Reaching the “Hard-to-Reach” Sexual and Gender Diverse Communities for Population-Based Research in Cancer Prevention and Control: Methods for Online Survey Data Collection and Management
PurposeAround 5% of United States (U.S.) population identifies as Sexual and Gender Diverse (SGD), yet there is limited research around cancer prevention among these populations. We present multi-pronged, low-cost, and systematic recruitment strategies used to reach SGD communities in New Mexico (NM...
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| Format: | Article |
| Language: | English |
| Published: |
Frontiers Media S.A.
2022-06-01
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| Series: | Frontiers in Oncology |
| Subjects: | |
| Online Access: | https://www.frontiersin.org/articles/10.3389/fonc.2022.841951/full |
| _version_ | 1818161963337777152 |
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| author | Katie J. Myers Talya Jaffe Deborah A. Kanda V. Shane Pankratz V. Shane Pankratz Bernard Tawfik Bernard Tawfik Emily Wu Emily Wu Molly E. McClain Shiraz I. Mishra Shiraz I. Mishra Miria Kano Miria Kano Purnima Madhivanan Purnima Madhivanan Purnima Madhivanan Prajakta Adsul Prajakta Adsul |
| author_facet | Katie J. Myers Talya Jaffe Deborah A. Kanda V. Shane Pankratz V. Shane Pankratz Bernard Tawfik Bernard Tawfik Emily Wu Emily Wu Molly E. McClain Shiraz I. Mishra Shiraz I. Mishra Miria Kano Miria Kano Purnima Madhivanan Purnima Madhivanan Purnima Madhivanan Prajakta Adsul Prajakta Adsul |
| author_sort | Katie J. Myers |
| collection | DOAJ |
| description | PurposeAround 5% of United States (U.S.) population identifies as Sexual and Gender Diverse (SGD), yet there is limited research around cancer prevention among these populations. We present multi-pronged, low-cost, and systematic recruitment strategies used to reach SGD communities in New Mexico (NM), a state that is both largely rural and racially/ethnically classified as a “majority-minority” state.MethodsOur recruitment focused on using: (1) Every Door Direct Mail (EDDM) program, by the United States Postal Services (USPS); (2) Google and Facebook advertisements; (3) Organizational outreach via emails to publicly available SGD-friendly business contacts; (4) Personal outreach via flyers at clinical and community settings across NM. Guided by previous research, we provide detailed descriptions on using strategies to check for fraudulent and suspicious online responses, that ensure data integrity.ResultsA total of 27,369 flyers were distributed through the EDDM program and 436,177 impressions were made through the Google and Facebook ads. We received a total of 6,920 responses on the eligibility survey. For the 5,037 eligible respondents, we received 3,120 (61.9%) complete responses. Of these, 13% (406/3120) were fraudulent/suspicious based on research-informed criteria and were removed. Final analysis included 2,534 respondents, of which the majority (59.9%) reported hearing about the study from social media. Of the respondents, 49.5% were between 31-40 years, 39.5% were Black, Hispanic, or American Indian/Alaskan Native, and 45.9% had an annual household income below $50,000. Over half (55.3%) were assigned male, 40.4% were assigned female, and 4.3% were assigned intersex at birth. Transgender respondents made up 10.6% (n=267) of the respondents. In terms of sexual orientation, 54.1% (n=1371) reported being gay or lesbian, 30% (n=749) bisexual, and 15.8% (n=401) queer. A total of 756 (29.8%) respondents reported receiving a cancer diagnosis and among screen-eligible respondents, 66.2% reported ever having a Pap, 78.6% reported ever having a mammogram, and 84.1% reported ever having a colonoscopy. Over half of eligible respondents (58.7%) reported receiving Human Papillomavirus vaccinations.ConclusionStudy findings showcase effective strategies to reach communities, maximize data quality, and prevent the misrepresentation of data critical to improve health in SGD communities. |
| first_indexed | 2024-12-11T16:26:07Z |
| format | Article |
| id | doaj.art-f19dfda98ef546febda11b2b64700949 |
| institution | Directory Open Access Journal |
| issn | 2234-943X |
| language | English |
| last_indexed | 2024-12-11T16:26:07Z |
| publishDate | 2022-06-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Oncology |
| spelling | doaj.art-f19dfda98ef546febda11b2b647009492022-12-22T00:58:44ZengFrontiers Media S.A.Frontiers in Oncology2234-943X2022-06-011210.3389/fonc.2022.841951841951Reaching the “Hard-to-Reach” Sexual and Gender Diverse Communities for Population-Based Research in Cancer Prevention and Control: Methods for Online Survey Data Collection and ManagementKatie J. Myers0Talya Jaffe1Deborah A. Kanda2V. Shane Pankratz3V. Shane Pankratz4Bernard Tawfik5Bernard Tawfik6Emily Wu7Emily Wu8Molly E. McClain9Shiraz I. Mishra10Shiraz I. Mishra11Miria Kano12Miria Kano13Purnima Madhivanan14Purnima Madhivanan15Purnima Madhivanan16Prajakta Adsul17Prajakta Adsul18Comprehensive Cancer Center, University of New Mexico, Albuquerque, NM, United StatesComprehensive Cancer Center, University of New Mexico, Albuquerque, NM, United StatesComprehensive Cancer Center, University of New Mexico, Albuquerque, NM, United StatesComprehensive Cancer Center, University of New Mexico, Albuquerque, NM, United StatesDepartment of Internal Medicine, School of Medicine, University of New Mexico, Albuquerque, NM, United StatesComprehensive Cancer Center, University of New Mexico, Albuquerque, NM, United StatesDepartment of Internal Medicine, School of Medicine, University of New Mexico, Albuquerque, NM, United StatesComprehensive Cancer Center, University of New Mexico, Albuquerque, NM, United StatesDepartment of Obstetrics and Gynecology, School of Medicine, University of New Mexico, Albuquerque, NM, United StatesDepartment of Family and Community Medicine, School of Medicine, University of New Mexico, Albuquerque, NM, United StatesComprehensive Cancer Center, University of New Mexico, Albuquerque, NM, United StatesDepartment of Pediatrics, School of Medicine, University of New Mexico, Albuquerque, NM, United StatesComprehensive Cancer Center, University of New Mexico, Albuquerque, NM, United StatesDepartment of Internal Medicine, School of Medicine, University of New Mexico, Albuquerque, NM, United StatesDepartment of Health Promotion Sciences, Mel & Enid Zuckerman College of Public Health University of Arizona, Tucson, AZ, United StatesComprehensive Cancer Center, University of Arizona, Tucson, AZ, United StatesPublic Health Research Institute of India, Mysuru, IndiaComprehensive Cancer Center, University of New Mexico, Albuquerque, NM, United StatesDepartment of Internal Medicine, School of Medicine, University of New Mexico, Albuquerque, NM, United StatesPurposeAround 5% of United States (U.S.) population identifies as Sexual and Gender Diverse (SGD), yet there is limited research around cancer prevention among these populations. We present multi-pronged, low-cost, and systematic recruitment strategies used to reach SGD communities in New Mexico (NM), a state that is both largely rural and racially/ethnically classified as a “majority-minority” state.MethodsOur recruitment focused on using: (1) Every Door Direct Mail (EDDM) program, by the United States Postal Services (USPS); (2) Google and Facebook advertisements; (3) Organizational outreach via emails to publicly available SGD-friendly business contacts; (4) Personal outreach via flyers at clinical and community settings across NM. Guided by previous research, we provide detailed descriptions on using strategies to check for fraudulent and suspicious online responses, that ensure data integrity.ResultsA total of 27,369 flyers were distributed through the EDDM program and 436,177 impressions were made through the Google and Facebook ads. We received a total of 6,920 responses on the eligibility survey. For the 5,037 eligible respondents, we received 3,120 (61.9%) complete responses. Of these, 13% (406/3120) were fraudulent/suspicious based on research-informed criteria and were removed. Final analysis included 2,534 respondents, of which the majority (59.9%) reported hearing about the study from social media. Of the respondents, 49.5% were between 31-40 years, 39.5% were Black, Hispanic, or American Indian/Alaskan Native, and 45.9% had an annual household income below $50,000. Over half (55.3%) were assigned male, 40.4% were assigned female, and 4.3% were assigned intersex at birth. Transgender respondents made up 10.6% (n=267) of the respondents. In terms of sexual orientation, 54.1% (n=1371) reported being gay or lesbian, 30% (n=749) bisexual, and 15.8% (n=401) queer. A total of 756 (29.8%) respondents reported receiving a cancer diagnosis and among screen-eligible respondents, 66.2% reported ever having a Pap, 78.6% reported ever having a mammogram, and 84.1% reported ever having a colonoscopy. Over half of eligible respondents (58.7%) reported receiving Human Papillomavirus vaccinations.ConclusionStudy findings showcase effective strategies to reach communities, maximize data quality, and prevent the misrepresentation of data critical to improve health in SGD communities.https://www.frontiersin.org/articles/10.3389/fonc.2022.841951/fullcancer screening (MeSH)sexual orientationgender identity (MeSH)recruitmentcancercancer prevention |
| spellingShingle | Katie J. Myers Talya Jaffe Deborah A. Kanda V. Shane Pankratz V. Shane Pankratz Bernard Tawfik Bernard Tawfik Emily Wu Emily Wu Molly E. McClain Shiraz I. Mishra Shiraz I. Mishra Miria Kano Miria Kano Purnima Madhivanan Purnima Madhivanan Purnima Madhivanan Prajakta Adsul Prajakta Adsul Reaching the “Hard-to-Reach” Sexual and Gender Diverse Communities for Population-Based Research in Cancer Prevention and Control: Methods for Online Survey Data Collection and Management Frontiers in Oncology cancer screening (MeSH) sexual orientation gender identity (MeSH) recruitment cancer cancer prevention |
| title | Reaching the “Hard-to-Reach” Sexual and Gender Diverse Communities for Population-Based Research in Cancer Prevention and Control: Methods for Online Survey Data Collection and Management |
| title_full | Reaching the “Hard-to-Reach” Sexual and Gender Diverse Communities for Population-Based Research in Cancer Prevention and Control: Methods for Online Survey Data Collection and Management |
| title_fullStr | Reaching the “Hard-to-Reach” Sexual and Gender Diverse Communities for Population-Based Research in Cancer Prevention and Control: Methods for Online Survey Data Collection and Management |
| title_full_unstemmed | Reaching the “Hard-to-Reach” Sexual and Gender Diverse Communities for Population-Based Research in Cancer Prevention and Control: Methods for Online Survey Data Collection and Management |
| title_short | Reaching the “Hard-to-Reach” Sexual and Gender Diverse Communities for Population-Based Research in Cancer Prevention and Control: Methods for Online Survey Data Collection and Management |
| title_sort | reaching the hard to reach sexual and gender diverse communities for population based research in cancer prevention and control methods for online survey data collection and management |
| topic | cancer screening (MeSH) sexual orientation gender identity (MeSH) recruitment cancer cancer prevention |
| url | https://www.frontiersin.org/articles/10.3389/fonc.2022.841951/full |
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