From the principles of genomic data sharing to the practices of data access committees
Sharing genomic research data through controlled‐access databases has increased in recent years. Policymakers and funding organizations endorse genomic data sharing in order to optimize the use of public funds and to increase the statistical power of databases. Well‐established data access arrangeme...
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
| Published: |
Springer Nature
2015-05-01
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| Series: | EMBO Molecular Medicine |
| Online Access: | https://doi.org/10.15252/emmm.201405002 |
| _version_ | 1797225456310681600 |
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| author | Mahsa Shabani Bartha Maria Knoppers Pascal Borry |
| author_facet | Mahsa Shabani Bartha Maria Knoppers Pascal Borry |
| author_sort | Mahsa Shabani |
| collection | DOAJ |
| description | Sharing genomic research data through controlled‐access databases has increased in recent years. Policymakers and funding organizations endorse genomic data sharing in order to optimize the use of public funds and to increase the statistical power of databases. Well‐established data access arrangements and data access committees (DACs)—responsible for reviewing and managing requests for access to genomic databases—are therefore central for implementing the policies and principles of data sharing. This article aims to investigate the functionality of DACs through the perspective of existing practices. |
| first_indexed | 2024-03-13T03:11:25Z |
| format | Article |
| id | doaj.art-f4723c2fe5a343c3920a5a880a787d36 |
| institution | Directory Open Access Journal |
| issn | 1757-4676 1757-4684 |
| language | English |
| last_indexed | 2024-04-24T14:09:18Z |
| publishDate | 2015-05-01 |
| publisher | Springer Nature |
| record_format | Article |
| series | EMBO Molecular Medicine |
| spelling | doaj.art-f4723c2fe5a343c3920a5a880a787d362024-04-03T09:41:47ZengSpringer NatureEMBO Molecular Medicine1757-46761757-46842015-05-017550750910.15252/emmm.201405002From the principles of genomic data sharing to the practices of data access committeesMahsa Shabani0Bartha Maria Knoppers1Pascal Borry2Centre for Biomedical Ethics and Law Department of Public Health and Primary Care University of Leuven Leuven BelgiumCentre of Genomics and Policy McGill University Montreal QC CanadaCentre for Biomedical Ethics and Law Department of Public Health and Primary Care University of Leuven Leuven BelgiumSharing genomic research data through controlled‐access databases has increased in recent years. Policymakers and funding organizations endorse genomic data sharing in order to optimize the use of public funds and to increase the statistical power of databases. Well‐established data access arrangements and data access committees (DACs)—responsible for reviewing and managing requests for access to genomic databases—are therefore central for implementing the policies and principles of data sharing. This article aims to investigate the functionality of DACs through the perspective of existing practices.https://doi.org/10.15252/emmm.201405002 |
| spellingShingle | Mahsa Shabani Bartha Maria Knoppers Pascal Borry From the principles of genomic data sharing to the practices of data access committees EMBO Molecular Medicine |
| title | From the principles of genomic data sharing to the practices of data access committees |
| title_full | From the principles of genomic data sharing to the practices of data access committees |
| title_fullStr | From the principles of genomic data sharing to the practices of data access committees |
| title_full_unstemmed | From the principles of genomic data sharing to the practices of data access committees |
| title_short | From the principles of genomic data sharing to the practices of data access committees |
| title_sort | from the principles of genomic data sharing to the practices of data access committees |
| url | https://doi.org/10.15252/emmm.201405002 |
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