling for understanding and help” and “continuing to stay strong” described how the participants handled their situation as parents of adult daughters with eating disorders. Conclusions In daily life, the parents of adults with eating disorders have to attend to a wide range of caregiver tasks to help their ill daughters. This study suggests that the health services that treat adults with eating disorders should be coordinated, with a professional carer in charge. The parents need easy access to information about the illness and its treatment. They also need professional support for themselves in a demanding situation.
first_indexed 2024-12-16T06:30:15Z
format Article
id doaj.art-f0e13e74f1c3456ba594465d4f0e77db
institution Directory Open Access Journal
issn 1471-244X
language English
last_indexed 2024-12-16T06:30:15Z
publishDate 2021-07-01
publisher BMC
record_format Article
series BMC Psychiatry
spelling doaj.art-f0e13e74f1c3456ba594465d4f0e77db2022-12-21T22:40:54ZengBMCBMC Psychiatry1471-244X2021-07-0121111110.1186/s12888-021-03345-5The experiences and strategies of parents’ of adults with anorexia nervosa or bulimia nervosa: a qualitative studyJannike Karlstad0Cathrine Fredriksen Moe1Mari Wattum2Berit Støre Brinchmann3Faculty of Nursing and Health Sciences, Nord UniversityFaculty of Nursing and Health Sciences, Nord UniversityKUN Centre for equality and diversityFaculty of Nursing and Health Sciences, Nord UniversityAbstract Background Caring for an individual with an eating disorder involves guilt, distress and many extra burdens and unmet needs. This qualitative study explored the experiences of parents with adult daughters suffering from anorexia nervosa or bulimia nervosa and the strategies they adopted. A subsidiary aim of the study was to explore the relationship between the caregivers’ perceived need for professional support and the support they reported receiving in practice from the health services. Methods Semi-structured interviews were conducted with 11 mothers and fathers from across Norway. Data collection, coding and analysis was conducted using the principles of constructivist grounded theory in an iterative process. The main concern shared by participants was identified by this process and their “solution” to the main concern then formed the content of the core category. Results ″Wearing all the hats″ emerged as the core category, indicating that the parents have to fulfil several roles to compensate the lack of help from health services. The three subcategories: “adapting to the illness”, “struggling for understanding and help” and “continuing to stay strong” described how the participants handled their situation as parents of adult daughters with eating disorders. Conclusions In daily life, the parents of adults with eating disorders have to attend to a wide range of caregiver tasks to help their ill daughters. This study suggests that the health services that treat adults with eating disorders should be coordinated, with a professional carer in charge. The parents need easy access to information about the illness and its treatment. They also need professional support for themselves in a demanding situation.https://doi.org/10.1186/s12888-021-03345-5Anorexia nervosaBulimia nervosaParentsCaregiversHealth servicesQualitative research
spellingShingle Jannike Karlstad
Cathrine Fredriksen Moe
Mari Wattum
Berit Støre Brinchmann
The experiences and strategies of parents’ of adults with anorexia nervosa or bulimia nervosa: a qualitative study
BMC Psychiatry
Anorexia nervosa
Bulimia nervosa
Parents
Caregivers
Health services
Qualitative research
title The experiences and strategies of parents’ of adults with anorexia nervosa or bulimia nervosa: a qualitative study
title_full The experiences and strategies of parents’ of adults with anorexia nervosa or bulimia nervosa: a qualitative study
title_fullStr The experiences and strategies of parents’ of adults with anorexia nervosa or bulimia nervosa: a qualitative study
title_full_unstemmed The experiences and strategies of parents’ of adults with anorexia nervosa or bulimia nervosa: a qualitative study
title_short The experiences and strategies of parents’ of adults with anorexia nervosa or bulimia nervosa: a qualitative study
title_sort experiences and strategies of parents of adults with anorexia nervosa or bulimia nervosa a qualitative study
topic Anorexia nervosa
Bulimia nervosa
Parents
Caregivers
Health services
Qualitative research
url https://doi.org/10.1186/s12888-021-03345-5
work_keys_str_mv AT jannikekarlstad theexperiencesandstrategiesofparentsofadultswithanorexianervosaorbulimianervosaaqualitativestudy
AT cathrinefredriksenmoe theexperiencesandstrategiesofparentsofadultswithanorexianervosaorbulimianervosaaqualitativestudy
AT mariwattum theexperiencesandstrategiesofparentsofadultswithanorexianervosaorbulimianervosaaqualitativestudy
AT beritstørebrinchmann theexperiencesandstrategiesofparentsofadultswithanorexianervosaorbulimianervosaaqualitativestudy
AT jannikekarlstad experiencesandstrategiesofparentsofadultswithanorexianervosaorbulimianervosaaqualitativestudy
AT cathrinefredriksenmoe experiencesandstrategiesofparentsofadultswithanorexianervosaorbulimianervosaaqualitativestudy
AT mariwattum experiencesandstrategiesofparentsofadultswithanorexianervosaorbulimianervosaaqualitativestudy
AT beritstørebrinchmann experiencesandstrategiesofparentsofadultswithanorexianervosaorbulimianervosaaqualitativestudy