Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue
Abstract The health-related quality of life (HRQoL) among long-term Adolescent and Young Adult Cancer Survivors (AYACS) and an age- and sex-matched normative population was examined. Although the HRQoL of AYACS was worse compared to the normative population before and during the COVID-19 pandemic, t...
| Main Authors: | , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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SpringerOpen
2023-09-01
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| Series: | Journal of Patient-Reported Outcomes |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s41687-023-00629-0 |
| _version_ | 1827634148629544960 |
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| author | Carla Vlooswijk Silvie H. M. Janssen Lonneke V. van de Poll-Franse Rhodé Bijlsma Suzanne E. J. Kaal J. Martijn Kerst Jacqueline M. Tromp Monique E. M. M. Bos Roy I. Lalisang Janine Nuver Mathilde C. M. Kouwenhoven Winette T. A. van der Graaf Olga Husson |
| author_facet | Carla Vlooswijk Silvie H. M. Janssen Lonneke V. van de Poll-Franse Rhodé Bijlsma Suzanne E. J. Kaal J. Martijn Kerst Jacqueline M. Tromp Monique E. M. M. Bos Roy I. Lalisang Janine Nuver Mathilde C. M. Kouwenhoven Winette T. A. van der Graaf Olga Husson |
| author_sort | Carla Vlooswijk |
| collection | DOAJ |
| description | Abstract The health-related quality of life (HRQoL) among long-term Adolescent and Young Adult Cancer Survivors (AYACS) and an age- and sex-matched normative population was examined. Although the HRQoL of AYACS was worse compared to the normative population before and during the COVID-19 pandemic, the scores of AYACS improved over time in contrast to the normative population. Presumably, AYACS are used to adjusting their lives to stressful life events. Furthermore, the lockdown may have been beneficial for AYACS who face difficulties fully participating in society due to the impact of cancer. AYACS who encounter HRQoL issues could benefit from support interventions to empower them and build resilience. |
| first_indexed | 2024-03-09T15:09:22Z |
| format | Article |
| id | doaj.art-f5f0deb22ffa4615a0e3a20bf3ffda80 |
| institution | Directory Open Access Journal |
| issn | 2509-8020 |
| language | English |
| last_indexed | 2024-03-09T15:09:22Z |
| publishDate | 2023-09-01 |
| publisher | SpringerOpen |
| record_format | Article |
| series | Journal of Patient-Reported Outcomes |
| spelling | doaj.art-f5f0deb22ffa4615a0e3a20bf3ffda802023-11-26T13:29:43ZengSpringerOpenJournal of Patient-Reported Outcomes2509-80202023-09-017111010.1186/s41687-023-00629-0Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigueCarla Vlooswijk0Silvie H. M. Janssen1Lonneke V. van de Poll-Franse2Rhodé Bijlsma3Suzanne E. J. Kaal4J. Martijn Kerst5Jacqueline M. Tromp6Monique E. M. M. Bos7Roy I. Lalisang8Janine Nuver9Mathilde C. M. Kouwenhoven10Winette T. A. van der Graaf11Olga Husson12Research and Development, Netherlands Comprehensive Cancer OrganisationDepartment of Psychosocial Research and Epidemiology, Netherlands Cancer InstituteResearch and Development, Netherlands Comprehensive Cancer OrganisationDepartment of Medical Oncology, University Medical Center UtrechtDepartment of Medical Oncology, Radboud University Medical CenterDepartment of Medical Oncology, Netherlands Cancer Institute-Antoni Van LeeuwenhoekDepartment of Medical Oncology, Amsterdam University Medical CentersDepartment of Medical Oncology, Erasmus MC Cancer Institute, Erasmus University Medical CenterDepartment of Internal Medicine, Division of Medical Oncology, GROW-School of Oncology and Reproduction, Maastricht UMC+ Comprehensive Cancer CenterDepartment of Medical Oncology, University Medical Center GroningenDepartment of Neurology, Amsterdam UMC, Amsterdam University Medical CentersDepartment of Medical Oncology, Netherlands Cancer Institute-Antoni Van LeeuwenhoekDepartment of Psychosocial Research and Epidemiology, Netherlands Cancer InstituteAbstract The health-related quality of life (HRQoL) among long-term Adolescent and Young Adult Cancer Survivors (AYACS) and an age- and sex-matched normative population was examined. Although the HRQoL of AYACS was worse compared to the normative population before and during the COVID-19 pandemic, the scores of AYACS improved over time in contrast to the normative population. Presumably, AYACS are used to adjusting their lives to stressful life events. Furthermore, the lockdown may have been beneficial for AYACS who face difficulties fully participating in society due to the impact of cancer. AYACS who encounter HRQoL issues could benefit from support interventions to empower them and build resilience.https://doi.org/10.1186/s41687-023-00629-0Adolescents and young adultsCOVID-19Health-related quality of lifeSocial functioningSurvivorshipCancer |
| spellingShingle | Carla Vlooswijk Silvie H. M. Janssen Lonneke V. van de Poll-Franse Rhodé Bijlsma Suzanne E. J. Kaal J. Martijn Kerst Jacqueline M. Tromp Monique E. M. M. Bos Roy I. Lalisang Janine Nuver Mathilde C. M. Kouwenhoven Winette T. A. van der Graaf Olga Husson Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue Journal of Patient-Reported Outcomes Adolescents and young adults COVID-19 Health-related quality of life Social functioning Survivorship Cancer |
| title | Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue |
| title_full | Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue |
| title_fullStr | Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue |
| title_full_unstemmed | Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue |
| title_short | Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue |
| title_sort | health related quality of life of adolescent and young adult cancer survivors before and during the covid 19 pandemic longitudinal improvements on social functioning and fatigue |
| topic | Adolescents and young adults COVID-19 Health-related quality of life Social functioning Survivorship Cancer |
| url | https://doi.org/10.1186/s41687-023-00629-0 |
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