Practices, challenges, and opportunities when addressing the palliative care needs of people living with dementia: Specialty memory care provider perspectives
Abstract Introduction Palliative care focuses on reducing suffering and improving quality of life for individuals with serious illness and their families. In an effort to develop palliative care interventions for specialty memory care clinics, this study characterizes memory care providers’ perspect...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Wiley
2021-01-01
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| Series: | Alzheimer’s & Dementia: Translational Research & Clinical Interventions |
| Subjects: | |
| Online Access: | https://doi.org/10.1002/trc2.12144 |
| _version_ | 1798022884328734720 |
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| author | Alissa Bernstein Sideman Krista L. Harrison Sarah B. Garrett Georges Naasan Dementia Palliative Care Writing Group Christine S. Ritchie |
| author_facet | Alissa Bernstein Sideman Krista L. Harrison Sarah B. Garrett Georges Naasan Dementia Palliative Care Writing Group Christine S. Ritchie |
| author_sort | Alissa Bernstein Sideman |
| collection | DOAJ |
| description | Abstract Introduction Palliative care focuses on reducing suffering and improving quality of life for individuals with serious illness and their families. In an effort to develop palliative care interventions for specialty memory care clinics, this study characterizes memory care providers’ perspectives on addressing palliative care needs of people living with dementia (PLWD). Methods Qualitative interviews with specialty memory care providers were followed by thematic analysis by a multidisciplinary research team. Results Provider approaches overlap with key domains of palliative care. Approaches unique to dementia include having a detailed understanding of dementia syndromes, behavioral symptoms, and caregiver burden. Challenges were identified related to disease progression, provider‐level factors, and systems and cultural issues. Respondents identified training needed to strengthen a palliative care approach. Discussion There are many strengths of using memory care teams to address palliative care needs of PLWD. However, they may require additional knowledge and training to strengthen their work. |
| first_indexed | 2024-04-11T17:37:15Z |
| format | Article |
| id | doaj.art-f2c1561b5dbe49af9dfcea35175687e6 |
| institution | Directory Open Access Journal |
| issn | 2352-8737 |
| language | English |
| last_indexed | 2024-04-11T17:37:15Z |
| publishDate | 2021-01-01 |
| publisher | Wiley |
| record_format | Article |
| series | Alzheimer’s & Dementia: Translational Research & Clinical Interventions |
| spelling | doaj.art-f2c1561b5dbe49af9dfcea35175687e62022-12-22T04:11:35ZengWileyAlzheimer’s & Dementia: Translational Research & Clinical Interventions2352-87372021-01-0171n/an/a10.1002/trc2.12144Practices, challenges, and opportunities when addressing the palliative care needs of people living with dementia: Specialty memory care provider perspectivesAlissa Bernstein Sideman0Krista L. Harrison1Sarah B. Garrett2Georges Naasan3Dementia Palliative Care Writing Group4Christine S. Ritchie5Philip R. Lee Institute for Health Policy Studies University of California, San Francisco San Francisco California USAGlobal Brain Health Institute University of California, San Francisco San Francisco California USAPhilip R. Lee Institute for Health Policy Studies University of California, San Francisco San Francisco California USANeurology Icahn School of Medicine at Mount Sinai New York New York USAGlobal Brain Health Institute University of California, San Francisco San Francisco California USAGlobal Brain Health Institute University of California, San Francisco San Francisco California USAAbstract Introduction Palliative care focuses on reducing suffering and improving quality of life for individuals with serious illness and their families. In an effort to develop palliative care interventions for specialty memory care clinics, this study characterizes memory care providers’ perspectives on addressing palliative care needs of people living with dementia (PLWD). Methods Qualitative interviews with specialty memory care providers were followed by thematic analysis by a multidisciplinary research team. Results Provider approaches overlap with key domains of palliative care. Approaches unique to dementia include having a detailed understanding of dementia syndromes, behavioral symptoms, and caregiver burden. Challenges were identified related to disease progression, provider‐level factors, and systems and cultural issues. Respondents identified training needed to strengthen a palliative care approach. Discussion There are many strengths of using memory care teams to address palliative care needs of PLWD. However, they may require additional knowledge and training to strengthen their work.https://doi.org/10.1002/trc2.12144advance care planningcaregivingdementiaend‐of‐lifememory carepalliative care |
| spellingShingle | Alissa Bernstein Sideman Krista L. Harrison Sarah B. Garrett Georges Naasan Dementia Palliative Care Writing Group Christine S. Ritchie Practices, challenges, and opportunities when addressing the palliative care needs of people living with dementia: Specialty memory care provider perspectives Alzheimer’s & Dementia: Translational Research & Clinical Interventions advance care planning caregiving dementia end‐of‐life memory care palliative care |
| title | Practices, challenges, and opportunities when addressing the palliative care needs of people living with dementia: Specialty memory care provider perspectives |
| title_full | Practices, challenges, and opportunities when addressing the palliative care needs of people living with dementia: Specialty memory care provider perspectives |
| title_fullStr | Practices, challenges, and opportunities when addressing the palliative care needs of people living with dementia: Specialty memory care provider perspectives |
| title_full_unstemmed | Practices, challenges, and opportunities when addressing the palliative care needs of people living with dementia: Specialty memory care provider perspectives |
| title_short | Practices, challenges, and opportunities when addressing the palliative care needs of people living with dementia: Specialty memory care provider perspectives |
| title_sort | practices challenges and opportunities when addressing the palliative care needs of people living with dementia specialty memory care provider perspectives |
| topic | advance care planning caregiving dementia end‐of‐life memory care palliative care |
| url | https://doi.org/10.1002/trc2.12144 |
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