Implementability of collecting patient-reported outcome data in stroke unit care – a qualitative study
Abstract Background Patient-reported outcome measures (PROMs) assess patient-relevant effects of medical treatments. We aimed to evaluate the implementation of the International Consortium for Health Outcomes Measurement Standard Set for Stroke (ICHOM-SSS) into routine inpatient care of a stroke uni...
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| Format: | Article |
| Language: | English |
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BMC
2022-03-01
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| Series: | BMC Health Services Research |
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| Online Access: | https://doi.org/10.1186/s12913-022-07722-y |
| _version_ | 1818282206623170560 |
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| author | Lisa Lebherz Elisa Fraune Götz Thomalla Marc Frese Hannes Appelbohm David Leander Rimmele Martin Härter Levente Kriston |
| author_facet | Lisa Lebherz Elisa Fraune Götz Thomalla Marc Frese Hannes Appelbohm David Leander Rimmele Martin Härter Levente Kriston |
| author_sort | Lisa Lebherz |
| collection | DOAJ |
| description | Abstract Background Patient-reported outcome measures (PROMs) assess patient-relevant effects of medical treatments. We aimed to evaluate the implementation of the International Consortium for Health Outcomes Measurement Standard Set for Stroke (ICHOM-SSS) into routine inpatient care of a stroke unit. Methods The ICHOM-SSS was administered in a certified stroke unit during and after inpatient care. Semi-structured interviews with medical staff (n = 5) and patients or their proxies (n = 19) about their experience were audio-recorded and analysed using thematic analyses. Implementation outcomes were chosen in advance and adhered to current standards of implementation science. Results Patients perceived the ICHOM-SSS to be relevant and feasible. They reported limited understanding of why the assessment was introduced. The overall acceptance of using PROMs was high. While medical staff, too, perceived the assessment to be appropriate and relevant, their appraisal of feasibility, sustainability, and their acceptance of the implementation were low. Conclusions For a sustainable implementation of PROMs in clinical practice, IT resources need to be adapted, medical care needs to be reorganized, and additional clinical resources are required. Future research should investigate benefits of the ICHOM-SSS and a simpler, automated implementation in stroke care. Trial registration ClinicalTrials.gov Identifier: NCT03795948 , retrospectively registered on 8 January 2019. |
| first_indexed | 2024-12-13T00:17:20Z |
| format | Article |
| id | doaj.art-f78777001c9e45ecb8eae6f14a979d22 |
| institution | Directory Open Access Journal |
| issn | 1472-6963 |
| language | English |
| last_indexed | 2024-12-13T00:17:20Z |
| publishDate | 2022-03-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Health Services Research |
| spelling | doaj.art-f78777001c9e45ecb8eae6f14a979d222022-12-22T00:05:46ZengBMCBMC Health Services Research1472-69632022-03-0122111110.1186/s12913-022-07722-yImplementability of collecting patient-reported outcome data in stroke unit care – a qualitative studyLisa Lebherz0Elisa Fraune1Götz Thomalla2Marc Frese3Hannes Appelbohm4David Leander Rimmele5Martin Härter6Levente Kriston7Department of Medical Psychology, University Medical Centre Hamburg-EppendorfDepartment of Medical Psychology, University Medical Centre Hamburg-EppendorfDepartment of Neurology, University Medical Centre Hamburg-EppendorfOffice for Quality Management and Clinical Process Management, University Medical Centre Hamburg-EppendorfDepartment of Neurology, University Medical Centre Hamburg-EppendorfDepartment of Neurology, University Medical Centre Hamburg-EppendorfDepartment of Medical Psychology, University Medical Centre Hamburg-EppendorfDepartment of Medical Psychology, University Medical Centre Hamburg-EppendorfAbstract Background Patient-reported outcome measures (PROMs) assess patient-relevant effects of medical treatments. We aimed to evaluate the implementation of the International Consortium for Health Outcomes Measurement Standard Set for Stroke (ICHOM-SSS) into routine inpatient care of a stroke unit. Methods The ICHOM-SSS was administered in a certified stroke unit during and after inpatient care. Semi-structured interviews with medical staff (n = 5) and patients or their proxies (n = 19) about their experience were audio-recorded and analysed using thematic analyses. Implementation outcomes were chosen in advance and adhered to current standards of implementation science. Results Patients perceived the ICHOM-SSS to be relevant and feasible. They reported limited understanding of why the assessment was introduced. The overall acceptance of using PROMs was high. While medical staff, too, perceived the assessment to be appropriate and relevant, their appraisal of feasibility, sustainability, and their acceptance of the implementation were low. Conclusions For a sustainable implementation of PROMs in clinical practice, IT resources need to be adapted, medical care needs to be reorganized, and additional clinical resources are required. Future research should investigate benefits of the ICHOM-SSS and a simpler, automated implementation in stroke care. Trial registration ClinicalTrials.gov Identifier: NCT03795948 , retrospectively registered on 8 January 2019.https://doi.org/10.1186/s12913-022-07722-yImplementationQualitative methodsPatient-reported outcome measuresFeasibilityStroke |
| spellingShingle | Lisa Lebherz Elisa Fraune Götz Thomalla Marc Frese Hannes Appelbohm David Leander Rimmele Martin Härter Levente Kriston Implementability of collecting patient-reported outcome data in stroke unit care – a qualitative study BMC Health Services Research Implementation Qualitative methods Patient-reported outcome measures Feasibility Stroke |
| title | Implementability of collecting patient-reported outcome data in stroke unit care – a qualitative study |
| title_full | Implementability of collecting patient-reported outcome data in stroke unit care – a qualitative study |
| title_fullStr | Implementability of collecting patient-reported outcome data in stroke unit care – a qualitative study |
| title_full_unstemmed | Implementability of collecting patient-reported outcome data in stroke unit care – a qualitative study |
| title_short | Implementability of collecting patient-reported outcome data in stroke unit care – a qualitative study |
| title_sort | implementability of collecting patient reported outcome data in stroke unit care a qualitative study |
| topic | Implementation Qualitative methods Patient-reported outcome measures Feasibility Stroke |
| url | https://doi.org/10.1186/s12913-022-07722-y |
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