Personalisation and the Promise of Independent Living: Where Now for Cash, Care and Control for Disability Organisations Across the UK?

Personalisation has dominated social care across OECD countries over the past 20 years. UK policy evolved from the efforts of disabled peoples’ organisations (DPOs) to secure the availability of cash payments as part of a wider drive to enable independent living. Implementation of personalisation ac...

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Bibliographic Details
Main Authors: Charlotte Pearson, Richard Brunner, Tom Porter, Nick Watson
Format: Article
Language:English
Published: Stockholm University Press 2020-11-01
Series:Scandinavian Journal of Disability Research
Subjects:
Online Access:https://account.sjdr.se/index.php/su-j-sjdr/article/view/742
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author Charlotte Pearson
Richard Brunner
Tom Porter
Nick Watson
author_facet Charlotte Pearson
Richard Brunner
Tom Porter
Nick Watson
author_sort Charlotte Pearson
collection DOAJ
description Personalisation has dominated social care across OECD countries over the past 20 years. UK policy evolved from the efforts of disabled peoples’ organisations (DPOs) to secure the availability of cash payments as part of a wider drive to enable independent living. Implementation of personalisation across the UK has seen significant divergence in how governments have developed their own responses, but in each country the DPOs’ role and impact has shifted from campaigning and promoting the voices of disabled people to a more muted focus on service provision and limited policy engagement. This article draws on a series of interviews with DPOs and leading disabled activists. It highlights concerns raised related to themes around austerity, changing relationships with local government and the role of co-production in developing policy. We conclude the article by discussing the future directions for personalisation and developments in light of the COVID-19 pandemic.
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spelling doaj.art-f697c50a537d434a8354c1e68d5025bb2023-04-21T12:59:43ZengStockholm University PressScandinavian Journal of Disability Research1745-30112020-11-0122128529510.16993/sjdr.742909Personalisation and the Promise of Independent Living: Where Now for Cash, Care and Control for Disability Organisations Across the UK?Charlotte Pearson0Richard Brunner1Tom Porter2Nick Watson3University of GlasgowUniversity of GlasgowUniversity of East AngliaUniversity of GlasgowPersonalisation has dominated social care across OECD countries over the past 20 years. UK policy evolved from the efforts of disabled peoples’ organisations (DPOs) to secure the availability of cash payments as part of a wider drive to enable independent living. Implementation of personalisation across the UK has seen significant divergence in how governments have developed their own responses, but in each country the DPOs’ role and impact has shifted from campaigning and promoting the voices of disabled people to a more muted focus on service provision and limited policy engagement. This article draws on a series of interviews with DPOs and leading disabled activists. It highlights concerns raised related to themes around austerity, changing relationships with local government and the role of co-production in developing policy. We conclude the article by discussing the future directions for personalisation and developments in light of the COVID-19 pandemic.https://account.sjdr.se/index.php/su-j-sjdr/article/view/742personalisationsocial caredirect paymentsdisability
spellingShingle Charlotte Pearson
Richard Brunner
Tom Porter
Nick Watson
Personalisation and the Promise of Independent Living: Where Now for Cash, Care and Control for Disability Organisations Across the UK?
Scandinavian Journal of Disability Research
personalisation
social care
direct payments
disability
title Personalisation and the Promise of Independent Living: Where Now for Cash, Care and Control for Disability Organisations Across the UK?
title_full Personalisation and the Promise of Independent Living: Where Now for Cash, Care and Control for Disability Organisations Across the UK?
title_fullStr Personalisation and the Promise of Independent Living: Where Now for Cash, Care and Control for Disability Organisations Across the UK?
title_full_unstemmed Personalisation and the Promise of Independent Living: Where Now for Cash, Care and Control for Disability Organisations Across the UK?
title_short Personalisation and the Promise of Independent Living: Where Now for Cash, Care and Control for Disability Organisations Across the UK?
title_sort personalisation and the promise of independent living where now for cash care and control for disability organisations across the uk
topic personalisation
social care
direct payments
disability
url https://account.sjdr.se/index.php/su-j-sjdr/article/view/742
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AT tomporter personalisationandthepromiseofindependentlivingwherenowforcashcareandcontrolfordisabilityorganisationsacrosstheuk
AT nickwatson personalisationandthepromiseofindependentlivingwherenowforcashcareandcontrolfordisabilityorganisationsacrosstheuk