“The medicine is the easy part”: Pediatric physicians’ emotional labor in end-of-life care

Physicians who care for children with life-threatening conditions are uniquely positioned to support families through the dying phase when treatment efforts have failed. Taking on this role for families requires a great deal of time and strategic emotional labor. Drawing on in-depth interviews with...

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Main Author: Amanda M. Gengler
Format: Article
Language:English
Published: Elsevier 2023-12-01
Series:SSM: Qualitative Research in Health
Online Access:http://www.sciencedirect.com/science/article/pii/S2667321523001087
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author Amanda M. Gengler
author_facet Amanda M. Gengler
author_sort Amanda M. Gengler
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description Physicians who care for children with life-threatening conditions are uniquely positioned to support families through the dying phase when treatment efforts have failed. Taking on this role for families requires a great deal of time and strategic emotional labor. Drawing on in-depth interviews with 12 physicians across two different children's hospitals on the east coast, I find that these physicians conceptualize this work as a fundamental responsibility to the children and families in their care despite believing that their formal medical training fails to prepare them for this component of their jobs. These physicians deliberately laid groundwork for the potential that children may die from their earliest interactions with patients and worked to shift families away from continued medical intervention when they believed such efforts to be futile. They described this work as deeply meaningful and rewarding, but potentially emotionally overwhelming. These physicians felt duty-bound to address what they perceived as a deficit in medical training by intentionally modeling emotionally intense exchanges with families for the next generation of practitioners. Though these dual commitments demanded extensive and potentially exhausting emotional labor, this particular group of physicians was able to use the structural features of their faculty positions in academic medical centers to buffer against potential burnout, maintain their emotional capacity at work and home, and protect their own well-being. My analysis shows that when physicians inhabit structurally favorable working conditions and conceptualize their jobs in ways that center emotional support for patients they may use these resources to work to mitigate disparities in care and take pride in their ability to provide sustained and substantive emotional support at the end of life.
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spelling doaj.art-f3bc16acd84646a7a9472626e9b163862023-12-08T04:47:09ZengElsevierSSM: Qualitative Research in Health2667-32152023-12-014100324“The medicine is the easy part”: Pediatric physicians’ emotional labor in end-of-life careAmanda M. Gengler0Department of Sociology, Wake Forest University, 1834 Wake Forest Rd., Winston Salem, NC, 27109, United StatesPhysicians who care for children with life-threatening conditions are uniquely positioned to support families through the dying phase when treatment efforts have failed. Taking on this role for families requires a great deal of time and strategic emotional labor. Drawing on in-depth interviews with 12 physicians across two different children's hospitals on the east coast, I find that these physicians conceptualize this work as a fundamental responsibility to the children and families in their care despite believing that their formal medical training fails to prepare them for this component of their jobs. These physicians deliberately laid groundwork for the potential that children may die from their earliest interactions with patients and worked to shift families away from continued medical intervention when they believed such efforts to be futile. They described this work as deeply meaningful and rewarding, but potentially emotionally overwhelming. These physicians felt duty-bound to address what they perceived as a deficit in medical training by intentionally modeling emotionally intense exchanges with families for the next generation of practitioners. Though these dual commitments demanded extensive and potentially exhausting emotional labor, this particular group of physicians was able to use the structural features of their faculty positions in academic medical centers to buffer against potential burnout, maintain their emotional capacity at work and home, and protect their own well-being. My analysis shows that when physicians inhabit structurally favorable working conditions and conceptualize their jobs in ways that center emotional support for patients they may use these resources to work to mitigate disparities in care and take pride in their ability to provide sustained and substantive emotional support at the end of life.http://www.sciencedirect.com/science/article/pii/S2667321523001087
spellingShingle Amanda M. Gengler
“The medicine is the easy part”: Pediatric physicians’ emotional labor in end-of-life care
SSM: Qualitative Research in Health
title “The medicine is the easy part”: Pediatric physicians’ emotional labor in end-of-life care
title_full “The medicine is the easy part”: Pediatric physicians’ emotional labor in end-of-life care
title_fullStr “The medicine is the easy part”: Pediatric physicians’ emotional labor in end-of-life care
title_full_unstemmed “The medicine is the easy part”: Pediatric physicians’ emotional labor in end-of-life care
title_short “The medicine is the easy part”: Pediatric physicians’ emotional labor in end-of-life care
title_sort the medicine is the easy part pediatric physicians emotional labor in end of life care
url http://www.sciencedirect.com/science/article/pii/S2667321523001087
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