Conspiracy of silence and emotional distress in patients diagnosed with glioblastoma multiforme
Aim: For those patients suffering serious illnesses with a poor prognosis, there continues to be a significant percentage of well-meaning family members who, out of a desire to protect the patient, decide to hide the truth, even if the patient wishes to know what the real situation is. Methods: To m...
Main Authors: | , , , |
---|---|
Format: | Article |
Language: | Spanish |
Published: |
Universidad Complutense de Madrid
2012-06-01
|
Series: | Psicooncologia |
Subjects: | |
Online Access: | http://revistas.ucm.es/index.php/PSIC/article/view/39144 |
_version_ | 1811232208799662080 |
---|---|
author | José Luis Díaz Cordobés Juan Antonio Barcia Albacar Jose María Gallego Sánchez Pilar Barreto Martín |
author_facet | José Luis Díaz Cordobés Juan Antonio Barcia Albacar Jose María Gallego Sánchez Pilar Barreto Martín |
author_sort | José Luis Díaz Cordobés |
collection | DOAJ |
description | Aim: For those patients suffering serious illnesses with a poor prognosis, there continues to be a significant percentage of well-meaning family members who, out of a desire to protect the patient, decide to hide the truth, even if the patient wishes to know what the real situation is. Methods: To measure the incidence of conspiracies of silence within families and their repercussions on levels of anxiety and depression of patients diagnosed Glioblastoma Multiforme (GBM). Findings: 19.3 % of the families taking part thought that it would not be appropriate to give the patient information about their disease, despite the patient stating that he or she would like to know more about their disease. This conspiracy had an impact on the anxiety levels of the patient even a month after the discharge from hospital. At this point in the disease process, those patients where there was a conspiracy of silence demonstrated psychopathological levels of anxiety (12.71±2.28), whereas the levels of anxiety for those patients who were allowed more open communication showed levels which were below clinical significance (7.00±3.27). Conclusions: The needs for information of family members and patients with GBM are different and their repercussions on emotional distress in patients can continue during a prolonged period of time. |
first_indexed | 2024-04-12T10:59:35Z |
format | Article |
id | doaj.art-f60ae718b2584dd798ff74ab64500cb0 |
institution | Directory Open Access Journal |
issn | 1696-7240 1988-8287 |
language | Spanish |
last_indexed | 2024-04-12T10:59:35Z |
publishDate | 2012-06-01 |
publisher | Universidad Complutense de Madrid |
record_format | Article |
series | Psicooncologia |
spelling | doaj.art-f60ae718b2584dd798ff74ab64500cb02022-12-22T03:36:00ZspaUniversidad Complutense de MadridPsicooncologia1696-72401988-82872012-06-019115115910.5209/rev_PSIC.2012.v9.n1.3914438822Conspiracy of silence and emotional distress in patients diagnosed with glioblastoma multiformeJosé Luis Díaz Cordobés0Juan Antonio Barcia Albacar1Jose María Gallego Sánchez2Pilar Barreto Martín3GASMEDI 2000 S.A.U. /Unidad de Cuidados Respiratorios. Hospital Clínico Universitario de Valencia/ Fundación para la Investigación HCUV-INCLIVA.Servicio de Neurocirugía. Hospital San Carlos de Madrid.Servicio de Neurocirugía. Hospital General Universitario de Valencia.Universitat Valencia.Aim: For those patients suffering serious illnesses with a poor prognosis, there continues to be a significant percentage of well-meaning family members who, out of a desire to protect the patient, decide to hide the truth, even if the patient wishes to know what the real situation is. Methods: To measure the incidence of conspiracies of silence within families and their repercussions on levels of anxiety and depression of patients diagnosed Glioblastoma Multiforme (GBM). Findings: 19.3 % of the families taking part thought that it would not be appropriate to give the patient information about their disease, despite the patient stating that he or she would like to know more about their disease. This conspiracy had an impact on the anxiety levels of the patient even a month after the discharge from hospital. At this point in the disease process, those patients where there was a conspiracy of silence demonstrated psychopathological levels of anxiety (12.71±2.28), whereas the levels of anxiety for those patients who were allowed more open communication showed levels which were below clinical significance (7.00±3.27). Conclusions: The needs for information of family members and patients with GBM are different and their repercussions on emotional distress in patients can continue during a prolonged period of time.http://revistas.ucm.es/index.php/PSIC/article/view/39144ansiedaddepresiónconspiración de silencioglioblastoma multiforme. |
spellingShingle | José Luis Díaz Cordobés Juan Antonio Barcia Albacar Jose María Gallego Sánchez Pilar Barreto Martín Conspiracy of silence and emotional distress in patients diagnosed with glioblastoma multiforme Psicooncologia ansiedad depresión conspiración de silencio glioblastoma multiforme. |
title | Conspiracy of silence and emotional distress in patients diagnosed with glioblastoma multiforme |
title_full | Conspiracy of silence and emotional distress in patients diagnosed with glioblastoma multiforme |
title_fullStr | Conspiracy of silence and emotional distress in patients diagnosed with glioblastoma multiforme |
title_full_unstemmed | Conspiracy of silence and emotional distress in patients diagnosed with glioblastoma multiforme |
title_short | Conspiracy of silence and emotional distress in patients diagnosed with glioblastoma multiforme |
title_sort | conspiracy of silence and emotional distress in patients diagnosed with glioblastoma multiforme |
topic | ansiedad depresión conspiración de silencio glioblastoma multiforme. |
url | http://revistas.ucm.es/index.php/PSIC/article/view/39144 |
work_keys_str_mv | AT joseluisdiazcordobes conspiracyofsilenceandemotionaldistressinpatientsdiagnosedwithglioblastomamultiforme AT juanantoniobarciaalbacar conspiracyofsilenceandemotionaldistressinpatientsdiagnosedwithglioblastomamultiforme AT josemariagallegosanchez conspiracyofsilenceandemotionaldistressinpatientsdiagnosedwithglioblastomamultiforme AT pilarbarretomartin conspiracyofsilenceandemotionaldistressinpatientsdiagnosedwithglioblastomamultiforme |