Use of the Assessment of Caregiver Experience with Neuromuscular Disease (ACEND) in Spinal Muscular Atrophy

Use of the Assessment of Caregiver Experience with Neuromuscular Disease (ACEND) in Spinal Muscular Atrophy

<b>Background</b>: Spinal muscular atrophy (SMA) has a remarkable impact on function and participation. Subsequently, the caregivers of individuals with SMA are impacted as well. Providers and the SMA community should be aware of the presence of and likely expectations for the existence...

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Bibliographic Details
Main Authors: Laurey Brown, Katie Hoffman, Chiara Corbo-Galli, Siyuan Dong, Katelyn Zumpf, Christa Weigel, Colleen Blomgren, Hannah Munson, Jessa Bidwell, Vamshi Rao, Nancy L. Kuntz, Abigail Schwaede, Kristin J. Krosschell
Format: Article
Language:English
Published: MDPI AG 2024-02-01
Series:Journal of Clinical Medicine
Subjects:
spinal muscular atrophy
caregiver burden
quality of life
neuromuscular
pediatric
ACEND
Online Access:https://www.mdpi.com/2077-0383/13/4/921

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https://www.mdpi.com/2077-0383/13/4/921

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