From the principles of genomic data sharing to the practices of data access committees
Sharing genomic research data through controlled‐access databases has increased in recent years. Policymakers and funding organizations endorse genomic data sharing in order to optimize the use of public funds and to increase the statistical power of databases. Well‐established data access arrangeme...
Main Authors: | Mahsa Shabani, Bartha Maria Knoppers, Pascal Borry |
---|---|
Format: | Article |
Language: | English |
Published: |
Springer Nature
2015-05-01
|
Series: | EMBO Molecular Medicine |
Online Access: | https://doi.org/10.15252/emmm.201405002 |
Similar Items
-
Controlled Access under Review: Improving the Governance of Genomic Data Access.
by: Mahsa Shabani, et al.
Published: (2015-12-01) -
Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers.
by: Thijs Devriendt, et al.
Published: (2021-01-01) -
Reward systems for cohort data sharing: An interview study with funding agencies.
by: Thijs Devriendt, et al.
Published: (2023-01-01) -
Credit and Recognition for Contributions to Data-Sharing Platforms Among Cohort Holders and Platform Developers in Europe: Interview Study
by: Thijs Devriendt, et al.
Published: (2022-01-01) -
Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO).
by: Yann Joly, et al.
Published: (2012-01-01)