Cross-cultural translation, reliability and validity of the Thai version of the Patient‑Reported Outcomes Measurement Information System (PROMIS) Parent Proxy Upper Extremity Short Form 8a in children with congenital upper extremity anomalies
Abstract Background The PROMIS Parent Proxy Upper Extremity Short Form 8a version 2 (PROMIS Parent Proxy UE-SF) is one of the most commonly used self-assessment questionnaires for evaluating function in children with congenital upper extremity anomalies. However, this English questionnaire is diffic...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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BMC
2023-06-01
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| Series: | Health and Quality of Life Outcomes |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12955-023-02141-x |
| _version_ | 1797795483983282176 |
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| author | Pobe Luangjarmekorn Pongsathorn Sitthisen Vanasiri Kuptniratsaikul Pravit Kitidumrongsook |
| author_facet | Pobe Luangjarmekorn Pongsathorn Sitthisen Vanasiri Kuptniratsaikul Pravit Kitidumrongsook |
| author_sort | Pobe Luangjarmekorn |
| collection | DOAJ |
| description | Abstract Background The PROMIS Parent Proxy Upper Extremity Short Form 8a version 2 (PROMIS Parent Proxy UE-SF) is one of the most commonly used self-assessment questionnaires for evaluating function in children with congenital upper extremity anomalies. However, this English questionnaire is difficult for Thai parents to complete. The purpose of this study is to translate the PROMIS Parent Proxy UE-SF into Thai and test its reliability and validity. Methods The PROMIS Parent Proxy UE-SF was translated into Thai using FACIT translation methodology. This version and the Thai version of the Michigan Hand Questionnaire (Thai-MHQ) were used to evaluate 30 Thai children with different types of congenital upper extremity anomalies. The reliability and validity of the Thai-PROMIS Parent Proxy UE-SF were evaluated by test-and-retest with the intraclass correlation coefficient (ICC) and Cronbach’s alpha coefficient. Correlations between the Thai-PROMIS Parent Proxy UE-SF and Thai-MHQ were analysed by Pearson’s correlation coefficients. Results The children’s mean age was 4.47 ± 2.08 years (range 1–9 years). The main diagnoses included thumb duplication (11 children), syndactyly (4 children)4, congenital trigger thumb (3 children) and obstetric brachial plexus palsy (3 children). The children’s parents completed the questionnaires, taking 164.23 ± 22.58 s for the Thai-PROMIS and 337.8 ± 49.37 s for the Thai-MHQ. The test-retest reliability of Thai-PROMIS evaluated by ICCs, was 0.9909 (good reliability), and the Cronbach’s alpha of all items was 0.923. The Pearson’s correlation coefficient between the Thai-PROMIS and Thai-MHQ showed a strong correlation with Domain 2 (activities of daily living, r = 0.7432) and a moderate correlation with the overall Thai-MHQ score (r = 0.699). Conclusions The Thai-PROMIS Parent Proxy UE-SF is a valid, reliable and easy-to-use patient-reported outcome measure for assessing function in children with congenital upper extremity anomalies. |
| first_indexed | 2024-03-13T03:19:40Z |
| format | Article |
| id | doaj.art-f1cb6a4fd469450b9cd14cecbdff9919 |
| institution | Directory Open Access Journal |
| issn | 1477-7525 |
| language | English |
| last_indexed | 2024-03-13T03:19:40Z |
| publishDate | 2023-06-01 |
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| record_format | Article |
| series | Health and Quality of Life Outcomes |
| spelling | doaj.art-f1cb6a4fd469450b9cd14cecbdff99192023-06-25T11:29:55ZengBMCHealth and Quality of Life Outcomes1477-75252023-06-012111710.1186/s12955-023-02141-xCross-cultural translation, reliability and validity of the Thai version of the Patient‑Reported Outcomes Measurement Information System (PROMIS) Parent Proxy Upper Extremity Short Form 8a in children with congenital upper extremity anomaliesPobe Luangjarmekorn0Pongsathorn Sitthisen1Vanasiri Kuptniratsaikul2Pravit Kitidumrongsook3Department of Orthopaedics, Faculty of Medicine, Chulalongkorn University, King Chulalongkorn Memorial HospitalDepartment of Orthopaedics, Faculty of Medicine, Chulalongkorn University, King Chulalongkorn Memorial HospitalDepartment of Orthopaedics, Faculty of Medicine, Chulalongkorn University, King Chulalongkorn Memorial HospitalDepartment of Orthopaedics, Faculty of Medicine, Chulalongkorn University, King Chulalongkorn Memorial HospitalAbstract Background The PROMIS Parent Proxy Upper Extremity Short Form 8a version 2 (PROMIS Parent Proxy UE-SF) is one of the most commonly used self-assessment questionnaires for evaluating function in children with congenital upper extremity anomalies. However, this English questionnaire is difficult for Thai parents to complete. The purpose of this study is to translate the PROMIS Parent Proxy UE-SF into Thai and test its reliability and validity. Methods The PROMIS Parent Proxy UE-SF was translated into Thai using FACIT translation methodology. This version and the Thai version of the Michigan Hand Questionnaire (Thai-MHQ) were used to evaluate 30 Thai children with different types of congenital upper extremity anomalies. The reliability and validity of the Thai-PROMIS Parent Proxy UE-SF were evaluated by test-and-retest with the intraclass correlation coefficient (ICC) and Cronbach’s alpha coefficient. Correlations between the Thai-PROMIS Parent Proxy UE-SF and Thai-MHQ were analysed by Pearson’s correlation coefficients. Results The children’s mean age was 4.47 ± 2.08 years (range 1–9 years). The main diagnoses included thumb duplication (11 children), syndactyly (4 children)4, congenital trigger thumb (3 children) and obstetric brachial plexus palsy (3 children). The children’s parents completed the questionnaires, taking 164.23 ± 22.58 s for the Thai-PROMIS and 337.8 ± 49.37 s for the Thai-MHQ. The test-retest reliability of Thai-PROMIS evaluated by ICCs, was 0.9909 (good reliability), and the Cronbach’s alpha of all items was 0.923. The Pearson’s correlation coefficient between the Thai-PROMIS and Thai-MHQ showed a strong correlation with Domain 2 (activities of daily living, r = 0.7432) and a moderate correlation with the overall Thai-MHQ score (r = 0.699). Conclusions The Thai-PROMIS Parent Proxy UE-SF is a valid, reliable and easy-to-use patient-reported outcome measure for assessing function in children with congenital upper extremity anomalies.https://doi.org/10.1186/s12955-023-02141-xPROMISParent proxyUpper extremitiesThaiTranslation |
| spellingShingle | Pobe Luangjarmekorn Pongsathorn Sitthisen Vanasiri Kuptniratsaikul Pravit Kitidumrongsook Cross-cultural translation, reliability and validity of the Thai version of the Patient‑Reported Outcomes Measurement Information System (PROMIS) Parent Proxy Upper Extremity Short Form 8a in children with congenital upper extremity anomalies Health and Quality of Life Outcomes PROMIS Parent proxy Upper extremities Thai Translation |
| title | Cross-cultural translation, reliability and validity of the Thai version of the Patient‑Reported Outcomes Measurement Information System (PROMIS) Parent Proxy Upper Extremity Short Form 8a in children with congenital upper extremity anomalies |
| title_full | Cross-cultural translation, reliability and validity of the Thai version of the Patient‑Reported Outcomes Measurement Information System (PROMIS) Parent Proxy Upper Extremity Short Form 8a in children with congenital upper extremity anomalies |
| title_fullStr | Cross-cultural translation, reliability and validity of the Thai version of the Patient‑Reported Outcomes Measurement Information System (PROMIS) Parent Proxy Upper Extremity Short Form 8a in children with congenital upper extremity anomalies |
| title_full_unstemmed | Cross-cultural translation, reliability and validity of the Thai version of the Patient‑Reported Outcomes Measurement Information System (PROMIS) Parent Proxy Upper Extremity Short Form 8a in children with congenital upper extremity anomalies |
| title_short | Cross-cultural translation, reliability and validity of the Thai version of the Patient‑Reported Outcomes Measurement Information System (PROMIS) Parent Proxy Upper Extremity Short Form 8a in children with congenital upper extremity anomalies |
| title_sort | cross cultural translation reliability and validity of the thai version of the patient reported outcomes measurement information system promis parent proxy upper extremity short form 8a in children with congenital upper extremity anomalies |
| topic | PROMIS Parent proxy Upper extremities Thai Translation |
| url | https://doi.org/10.1186/s12955-023-02141-x |
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