Self-Determination: What can we Learn from Persons with Profound Intellectual and Multiple Disabilities?
Self-determination is often equated with independence and individual choices, which limits its relevance for persons with profound intellectual and multiple disabilities (PIMD) due to their dependency. This paper challenges the notion of independence by arguing for a rethinking of self-determination...
| Váldodahkkit: | , , |
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| Materiálatiipa: | Artihkal |
| Giella: | English |
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Stockholm University Press
2021-11-01
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| Ráidu: | Scandinavian Journal of Disability Research |
| Fáttát: | |
| Liŋkkat: | https://account.sjdr.se/index.php/su-j-sjdr/article/view/830 |
| _version_ | 1827962959583772672 |
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| author | Synne Nese Skarsaune Halvor Hanisch Anita Gjermestad |
| author_facet | Synne Nese Skarsaune Halvor Hanisch Anita Gjermestad |
| author_sort | Synne Nese Skarsaune |
| collection | DOAJ |
| description | Self-determination is often equated with independence and individual choices, which limits its relevance for persons with profound intellectual and multiple disabilities (PIMD) due to their dependency. This paper challenges the notion of independence by arguing for a rethinking of self-determination that is sensitive to lives characterised by dependency and non-verbal being. An ethnographic study informed by phenomenology emphasising embodiment shed light on how self-determination can unfold in the lives of persons with PIMD in relationships with professionals. These data are engaged in a theoretical discussion, dialoguing with theories of self-determination and ethics of care. We advocate that a rethinking involving embodied communication, partnership and ongoing processes of being understood can offer a sound way of grasping the phenomenon of self-determination, both for persons with and without PIMD. |
| first_indexed | 2024-04-09T16:51:51Z |
| format | Article |
| id | doaj.art-f5cca52da8664decb1ec7c0db7db38f7 |
| institution | Directory Open Access Journal |
| issn | 1745-3011 |
| language | English |
| last_indexed | 2024-04-09T16:51:51Z |
| publishDate | 2021-11-01 |
| publisher | Stockholm University Press |
| record_format | Article |
| series | Scandinavian Journal of Disability Research |
| spelling | doaj.art-f5cca52da8664decb1ec7c0db7db38f72023-04-21T12:59:43ZengStockholm University PressScandinavian Journal of Disability Research1745-30112021-11-0123131732710.16993/sjdr.830344Self-Determination: What can we Learn from Persons with Profound Intellectual and Multiple Disabilities?Synne Nese Skarsaune0https://orcid.org/0000-0002-8094-3652Halvor Hanisch1Anita Gjermestad2VID Specialized UniversityVID Specialized UniversityVID Specialized UniversitySelf-determination is often equated with independence and individual choices, which limits its relevance for persons with profound intellectual and multiple disabilities (PIMD) due to their dependency. This paper challenges the notion of independence by arguing for a rethinking of self-determination that is sensitive to lives characterised by dependency and non-verbal being. An ethnographic study informed by phenomenology emphasising embodiment shed light on how self-determination can unfold in the lives of persons with PIMD in relationships with professionals. These data are engaged in a theoretical discussion, dialoguing with theories of self-determination and ethics of care. We advocate that a rethinking involving embodied communication, partnership and ongoing processes of being understood can offer a sound way of grasping the phenomenon of self-determination, both for persons with and without PIMD.https://account.sjdr.se/index.php/su-j-sjdr/article/view/830persons with profound intellectual and multiple disabilitiesdependencyself-determinationethnographyphenomenologyembodiment |
| spellingShingle | Synne Nese Skarsaune Halvor Hanisch Anita Gjermestad Self-Determination: What can we Learn from Persons with Profound Intellectual and Multiple Disabilities? Scandinavian Journal of Disability Research persons with profound intellectual and multiple disabilities dependency self-determination ethnography phenomenology embodiment |
| title | Self-Determination: What can we Learn from Persons with Profound Intellectual and Multiple Disabilities? |
| title_full | Self-Determination: What can we Learn from Persons with Profound Intellectual and Multiple Disabilities? |
| title_fullStr | Self-Determination: What can we Learn from Persons with Profound Intellectual and Multiple Disabilities? |
| title_full_unstemmed | Self-Determination: What can we Learn from Persons with Profound Intellectual and Multiple Disabilities? |
| title_short | Self-Determination: What can we Learn from Persons with Profound Intellectual and Multiple Disabilities? |
| title_sort | self determination what can we learn from persons with profound intellectual and multiple disabilities |
| topic | persons with profound intellectual and multiple disabilities dependency self-determination ethnography phenomenology embodiment |
| url | https://account.sjdr.se/index.php/su-j-sjdr/article/view/830 |
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