The experience of patients and family caregivers during hospital-at-home in France
Abstract Background Public health policies tend to generalize the use of Hospital-At-Home (HAH) to answer the growing will of patients to be treated or to die at home. HAH is a model of care that provides acute-level services in the patient’s home with the interventions of variety of health care pro...
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| Format: | Article |
| Language: | English |
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BMC
2019-07-01
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| Series: | BMC Health Services Research |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s12913-019-4295-7 |
| _version_ | 1819095758144536576 |
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| author | Hélène Rossinot Odile Marquestaut Matthieu de Stampa |
| author_facet | Hélène Rossinot Odile Marquestaut Matthieu de Stampa |
| author_sort | Hélène Rossinot |
| collection | DOAJ |
| description | Abstract Background Public health policies tend to generalize the use of Hospital-At-Home (HAH) to answer the growing will of patients to be treated or to die at home. HAH is a model of care that provides acute-level services in the patient’s home with the interventions of variety of health care professionals. Relatives participate also in the interventions by helping for sick patients at home, but we lack data on the care of patients and caregivers in HAH. The aim of this study was to make an inventory of the experiences of patients and family caregivers in HAH. Methods The research was qualitative using nineteen semi-directed interviews from nine patients and ten caregivers of one care unit of Greater Paris University Hospitals’ HAH, and the grounded theory was used to analyze the transcripts. Caregivers were also asked, after the interview, to fill in the Zarit Burden Inventory. Results HAH remained mostly unknown for patients and caregivers before the admission proposition and the outlook of being admitted in HAH was perceived as positive, for both of them. Caregivers had a versatile role throughout HAH, leading to situations of suffering, but also had sources of support. The return home was considered satisfactory by both caregivers and patients, related to the quality of care and increased morale despite HAH’s organizational constraints. We noted an impact of HAH on the relationship between the patient and the caregiver(s), but caused by multiple factors: the fact that the care takes places at home, its consequences but also the disease itself. Conclusion HAH strongly involved the patient’s caregiver(s) all along the process. HAH’s development necessitates to associate both patients and caregivers and to take into account their needs at every step. This study highlights the need to better assess the ability of the caregiver to cope with his or her relative in HAH with acute and subacute care at home. |
| first_indexed | 2024-12-21T23:48:23Z |
| format | Article |
| id | doaj.art-f1a54843089942d6a12acb471f50300a |
| institution | Directory Open Access Journal |
| issn | 1472-6963 |
| language | English |
| last_indexed | 2024-12-21T23:48:23Z |
| publishDate | 2019-07-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Health Services Research |
| spelling | doaj.art-f1a54843089942d6a12acb471f50300a2022-12-21T18:46:00ZengBMCBMC Health Services Research1472-69632019-07-0119111010.1186/s12913-019-4295-7The experience of patients and family caregivers during hospital-at-home in FranceHélène Rossinot0Odile Marquestaut1Matthieu de Stampa2Publique Hôpitaux de Paris (AP-HP), Hospitalisation à Domicile (HAD)Publique Hôpitaux de Paris (AP-HP), Hospitalisation à Domicile (HAD)Publique Hôpitaux de Paris (AP-HP), Hospitalisation à Domicile (HAD)Abstract Background Public health policies tend to generalize the use of Hospital-At-Home (HAH) to answer the growing will of patients to be treated or to die at home. HAH is a model of care that provides acute-level services in the patient’s home with the interventions of variety of health care professionals. Relatives participate also in the interventions by helping for sick patients at home, but we lack data on the care of patients and caregivers in HAH. The aim of this study was to make an inventory of the experiences of patients and family caregivers in HAH. Methods The research was qualitative using nineteen semi-directed interviews from nine patients and ten caregivers of one care unit of Greater Paris University Hospitals’ HAH, and the grounded theory was used to analyze the transcripts. Caregivers were also asked, after the interview, to fill in the Zarit Burden Inventory. Results HAH remained mostly unknown for patients and caregivers before the admission proposition and the outlook of being admitted in HAH was perceived as positive, for both of them. Caregivers had a versatile role throughout HAH, leading to situations of suffering, but also had sources of support. The return home was considered satisfactory by both caregivers and patients, related to the quality of care and increased morale despite HAH’s organizational constraints. We noted an impact of HAH on the relationship between the patient and the caregiver(s), but caused by multiple factors: the fact that the care takes places at home, its consequences but also the disease itself. Conclusion HAH strongly involved the patient’s caregiver(s) all along the process. HAH’s development necessitates to associate both patients and caregivers and to take into account their needs at every step. This study highlights the need to better assess the ability of the caregiver to cope with his or her relative in HAH with acute and subacute care at home.http://link.springer.com/article/10.1186/s12913-019-4295-7Hospital at homeCaregivers and patients at homeQuality of lifeHealthcare organization |
| spellingShingle | Hélène Rossinot Odile Marquestaut Matthieu de Stampa The experience of patients and family caregivers during hospital-at-home in France BMC Health Services Research Hospital at home Caregivers and patients at home Quality of life Healthcare organization |
| title | The experience of patients and family caregivers during hospital-at-home in France |
| title_full | The experience of patients and family caregivers during hospital-at-home in France |
| title_fullStr | The experience of patients and family caregivers during hospital-at-home in France |
| title_full_unstemmed | The experience of patients and family caregivers during hospital-at-home in France |
| title_short | The experience of patients and family caregivers during hospital-at-home in France |
| title_sort | experience of patients and family caregivers during hospital at home in france |
| topic | Hospital at home Caregivers and patients at home Quality of life Healthcare organization |
| url | http://link.springer.com/article/10.1186/s12913-019-4295-7 |
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