Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported Outcomes
Family caregivers of patients with cancer provide substantial physical, emotional, and functional care throughout the cancer trajectory. While caregiving can create employment and financial challenges, there is insufficient evidence to inform the development of caregiver-reported outcomes (CROs) tha...
| Main Authors: | , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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MDPI AG
2022-10-01
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| Series: | Current Oncology |
| Subjects: | |
| Online Access: | https://www.mdpi.com/1718-7729/29/11/646 |
| _version_ | 1797468680440774656 |
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| author | A. Fuchsia Howard Kelsey Lynch Sally Thorne Antony Porcino Leah Lambert Mary A. De Vera Angela C. Wolff Penelope Hedges Scott M. Beck María-José Torrejón Mary T. Kelly Michael McKenzie |
| author_facet | A. Fuchsia Howard Kelsey Lynch Sally Thorne Antony Porcino Leah Lambert Mary A. De Vera Angela C. Wolff Penelope Hedges Scott M. Beck María-José Torrejón Mary T. Kelly Michael McKenzie |
| author_sort | A. Fuchsia Howard |
| collection | DOAJ |
| description | Family caregivers of patients with cancer provide substantial physical, emotional, and functional care throughout the cancer trajectory. While caregiving can create employment and financial challenges, there is insufficient evidence to inform the development of caregiver-reported outcomes (CROs) that assess these experiences. The study purpose was to describe the occupational and financial consequences that were important to family caregivers of a patient with colorectal cancer (CRC) in the context of public health care, which represent potential considerations for CROs. In this qualitative Interpretive Description study, we analyzed interview data from 78 participants (25 caregivers, 37 patients, and 16 healthcare providers). Our findings point to temporary and long-term occupational and financial setbacks in the context of CRC. Caregiving for a person with CRC involved managing occupational implications, including (1) revamping employment arrangements, and (2) juggling work, family, and household demands. Caregiver financial struggles included (1) responding to financial demands at various stages of life, and (2) facing the spectre of lifelong expenses. Study findings offer novel insight into the cancer-related occupational and financial challenges facing caregivers, despite government-funded universal health care. Further research is warranted to develop CRO measures that assess the multifaceted nature of these challenges. |
| first_indexed | 2024-03-09T19:09:52Z |
| format | Article |
| id | doaj.art-f4ab3b2c7ef0427693c9f786d5437850 |
| institution | Directory Open Access Journal |
| issn | 1198-0052 1718-7729 |
| language | English |
| last_indexed | 2024-03-09T19:09:52Z |
| publishDate | 2022-10-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Current Oncology |
| spelling | doaj.art-f4ab3b2c7ef0427693c9f786d54378502023-11-24T04:16:16ZengMDPI AGCurrent Oncology1198-00521718-77292022-10-0129118180819610.3390/curroncol29110646Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported OutcomesA. Fuchsia Howard0Kelsey Lynch1Sally Thorne2Antony Porcino3Leah Lambert4Mary A. De Vera5Angela C. Wolff6Penelope Hedges7Scott M. Beck8María-José Torrejón9Mary T. Kelly10Michael McKenzie11School of Nursing, The University of British Columbia, Vancouver, BC V6T 2B5, CanadaSchool of Nursing, The University of British Columbia, Vancouver, BC V6T 2B5, CanadaSchool of Nursing, The University of British Columbia, Vancouver, BC V6T 2B5, CanadaBC Cancer, Vancouver, BC V5Z 4C2 CanadaSchool of Nursing, The University of British Columbia, Vancouver, BC V6T 2B5, CanadaFaculty of Pharmaceutical Sciences, The University of British Columbia, Vancouver, BC V6T 1Z3, CanadaSchool of Nursing, Trinity Western University, Langley, BC V2Y 1Y1, CanadaBC Cancer, Vancouver, BC V5Z 4C2 CanadaSchool of Nursing, The University of British Columbia, Vancouver, BC V6T 2B5, CanadaBC Cancer, Vancouver, BC V5Z 4C2 CanadaSchool of Nursing, The University of British Columbia, Vancouver, BC V6T 2B5, CanadaBC Cancer, Vancouver, BC V5Z 4C2 CanadaFamily caregivers of patients with cancer provide substantial physical, emotional, and functional care throughout the cancer trajectory. While caregiving can create employment and financial challenges, there is insufficient evidence to inform the development of caregiver-reported outcomes (CROs) that assess these experiences. The study purpose was to describe the occupational and financial consequences that were important to family caregivers of a patient with colorectal cancer (CRC) in the context of public health care, which represent potential considerations for CROs. In this qualitative Interpretive Description study, we analyzed interview data from 78 participants (25 caregivers, 37 patients, and 16 healthcare providers). Our findings point to temporary and long-term occupational and financial setbacks in the context of CRC. Caregiving for a person with CRC involved managing occupational implications, including (1) revamping employment arrangements, and (2) juggling work, family, and household demands. Caregiver financial struggles included (1) responding to financial demands at various stages of life, and (2) facing the spectre of lifelong expenses. Study findings offer novel insight into the cancer-related occupational and financial challenges facing caregivers, despite government-funded universal health care. Further research is warranted to develop CRO measures that assess the multifaceted nature of these challenges.https://www.mdpi.com/1718-7729/29/11/646caregiverfamilysupportive care needsemploymentoccupationfinancial costs |
| spellingShingle | A. Fuchsia Howard Kelsey Lynch Sally Thorne Antony Porcino Leah Lambert Mary A. De Vera Angela C. Wolff Penelope Hedges Scott M. Beck María-José Torrejón Mary T. Kelly Michael McKenzie Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported Outcomes Current Oncology caregiver family supportive care needs employment occupation financial costs |
| title | Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported Outcomes |
| title_full | Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported Outcomes |
| title_fullStr | Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported Outcomes |
| title_full_unstemmed | Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported Outcomes |
| title_short | Occupational and Financial Setbacks in Caregivers of People with Colorectal Cancer: Considerations for Caregiver-Reported Outcomes |
| title_sort | occupational and financial setbacks in caregivers of people with colorectal cancer considerations for caregiver reported outcomes |
| topic | caregiver family supportive care needs employment occupation financial costs |
| url | https://www.mdpi.com/1718-7729/29/11/646 |
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